It's important to look at this, given that autism is sometimes--though by no means always--associated with Moebius Syndrome. So here are some conclusions from a piece on CNN--though certainly this is not the final word on the subject:
"When he turned 5 in October, Spike Robinson celebrated with his parents, three siblings, and a pink cake decorated with M&M's and lollipops.
It was your standard birthday bash -- except when it was time to sing.
"Spike asked us to do it
very slowly, and in a whisper," recounts his mom, Shavon Brown-Robinson,
who lives in Dania, Florida. "And then he didn't want us to cut the
cake. He didn't want it ruined."
He finally relented -- and then burst into tears. "But he got over it and had a big slice," says Brown-Robinson proudly.
For most kids, a birthday
party is a milestone; for Spike, it was a miracle. Just a couple years
before, he hated celebrations. "Whenever there was singing or clapping,
he'd start screaming," says Brown-Robinson.
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By the time Spike was 3,
he was struggling to make conversation and walking on his toes.
Brown-Robinson made an appointment for him to be evaluated at the Miami
Children's Hospital Dan Marino Center.
Spike was indeed
diagnosed with autism, also known as autism spectrum disorder, which
ranges from mild social awkwardness to sensory problems (trouble dealing
with certain sounds or textures) to an inability to talk or take care
of oneself at all.
"I was so scared for that diagnosis," Brown-Robinson confesses, "but the moment we got it, the doors started flying open."
This story could not
have been written when Spike was born. In the past five years, experts'
thinking on autism has changed, myths have been busted, breakthroughs
have been made, awareness has skyrocketed, and children are making the
sort of rapid, meaningful progress that previously would have been
unimaginable.
In a couple of years, we
will learn something new that changes everything all over again. But
what we know right now could change a child's life.
Autism is being called an "epidemic." Verdict: True
The "A" word is enough
to rattle any parent: Nearly two-thirds of young moms and dads are
concerned their child will be diagnosed with ASD, according to a recent
survey by the Florida Institute of Technology.
It's no wonder, given the runaway rates. Whereas 1 in 150 kids was diagnosed with some form of autism five years ago, 1 in 50 kids is on the spectrum today.
These rising rates
inspired Bob Wright, co-founder of Autism Speaks, to say, "We have an
epidemic on our hands.... It is imperative that the U.S. government
steps up its commitment to helping people living with autism today."
Last November, the first congressional hearing on autism in 10 years was
held to determine what the federal response should be. (It didn't
exactly make front-page news: It aired on CSPAN-3.)
Autism only begins after birth. Verdict: False
Fifty years ago,
autistic behavior was blamed on "refrigerator moms" who were too
unfeeling to teach their children social skills. "Now we know there's a
host of genetic and environmental factors that are likely involved,"
says Dr. Susan Hyman, professor of pediatrics at the University of
Rochester Medical Center and chair of the American Academy of Pediatrics
subcommittee on autism.
One possible contributor
to autism's rise is that people are having babies later. The chance for
gene glitches increases as parents -- especially dads -- age, explains
Irva Hertz-Picciotto, an environmental epidemiologist at the MIND
Institute at the University of California, Davis.
But delayed childbearing
explains only a very small fraction of the rise in autism rates.
Environmental factors may turn many autism genes "on" or "off," says
Hyman.
"The best studies we
have now point to things that babies are exposed to in the womb, when
the brain is forming," says Hertz-Picciotto. Living in areas with high
levels of air pollution (such as near a freeway), having low levels of
folic acid, being overweight or diabetic, and having a high fever during
pregnancy all seem to up a woman's risk of having a child with autism.
Babies can display signs of autism starting at around 6 months. Verdict: True
Autism is notoriously
tricky to spot in infants, mainly because symptoms can mimic other
developmental delays. But researchers have come up with some reliable
red flags.
Between 6 and 12 months,
babies who go on to have autism are less likely to smile and vocalize
back and forth with parents. "They aren't tuned in to people, but
things," says Dr. Fred Volkmar, director of the Child Study Center at
Yale University.
Certain motor-skill
delays can be a tip-off even earlier. "We found that when 6-month-olds
were laid on their backs and pulled up to a sitting position, nine of 1-
who went on to have autism let their heads droop behind their
shoulders," says Rebecca Landa, director of the Center for Autism and
Related Disorders at the Kennedy Krieger Institute in Baltimore.
Not all -- or even most
-- babies who are stingy with smiles or have poor neck strength will go
on to have autism. However, parents should note this possible sign of
delay and mention it to their pediatrician so he can be more aware of
other warning signs later.
If your child shows signs at around 18 months, he should be evaluated. Verdict: True
Autism isn't usually
formally diagnosed until around 18 months, when it's clearer what
worrisome behavior persists. A lack of words or communicative gestures
(like pointing), and repetitive behaviors such as sorting objects are
red flags at this stage. These are things your child's doctor should ask
about at the 18-month checkup, when the AAP recommends pediatricians
screen all kids for autism.
"Once a child screens
positive, he then needs to see a specialist for an evaluation," says Dr.
Geraldine Dawson, professor of psychiatry at the University of North
Carolina and the chief science officer for Autism Speaks.
"The earlier that delays
are identified, the sooner you can help your child," says Landa.
Starting at 16 months, you can fill out the M-CHAT, a free, AAP-approved screening tool. Make an appointment with your pediatrician if you're concerned over the results.
Therapy can't "rewire" the autistic brain. Verdict: False
Experts like Dawson and
Landa think age 1 to 2 is prime time to start autism treatments. "The
younger the brain is, the more changeable it is," says Landa. In her
clinics with toddlers, Landa teaches parents to imitate the way their
children play, which may help build communication circuits in the brain.
Karin Hill credits
play-partner sessions for helping her daughter Natalie, who was flagged
as high-risk for ASD at age 1. "All Natalie wanted to do was tap the
window. I thought, 'How is this going to work?' But I started tapping
the window, too," says Hill, who lives in West Chester, Pennsylvania.
"All of a sudden, Natalie looked in my eyes and smiled. I felt like I
could cry."
Following Spike's diagnosis, Brown-Robinson turned her fear into action. She scouted out local schools and autism services.
Through intensive
one-on-one exchanges with teachers and special tools like picture cards,
Spike started learning how to speak up, rather than act out, when he
was uncomfortable. All of which led to the first happy birthday of his
5-year-old existence."
"Stand up to your obstacles and do something about them. You will find
that they haven’t half the strength you think they have." -Norman Vincent
Peale (1898-1993)
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