I believe today is Autism Awareness Day; and therefore, there's no better time than to share this excellent story I found today. Autism of course is sometimes--though by no means always--associated with the condition of Moebius Syndrome; and in general I think those who are autistic in any case share some of the same obstacles into which we with Moebius run. But this young man has found many ways to cope. Read on, and see if his story both helps--and inspires--you:
"Growing up as an autistic has never been easy.
At 5, I was diagnosed
with Pervasive Developmental Disorder-Not Otherwise Specified, or
PDD-NOS, one of the five autism spectrum disorders. Those with PDD-NOS
have difficulties in areas of social interaction and communication.
While I am
high-functioning, my life has been full of enormous ups and downs. There
were moments when I didn't think I was going to succeed. But I
fortunately prevailed through many challenges, such as getting my
driver's license, making friends, moving to a new home, starting college
and writing a book.
Would I have met these
goals by myself? No way. I did at times make the mistake of relying on
my own understanding, but when I turned to other resources, including my
parents, teachers and peers, I gained the wisdom I needed to accomplish
the goals I was striving for.
One challenge I faced as a
teenager was getting my driver's license. My parents always wondered
whether I would learn to drive, but signed me up for a driving course at
15.
When I got behind the
wheel to go on my first-ever drive, I was terrified. With each
progressive step, I got more and more scared, but I practiced
consistently with my mom, and gradually got better. Then, the time came
to take the written portion of my driving test. My mom helped me study
for the test, and twice in a row I failed. The third time, my mom
arranged a special accommodation -- a pair of headphones so I could hear
the questions being asked as well as read them.
Thanks to the headphones,
I passed the test. The very next day, I passed the driving portion of
the exam, and got my license, a few months after my 16th birthday.
That evening, I went off
driving on my own for the first time with my new driver's license. It
was one of the most exciting things I had ever experienced, and it felt
so refreshing to be driving on my own. I loved knowing that, in spite of
my autism, I could have the same responsibilities as other kids my age.
The most dominant challenge for me, as a child and even today, has been making and maintaining friendships.
I spent probably 90% of
my childhood by myself because I never really cared much for people. I
made various mistakes when trying to make friends, including wasting
time hanging around people who either didn't care or just wanted to take
advantage of my disability.
But as I got older,
meeting many different types of students at school, I finally met people
who do respect me and appreciate me. Although I'm still not super close
to most of them, they have been the type of friends I needed; they help
me by pointing out flaws that I am unaware of, and help me understand
what friendship really is. This is a skill that I am still working on,
but am making progress through the people I see every day, including my
parents, friends and school counselors.
The main thing that
helped me make friends that I could trust and enjoy was getting involved
in clubs and organizations. In high school, I joined the school's drama
department, which helped tremendously in getting to know people better
and picking up on social cues.
In college, I became a
volunteer for the junior high ministry at my church. I am a group leader
for 12-year-old boys, and I help with ministry events. This has not
only helped in social interactions with others, but also in
responsibility and leadership. Because these activities helped me so
much, my advice to parents is to help your child find some type of
involvement, whether it's a school club/organization, a youth program at
a church or volunteer work in the community.
The groups I joined fit
in with my interests. I wouldn't suggest joining every group or activity
out there, but it is worth the effort and will help your child to an
extraordinary extent.
I was very fortunate to
grow up in an excellent public school district with a great special
education department and wonderful teachers and other staff. My parents
were involved with the schools and took advantage of the resources
offered. Through all my years growing up, the special services at school
have made the biggest impact on my progress.
All autistic children
don't have access to the best public school resources, but they can seek
out support groups through local hospitals, clinics, autism centers or
private counselors. The college I attend has a program specifically
created for students with autism and Asperger's, which helps them learn
their strengths and weaknesses and how to advocate for themselves. I
have learned what my needs are and how to ask for help, even though at
times I wanted to give up. I have always been given the help I needed
when I asked.
My experiences growing
up with autism have made me who I am. Because of the help I received
through my schools, the activities I participated in and the support of
true friends and family, I believe that many autistic individuals can
realize their own dreams and goals, such as getting a college degree,
living on their own, working in a fulfilling career, marrying and having
children.
Right now I drive a car,
use a credit card and have a 3.6 grade point average at my community
college. I have been accepted at five four-year universities and am
looking forward to a future of great possibilities for me as well as
other autistic young adults.
While life will
certainly continue to bring its challenges to me, I am confident that I
can face those challenges and put strategies in place to help me
persevere. My sincere hope for anyone with autism is that they find the
help they need to give them the confidence to not just survive, but to
thrive in life."
"Hope has two beautiful daughters, their names are Anger and Courage. Anger at the way things are, and Courage to see that they do not remain as they are."--Augustine of Hippo
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