Tuesday, August 28, 2012

MOEBIUS SYNDROME IN THE NEWS
UK version--meet Moebius hero Callum Robey:
"TO have a smile like his brother was what Callum Robey had always dreamed of.
The youngster was diagnosed with Moebius syndrome when he was a toddler, which meant he was unable to smile or chew food properly.
But at six, he underwent pioneering surgery and became one of the youngest people in the country to have a 10-hour operation to correct the condition.
And yesterday, he was keen to show off his cheeky grin at the Summer Smile event alongside mum Claire, dad Ian, brother Jack, nine, and sister Neve, five.
Mum Claire said he had really "come out of his shell" since having the operation.
The 33-year-old, of Aston Drive, Newhall, said: "He is much more confident now.
"He used to stand back, especially when meeting new people, but now he will stop and talk.
"He always told me he wanted to have a 'Jack smile'.
"Before his operation people would stop and stare but now people don't give him a second look.
"His teacher calls him 'smiler'."
Callum, now 10, said he enjoyed the day, particularly the cricket match.
He said: "I've been to see the cricket once before with my dad, his friend and his daughter and it was really good.
"At Summer Smile I liked the music that played when the ball hit the boundary."
Dad Ian, 36, said: "He has taken everything in his stride and has never complained. He has been a little star.
"The event really was good, especially for me as I'm a cricket fan. It was a great family fun day out."
The Summer Smile event was the second to take place at the Derbyshire cricket ground marquee.
Those invited got the chance to watch the Clydesdale Bank 40 Cricket match between Derbyshire Falcons and the Northamptonshire Steelbacks. An afternoon tea was also served and flags were handed out to the children to help cheer on the team.
The aim was to help lift the spirits of people featured in the Derby Telegraph who have endured a difficult time. They included a man who was resuscitated seven times after suffering a heart attack, people who have fought cancer and those who had lost loved ones.
More than 40 people turned up to enjoy the day, including five-year-old Darcey Ince and her family. At the age of two, Darcey was diagnosed with acute lymphoblastic leukaemia – cancer of the white blood cells.
After 27 months of treatment, the youngster is now in remission and has been for the past eight weeks.
Dad Sean, of St Edmund's Close, Allestree, said: "Darcey has just had her post-treatment check-up and the results were really good.
"She has to go back every four to six weeks for the next six months to make sure everything is OK."
Mum Samantha said the family had noticed a significant improvement since Darcey went into remission.
She said: "She has colour in her face and she looks much healthier, which a lot of people have commented on.
Sean said Summer Smile was a day the family had really enjoyed altogether.
"We were really happy to get the invite to Summer Smile. We couldn't believe it. It was very generous and a lovely idea.
"It was a really fun day and a great way to introduce Darcey to cricket!"
Shirley Fenn was also among guests at Summer Smile. She and her family attended last year's event after her son, Jason Bee, was attacked in Alvaston Park in February 2011.
And she was there yesterday as well, after being featured in the Derby Telegraph almost a year after the first incident, when her son was attacked for a second time at the park.
A gang of teenagers knocked Jason and his friend, Liam Paxton, off a swing and zip wire before kicking and punching them. Both ended up in hospital.
Shirley, of Ionian Drive, said she was devastated her son had been targeted for a second time.
"It was absolutely awful. I just wanted my son to be able to go to the park with his friends and have fun."
She said Summer Smile had helped her family.
"The event put on by Derbyshire Cricket Club and the Derby Telegraph was great.
"It was a day out for my whole family which meant we could forget about everything that had happened.
"The atmosphere was really good and it was a pleasure to be there."
Neil White, editor of the Derby Telegraph, said: "So often we tell the stories of individuals who have been through such misfortune and this is our chance to give them something to smile about.
"It was a fantastic day and I'm very pleased that we were able to be a part of it."
Kerry Madeley, commercial manager at the cricket club, said: "It was a very successful day and it was a pleasure to host.
"I hope everyone had a brilliant time and enjoyed minute of it."

“My friends are my estate.”--Emily Dickinson (1830-1886)

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