Wednesday, October 6, 2010

MOEBIUS SYNDROME IN THE NEWS
Others in the Moebius community have already noted this and commented on it, but in case you haven't seen it, be sure and go here.  A rapper from Dallas, Texas named Dorrough has a two-year-old daughter...and she, it turns out, has Moebius Syndrome.  And I'm delighted that Dorrough seeks to raise awareness about Moebius.  Welcome to our community, my friend...

And I'm sure he can help raise awareness.  And I think it important as well that we in the Moebius community reach out to Dorrough and to anyone else who has Moebius--or who has a member of the family with it--but who doesn't yet know about our community.  Dorrough, if you're out there, or if any friends of Dorrough are out there and come across this, let him know that there are a lot of us out here, that there's a whole Foundation, a whole support group, out there, and we're here for you and for everybody else.  And we send our best to you and your daughter.

"Decide what you want, decide what you are willing to exchange for it.
Establish your priorities and go to work." H. L. Hunt

"Only those who dare to fail greatly can ever achieve greatly." Robert
Francis Kennedy

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