Tuesday, January 27, 2015

MOEBIUS SYNDROME IN THE NEWS: NEW JERSEY LOVES WILLEM WUEBBEN

This occurred to be exact in Nutley, New Jersey, where the Board of Commissioners there declared a day in honor of young Moebius hero Willem Wuebben, who just recently has been mainstreamed into third grade, has been doing well, and his family worked to raise awareness around Moebius Syndrome Awareness Day.  And it worked!  Read more about young Willem and all he and his family are accomplishing:

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The Nutley Board of Commissioners declares Saturday as Moebius Syndrome Awareness Day, in honor of Lincoln School fourth-grader Willem Wuebben.

The Nutley Board of Commissioners declares Saturday as Moebius Syndrome Awareness Day, in honor of Lincoln School fourth-grader Willem Wuebben.
The Nutley Board of Commissioners proclaimed Saturday as Moebius Syndrome Awareness Day, in honor of Lincoln School fourth-grader Willem Wuebben, who mainstreamed into the third-grade last year.
"You're my hero today," Revenue and Finance Commissioner Thomas Evans said during Tuesday's meeting. Mayor and Public Safety Commissioner Alphonse Petracco congratulated Wuebben on his "fantastic" accomplishments.
The A student was diagnosed with Moebius Syndrome at the age of 1. Moebius is characterized by facial paralysis and other neurological problems including visual impairments, sensory integration dysfunctions, sleep disorders and weak muscle tones.
Willem read a poem and handed out pencils to the commissioners.
His father Michael said that his son's greatest attribute is compassion. "No matter what he's feeling, he's always worrying about others," he said. 

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Congratulations, Willem!

1 comment:

  1. Your HHRS News is a blog about health, medicine, fitness and nutrition in New Jersey. We were only too happy to help spread the news about Willem, as well as congratulate Many Faces Of Moebius Syndrome.com for reaching their Facebook goal: http://yourhhrsnews.com/?p=11865

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