Some of you may have seen this already. But just in case--meet another young Moebius hero, Juliete Lyng, from Moultrie, Georgia. Read more about and how others are trying to help:
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A Helen, Ga., girl with lots of Moultrie ties is struggling with three serious illnesses and needs a bone marrow transplant.
Juliete Lyng, who celebrates her 11th birthday Wednesday, was born with
Pierre Robin syndrome and Moebius syndrome, her family said.
Pierre Robin syndrome is a birth defect in which the infant has a
smaller-than-normal lower jaw, a tongue that falls back in the throat,
and difficulty breathing, according to an article on the National
Institutes of Health website. Moebius syndrome is a rare neurological
condition that primarily affects the muscles that control facial
expression and eye movement, according to another article on the same
site.
As if those issues weren’t challenging enough, in April Juliette was
diagnosed with myelodysplastic syndrome, or MDS. In MDS, a person’s stem
cells in the bone marrow do not mature into healthy blood cells,
according to another NIH article.
MDS puts Juliette at a 97 percent chance of developing leukemia, her family said.
Juliette is the daughter of Marti and Brian Jaenke and Ryan Lyng, all
of Helen, but her great-grandmother, Mervin Richter, lives in Moultrie,
and so do a number of her aunts, uncles and other family members.
On Saturday, Moultrie Church of God, 3113 Veterans Parkway South, will
hold an event, Jumpin’ for Juliette, to raise money for the family. A
flyer from the church promises jump houses, slides, sand art activity,
Snowbiz shaved ice snocones, hotdogs and drinks, a bake sale, a yard
sale and much more. The event starts at 11 a.m. and is scheduled to go
until 6 p.m.
The family has established a fundraising page at www.giveforward.com.
The page has a goal of $6,000 and as of Monday had received two
donations totaling only $55.
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