Friday, January 15, 2016

DID YOU KNOW? DEPT: THE RARE IMPACT AWARDS

Did you know there were such awards handed out?  Who does it?  The National Organization for Rare Disorders.  Read on:

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For more than 25 years, NORD has hosted an annual celebration to honor the year’s top achievements in rare diseases. In 2016, we are expanding the program and want to hear from you about the difference makers.



They are patients, caregivers, advocates, doctors, researchers, legislators, regulators, and public figures. Individuals who make a positive impact on the rare disease community go above and beyond, overcoming certain obstacles, to make meaningful change in the lvies of others. They are making a rare impact.



We want to honor these individuals for their passion, dedication, and support. If you know someone making a rare impact, nominate them today!


Nominations will be accepted through February 1, 2016 at 8:00am EST. Please visit our website for additional information about this event and sponsorship opportunities.


ABOUT NORD

Every day in America, 30 million people wake up to fight the battle with a rare disease. The vast majority are children. For most, there are no cures and few, if any, proven and effective treatments.  NORD provides a unified voice for those courageous individuals, and the parents and other caregivers seeking to help them, so that they won’t have to fight that battle alone.


You can learn a lot more here.


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