Monday, January 5, 2015

FACIAL DIFFERENCE IN THE NEWS

And now this blog is back from the holiday break, and ready to get going again!
You know, one of the ways we can verbally describe Moebius Syndrome is to say that we are people who have a "facial difference."  And the thing to remember there is--we are not alone.  Many other people around the world have facial differences, too.  They can come in many different ways.

But just as we try not to let out differences keep us down or prevent us from achieving our goals, others blaze that same trail.  For example:  have you ever heard of Elizabeth Baugh?  She is now recognized as one of Canada's most successful women; but she also, years ago, helped found an organization with which we are very close--AboutFace.  Read more:

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After dedicating 17 years to Ovarian Cancer Canada, Elisabeth Baugh has now joined an elite group of Top 100 Award Winners that includes some of Canada’s most iconic women trailblazers.
Not only has the Colborne resident built and unified the only national charity dedicated to overcoming ovarian cancer, but she has also helped formalize partnerships with national organizations representing cancer specialists, cancer nurses and family physicians to join the movement.
Her accomplishments during those years have already netted her two previous Top 100 Awards from the Women’s Executive Network’s, and a third one in 2014 for once again being one of Canada’s Most Powerful Women.
According to WXN, the Top 100 Awards recognize Canada’s strong, fearless female leaders who have become agents of change in reshaping Canadian organizations at the highest levels.

“It’s recognition like this that sets us apart, that reminds the people in the community we’re trying to influence and those looking for a good cause to support.” Elisabeth Baugh, CEO, Ovarian Cancer Canada

“It’s a thrill,” Ms. Baugh, the CEO of Ovarian Cancer Canada, said when asked about the recognition. “We couldn’t have achieved what we have without a terrific team and a broader, even global community.”
As chairwoman of World Ovarian Cancer Day, Ms. Baugh captured the attention of corporate and industry partners, inspiring them to get involved in raising awareness about the disease, WXN said in its release of this year’s award winners.
The network said she has built and unified the charity while her efforts have formalized partnerships with national organizations representing cancer specialists, cancer nurses and family physicians to join the movement.
But before organizing the first Forum on Ovarian Cancer in 1999, Ms. Baugh made the Top 100 list as a founder of AboutFace, a national organization that provides support and information to people with facial differences.
“I was born with a facial difference and in the early 1980s had surgery to correct it as a adult,” she said, pointing out that it was the medical team that treated her who suggested she help others, including the parents of newborns with a facial difference. “I really had no experience (besides) undergraduate degree in psychology and I was an at-home mom with four kids.”
After meeting with families, she started AboutFace which quickly became a national organization.
“Then we actually took over the American organization and it expanded into other causes of facial difference, because when you have something different about your face, it’s not how you got it but how you live with it that matters,” she added, noting that it is a big social disability.
Her second award came when she worked briefly as the head of neonatal followup for the Hospital for Sick Children, Mount Sinai and North York General Hospital.
“It was a great opportunity and I did my masters while I was there, but I missed the close connection with the community,” she said.
That’s when she saw a job posting for executive director of a new charity for ovarian cancer.
“I knew nothing about ovarian cancer. I was well educated but I didn’t know this was such a terrible disease,” she said.
After joining the team she realized that the local chapter could amalgamate with its western counterpart, helping to reduce the duplication of services which were funded by public dollars.
“With 2,700 women diagnosed in Canada every year, I could not understand the benefit of having two organizations.” Ms. Baugh said. “It was dividing the community ... (and) the best thing for the women of Canada was one group.”
Seeing that amalgamation was a “real professional thrill,” she said.
Asked about the latest award, Ms. Baugh said that having this kind of recognition for a not-for-profit is important.
“We have all of the same challenges as the corporate world. We have IT issues, have to be accountable financially, have HR challenges and we’re expected to do it all on 20 cents on the dollar,” she said. “It’s recognition like this that sets us apart, that reminds the people in the community we’re trying to influence and those looking for a good cause to support.”
Growing up in Montreal, raising her family in Niagara-on-the-Lake and moving to Toronto in the early 1990s, Ms. Baugh has called Colborne home for five years after locating her “dream home” in the community.
“I permanently moved there in the last two years since it was a good distance from Toronto and was a small town,” she said. “I wanted to live somewhere that once I got there I didn’t have to drive and Colborne just fit the bill.”
Other Canadian women presented with the Top 100 Award include astronaut Dr. Roberta Bondar, Venture Communications CEO Arlene Dickinson, Sleep Country Canada president Christine Magee, Royal Bank of Canada chair Kathleen Taylor, and former Governor General of Canada MichaĆ«lle Jean. 

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