Monday, August 30, 2010

FEELING SOME PAIN?
If you are, and I know some with Moebius suffer, for various reasons, from chronic pain--well, here's a novel way to deal with it:
"People with chronic pain who aren't getting enough relief from medications may be able to ease their pain by smoking small amounts of marijuana, a new study suggests.  Marijuana also helps pain patients fall asleep more easily and sleep more soundly, according to the report, one of the first real-world studies to look at the medicinal use of smoked marijuana. Most previous research has used extracts of tetrahydrocannabinol (THC), the active ingredient in the cannabis plant."

It's a solution obviously that wouldn't appeal to everyone, and wouldn't necessarily be right for everyone (especially for someone with Moebius Syndrome--smoking anything isn't exactly the easiest thing for us to do!).  Still, speaking for myself, if someone chose this method of controlling their pain, I'd have no problem with it.

MOEBIUS SYNDROME IN THE NEWS:
From New Jersey:
"Born 10 weeks premature at Cooper University Hospital in Camden, Christa Chant weighed 2 pounds and could fit into the palm of her father's hand.  Two days later, she was diagnosed with an intraventricular hemorrhage -- a bleeding into the brain's ventricular system -- and nearly stopped breathing.  "Three times they told us she wasn't going to survive," recalls Christa's father, Ted. "And if she did, she would never walk or talk.  "Sixteen years later, Christa is scheduled to join 12 teammates from Challenger Ball of Cherry Hill for an 11 a.m. exhibition baseball game Saturday, a day before the Little League World Series championship in Williamsport, Pa.  Highlights of the Challenger game are expected to be aired during ABC's Saturday telecast of the Little League World Series....Challenger was established in 1989 as a separate division of Little League for boys and girls 5 to 18 with physical and mental disabilities. The division now has more than 30,000 children participating in more than 900 programs worldwide.  The Cherry Hill program was formed in 2007 by Steve Silverman, a longtime Little League coach whose daughter, Isabel, passed away in 2005 at the age of 6. Isabel suffered from Moebius syndrome, a rare neuromuscular disorder characterized by lifetime facial paralysis.  The free Cherry Hill program has grown from 97 players in its startup season to more than 150, spawning similar programs in Stratford, Medford, Pitman, Vineland and Gloucester County."

Congratulations to Mr. Silverman, and indeed his daughter is remembered.  This shows how grass-roots efforts can pay off.

Meanwhile, here's another story about a high-achieving person with Moebius Syndrome--from New Zealand:
"Otumoetai Swimming Club's Tayla Clement has secured a New Zealand paralympic record of 1.13.70 in the 100m individual medley at the Bay of Plenty winter swimming championships.  Clement's hard work has paid off under the guidance of coach Stefan Swanepoel.  "Tayla does not receive any special treatment because of her condition - she has put in the effort and this is her reward."  Clement has a rare condition known as Moebius syndrome, a congenital neurological disorder. She is part of the Xcellerate to Xcellence programme within Swimming Paralympics New Zealand  Well known swimming coach Clive Power is one of Clement's coaches within Swimming Paralympics NZ."

Congratulations to Tayla Clement!  Great stories in the news today concerning Moebius Syndrome, grass-roots work paying off, and individual achievement.  Hard work really can pay off...

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