ALWAYS PROTECT YOUR EYES
Those of us with Moebius Syndrome can undoubtedly identify with this piece of advice, especially given that it's very difficult for us to squint:
"You may hear a lot about keeping your skin safe from the sun’s harmful rays, but did you know your eyes need to be protected too? Dr. Manny, senior managing editor of FoxNewsHealth.com, explains:
Short-term UV exposure may burn the front surface of the eye, just like a sunburn would on the skin.
To protect your eyes, you should always wear sunglasses that block 99 to 100 percent of the UVA and UVB rays. And they don’t have to be expensive.
UV exposure can come from reflections off the sand, pavement, water and snow – so you should wear sunglasses year-round.
In addition, a wide-brimmed hat can also add cover.
Overexposure to sunlight can lead to cataracts, which is the common long-term consequence.
Cataracts affects 22.3 million Americans and costs $6.8 billion dollars in medical bills each year.
But, if you take the proper precautions when out in the sun, you can avoid problems like these."
DIVORCE AND SPECIAL-NEEDS CHILDREN
On Facebook a little bit ago, the topic of getting a divorce, all while you have a child with Moebius Syndrome, came up. There are no easy answers there. But any couple, or any parent, dealing with the issue might want to check out a website such as this--it has some intelligent thoughts and resources on the subject:
"There is no question that having a child with a disability is a tremendous source of stress for any couple.
What was once a carefree romantic relationship turns into a painful, confusing, emotional rollercoaster, at least for a time.
Sometimes one partner decides he or she wants off the ride and this leaves a tremendous burden on the spouse left behind.
If the problems in your marriage have reached a crisis stage and you are considering a divorce, first explore all possibilities of saving your marriage.
Often marriages can be saved with the help of skilled marriage and family counselors. If you do not know a counselor, an experienced divorce attorney can recommend one who is properly qualified.
If your marriage cannot be saved, there is still a good chance that you can negotiate a divorce that is fair to both of you without an angry and destructive battle. It is possible to negotiate your differences in a reasonable way."
Read the whole thing...
"As I grow to understand life less and less, I learn to love it more and more."--Jules Renard
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