Wednesday, October 15, 2014

MOEBIUS SYNDROME IN THE NEWS

And once again it concerns our young Moebius hero Jack Marshall, from the UK.  We've talked about him before on this blog; he accomplishes amazing things.  And now he's about to win an award.  Read more:

***************************************

Leukaemia & Lymphoma Research fundraiser Jack Marshall has been announced as the winner of the BBC Radio 1 ‘Stephen Sutton Teen Hero Award’, in recognition of his remarkable and selfless fundraising for charity.
Jack, who has Moebius Syndrome, is unable to walk unassisted, has difficult with hearing and sight, and is unable to smile. Despite this he has completed the Great North and Great Manchester Junior runs a number of times, as well as climbing Yorkshire’s three peaks and Snowdon to raise thousands of pounds for Leukaemia & Lymphoma Research.
The 16 year old from Belton in Lancashire was suprised by Radio 1 DJ Nick Grimshaw, who visited him at his home to share the amazing news. You can listen to Jack's reaction here from 1hr19 and then again at 1hr26.
The award, which will be presented at the Radio 1 Teen Awards ceremony this Sunday (19 Oct) at Wembley Stadium, was created in memory of 19-year-old Stephen who raised £5m for charity before his death from cancer in May.
Jack says: “I do what I do to help other people. Yes I have Moebius Syndrome but that is not a terminal illness like blood cancer can often be. Leukaemia, lymphoma and myeloma destroys so many lives, both young and old, and so many of those lives can be saved with money raised for research and to support patients with the disease.
“I am very proud and very humble that my name is linked to an inspirational person like Stephen Sutton and I shall aspire to honour his memory.”
Jack’s mum, Linda, adds: “Moebius Syndrome is known as life without a smile but Jack smiles from inside in a big way. I am proud of him every single day of his life - the way he lives his life, the way in which, despite his disability, he devotes himself to helping others. He is an incredible young man.”
Cathy Gilman, Chief Executive of Leukaemia & Lymphoma Research, says: “When we heard the news that Jack had won this very special award we were absolutely delighted for him. His determination to raise tens of thousands of pounds to help those affected by blood cancer is incredibly selfless and truly inspirational.”

*********************************

Be sure and follow the link above to the actual site that first posted this; they have links to more information about all this, along with the some video of Jack Marshall himself.  Great work, Jack!

No comments:

Post a Comment