Friday, April 27, 2012

MOEBIUS SYNDROME IN THE NEWS
Read about Moebius hero Jake Quinn, from the New England area:
"Berkley resident Jake Quinn has touched the lives of many, including this season’s Stonehill College men’s ice hockey team.
The Skyhawks recently drafted the fourth grader through Team IMPACT (Inspire, Motivate, Play Against Challenges, Together), a New England based non-profit that aims to improve the quality of life for kids facing life-threatening illnesses by creating unparalleled team-based support systems.
Quinn, 9, has been battling a rare illness which has resulted in vision issues and years of physical therapy since birth. Doctors recently diagnosis the illness as Moebius Syndrome — a rare condition that affects the nerves of the eyes and face.
Quinn loves the Boston Bruins and Stonehill player Chris Tasiopoulos (Norwell, Mass./Thayer Academy). Quinn goes bowling with the team and occasionally hangs out in the locker room."

Good for Jake...

"Happiness consists in the full employment of our faculties
in some pursuit." -Harriet Martineau

“Millions of men have lived to fight, build palaces and boundaries, shape destinies and societies; but the compelling force of all times has been the force of originality and creation profoundly affecting the roots of human spirit. ”--Ansel Adams (1902-1984

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