Wednesday, July 1, 2015

MOEBIUS SYNDROME IN THE NEWS: AN UPDATE

Remember our young UK Moebius hero, Jacob Rowan?  Here's an update on he, his family, and their fund-raising efforts:

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Two-year-old Jacob Rowan was born with Moebius Syndrome which prevents him from smiling or making facial expressions.

His older cousins, Matthew and Erin Roberts, and friend Bethany Molloy sold loom band bracelets and home baking at the St Eunan’s School Fayre last week in a bid to raise funds for the trust, which is funding vital research into the condition.

Also organising a raffle, the youngsters were given a range of prizes from Clydebank businesses including a sweet hamper by Samantha Sweet Creations, a free cut and blow dry from Linsay Hair, free spray tan from Glow by Danielle and a personalised frame from Jo from Picture Perfect.

Jacob’s mother Leanne Orr said: “The kids managed to raise £201.01 for Moebius Research Trust. We are so delighted with everyone’s efforts.”

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