Everyone, meet Penny Loker. She has a facial difference (we with Moebius Syndrome know something about that, too). And she has some good things to say. Indeed, I imagine many of us can identify with some of the experiences she has had and her reactions to them. But on the most part, she hasn't let it get her down. Why not? This is from CNN--read on:
"Editor's note: We first
met Penny when she wrote to us about a CNN photo gallery showcasing
disfigured children and stillborn babies affected by Agent Orange in
Vietnam. Penny spoke of the anger and sadness she felt over seeing CNN's
"viewer discretion" warning on the gallery. She was born with a disease
that left part of her own face malformed and felt compelled to reach
out to us about the children who simply look different. "How can I not
speak up about this?" she asked. "If not me, who will speak on behalf of
these children?" We invited her to educate us all by sharing her story
and allowing us to see the world through her eyes.
(CNN) -- As a little girl, she never got a valentine at school parties.
As a teenager, she never had a best friend, a boyfriend or a date.
As a woman, she's never had a relationship. She's never been kissed.
Her dream to one day become a wife and mother is fading as she grapples with the reality that it may never happen.
Penny Loker, 31, was born with hemifacial microsomia and Goldenhar Syndrome,
two birth defects that left her with a disfigured face. Hemifacial
microsomia causes a malformation of the ear and/or the structure of the
lower jaw. Goldenhar Syndrome is a congenital condition that produces
abnormalities of the head and the bones of the spinal column. It usually
affects the appearance of eyes, ears, facial bones and the mouth.
Both conditions are
complex, as are their names. But for a little girl facing a big world,
the names were simple: Monster. Ugly. Freak.
Loker was raised in Waterloo, Ontario, Canada, in a home where love and acceptance were given freely.
Her father died soon
after Loker's first birthday. Her mother, a strong, loving woman,
readily took on the challenge of raising Loker and her sisters. That
included arranging for multiple surgeries at hospitals far from home.
Loker's recoveries were
lengthy and painful, recalls older sister Crystal Loker. "But even then
Penny had a positive attitude. She was a trouper who kept her smile and
didn't complain."
At home, Loker's looks
were not an issue and she was treated the same as her sisters. She knew
she looked a bit different, and she knew it caused her to be in the
hospital a lot, but she had a child's innocence and accepted it as
normal.
When it was time to
start school, she discovered how different she actually was. She spent a
lonely childhood excluded from nearly everything. She had no friends.
She accepted the name-calling as part of her life and seemed to
understand that crying or fighting back only made it worse. So she
quietly endured it.
She remembers that pain
and humiliation well. "As an adult, it's hard to stand by silently when
you know what these kids are going through," Loker says. "But it's
equally difficult to speak out when you don't feel empowered to do so."
As she got older, the
name-calling was more often behind her back than to her face. By the
time she reached high school, she had learned there would be no friends,
parties or dates for a girl who looked like a freak.
"It hurt, but there was nothing I could do to change it," she says.
While day-to-day
encounters with strangers brought the same hurtful stares and comments,
Loker was used to it. Then came a day with such cruelty it remains a
vivid memory.
"For graduation my
sister gave me a gift certificate for a manicure and pedicure. I'd never
had one before, and it was a wonderful experience. I left the spa
feeling truly pretty for the first time in my adult life."
But less than a block
from the salon, she encountered a carload of boys who slowed to look at
her and began pointing and calling her names.
Distraught, she walked
as quickly as she could to get away from them, thinking all the while
that she was not beautiful after all.
"The pretty nails made
no difference at all. Shamed and humiliated, I realized I was still the
same girl that everyone made fun of," she recalls. "I remember that day
as one of the worst."
But time can ease all wounds, and her determined spirit taught her to find the good around her.
She has a core group of
girlfriends and relatives who cherish her as she is. She speaks proudly
of being able to provide for herself, thanks to her job at Rogers
Communications, where she spends her days handling customer requests.
The company was recognized this year as a diversity leader corporation, a
recognition that only adds to Loker's pride.
There are many
adventures in life that she is hesitant to embrace, even though she is
physically able. She prefers not to shop alone. She has never been on a
true vacation, saying the thought of one is scary.
Yet it's a feat she is
determined to accomplish. She is saving now for a trip to California to
visit either BlizzCon or Comic-con.
"I'm kind of a geek and
play the online MMO World of Warcraft with my sister and her husband,
and we always talk about how cool it would be to go there," she says.
"People dress up so I would feel 'normal', not out of place."
She's quick to point out
she has no interest in visiting a theme park geared toward children,
where she'd likely be subjected to stares as parents attempt to answer
questions about her.
She wishes she could
open the dialogue about individuals with malformations by educating
people, especially children, whose natural curiosity can eventually
become cruelty if left unaddressed.
"Educating them early on
would help them learn to be more tolerant of others who are different.
The ability to love, share, bring happiness and help others is the real
beauty of a person," she says.
"The exterior doesn't
necessarily reflect the beauty that often lives inside. And when people
fail to remember that, they can miss out on the love and friendship of a
truly special person."
Crystal Loker agrees.
"Penny is truly beautiful. She's always seeing the best in others and
never has an unkind word for anyone. In Penny's world, others always
come first. She's full of laughter and smiles. When you spend a day with
her, you go home feeling good about yourself."
Loker welcomes the
opportunity to teach all of us to see beyond the surface. But until
then, she continues to hope for good days in her own life, which for her
means days when she is ignored.
"When I go out to dinner
with my friends and no one stares at me or asks to be moved to a table
further away from me, that's a good day," she says.
In spite of it all,
Loker is quick to point out her many blessings: Being able to share a
home with her family, having a job she loves, having good friends and a
good health care system to help with the cost of a lifetime of
surgeries.
Her only regret?
"I have so much love to
give and I would love to share that with a family of my own. I
understand it will probably never happen, and I'm learning to accept it.
But I am sad about it," she says. "It feels like the one great loss in
my life."
"The obstacle is the path." -Zen Saying
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