Friday, April 29, 2011

MOEBIUS SYNDROME IN THE NEWS
We have another Moebius hero--9 year old Harvey Hole, from the UK:
"Schoolboy Harvey Hole has his fellow pupils in stitches with his ability to tell jokes while keeping a completely straight face.
But his quick wit and deadpan delivery hide a tragic secret - he is unable to smile because of a rare medical condition that only affects 200 people in the UK.
The happy and cheerful nine-year-old has battled a rare form of facial paralysis since birth, called Moebius Syndrome,  which means he cannot blink, smile or frown.
But despite the congenital handicap - Moebius Syndrome - the youngster from Bolton-upon-Dearne, near Doncaster, is a source of inspiration to everyone he meets.
His mother Kelly, 34, said: 'He's quite a funny and cheeky lad and he loves telling jokes. He and his younger brother Maxwell, aged six, make a great double act.
'Despite serious problems Harvey has blossomed into that lovely intelligent nine year old lad.
'He is so happy with life and that is what really matters. He has a wicked sense of humour and he is a right one for the ladies.
'He has a good group of friends and gets on well with everybody. A lot of people , when they first meet him, can't quite catch what he says. But his mates have known him since childhood so that is never a problem with them.'
She added: 'Harvey has taught me so much about life - and the need to look beyond the face value of everything.'"

I especially like that last line.  Moebius, if nothing else, teaches us that "face value" of something means a little something different than what one might think...

"Have patience with all things, but chiefly have patience
with yourself. Do not lose courage in considering your own
imperfections but instantly set about remedying them-every
day begin the task anew." -Saint Francis de Sales





No comments:

Post a Comment