These are just some items that my Moebius friends have been mentioning lately, and that made me think that their great thoughts ought to be spread even more widely:
1] Families with a child with Moebius Syndrome--with a special needs child--are in some ways lucky. They learn to accept differences. They know all about diversity; they experience it every day. They learn how beautiful differences can be and how it enhances you; it doesn't drag you down. Knowing someone with Moebius Syndrome teaches you more about life. It can be a beautiful thing.
2] So many parents and grandparents of someone with Moebius Syndrome are so proud. They tout all the successes that come, and their love quite obviously is so strong. Once again--it can be a beautiful thing.
3] So often we learn about accomplishments. My Moebius friends are succeeding in college; at relationships; and at life. One of my friends recently told the story about how her Moebius son is now able to get, by himself, into a chair. That seems like the easiest thing in the world, but to a child with special needs, it isn't. But they learn how to do it. They learn how to adapt. It can be a beautiful thing.
There are problems we face with Moebius, too. We face physical pains and obstacles. Many Moebius children face sleep issues. If you're a parent of a Moebius child, dealing every day with a child who has special needs puts great strain on both you, and your marriage.
On that note, one of my friends very recently wrote a beautiful, intelligent, penetrating blog entry about how having a special needs child has affected his marriage. You can read that here. Check it out; once again we see--despite all the problems, life and marriage and childhood--with Moebius!--can be a beautiful thing.
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