AT THE 2012 MOEBIUS SYNDROME CONFERENCE IN PHILADELPHIA...
The guy who heads this orgnization...

(His name is Rick Guidotti, and he's done amazing work)...
...will be the closing speaker for the conference, and I'll bet he will have a lot to say.

Check out the link above; and you can learn more about Mr. Guidotti here.  No wonder people are already looking forward to the 2012 conference.

YET ANOTHER MOEBIUS HERO
And this time it's 2-year old Dylan Gentry.  You can read and see the whole story here.
I especially liked this excerpt:
"Dylan’s mom had never heard of it until her son was diagnosed. Knowing Dylan will likely never blink or smile back at his brother or sister is heartbreaking for her.  “You take a smile for granted. You take your blinking for granted. And you look at other people and you look at yourself smiling and sometimes I feel guilty,” Andrea Gentry said. “I have to admit I do feel guilty sometimes, being able to smile and being able to show that expression.”  But the emotion that’s most powerful for her these days is fear; fear that her child will be misunderstood and mistreated. That’s why she’s going public for the first time about his condition.
“I want people to know what it is and not to judge people just by the way they look,” Andrea Gentry said. “Because he doesn’t smile, he doesn’t frown, he doesn’t have any facial expression. And you’ll look at people and you’ll think that they’re being rude or there’s something wrong with them. But there’s not, they’re just the same as you and I.”....It’s why Andrea Gentry wears a purple wristband at all times.
“This band here, it says ‘Our smiles come from our heart’ and that’s the motto of the Moebius Syndrome Foundation. You can’t smile on the outside, but our smiles come from our heart,” she said. “Dylan has a bigger smile than mine. It’s just in the heart.”

Amen!  We keep raising awareness...one story at a time.