Thursday, January 7, 2016

Remember: Moebius Syndrome Awareness Day--January 24th

It is coming soon.  More great information can be found here:

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When: January 24, 2016
What: Moebius Syndrome Awareness Day is an annual event celebrated globally each year on January 24th — the birth date of Professor Paul Julius Moebius, the doctor who first diagnosed the condition in 1888.
The goal of Moebius Syndrome Awareness Day is to raise awareness about this rare condition and to educate the world. Each year participants are encouraged to wear purple and raise awareness through various means and channels.
Moebius Syndrome Awareness Posters
Moebius Syndrome Awareness Posters were created for Moebius Syndrome Awareness Day and Rare Disease Day with the words “look beyond face value” or “our smiles come from our hearts.” They are offered free of charge to those in the USA and there are a limited number of the 19 x 13” posters left (we have run out of the poster featuring the two young girls). If you would like a poster sent to you, send an email to marcia@moebiussyndrome.org, and specify which one you would like, and your mailing address. All posters can be downloadedMoebius_Awareness_Posters in the 8.5 x 11” size.
boy couple girl girls (1)
More information, project ideas and toolkits coming soon!

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