MOEBIUS SYNDROME IN THE NEWS

Thanks in this case to Moebius Syndrome Awareness Day, the Canadian Broadcasting Network, and my friend the awesome, indomitable Kelsey Ferrill.  Read her story:

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Kelsey Ferrill, a 24-year-old journalism student at SAIT in Calgary, suffers from an extremely rare condition. 

Moebius Syndrome affects only 10,000 people worldwide. It damages the cranial nerves, causing paralysis in the facial muscles. 

As a result of the syndrome, Ferrill has partial paralysis of the face. She has difficulty swallowing and speaking and is often the object of rude remarks and cruel comments. 

"I guess the sad thing is I'm used to it, so it doesn't actually bother me as much as it used to," she said.

Jan. 24 is the annual Moebius Syndrome Awareness day. It is intended to call attention to the disorder.

Ferrill says she hopes the publicity will help people look past the paralysis and see the person who is affected. 

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And even better, watch the video of her story at the link above.  Great stuff!