Thursday, May 3, 2012

TOP REASONS TO ATTEND THE MOEBIUS SYNDROME CONFERENCE THIS SUMMER

1.  It will be hosted at a cool hotel in downtown Philadelphia, so you'll get to see all the cool historical and cultural sites there.

2.  Those of you with Moebius will get to meet and exchange ideas and experiences with others who have Moebius.  It will change your life.

3.  You moms and dads who have children with Moebius will get to pick the brains of other moms and dads in the same situation as you.  It can help you make your child's life better.

4.  Conference sessions led by knowledgeable medical professionals will address medical issues related to Moebius.

5.  You'll have a chance to buy Moebius T-shirts and other cool souvenirs.

6.  You'll get to hear Roland Bienvenu's latest Cajun jokes (if he has any). :+)

7.  There's a great Saturday night dinner.  Plua a talent show!

8.  There will be conference sessions designed just for moms and dads of children who have Moebius.

9.  There will be conference sessions designed just for adults who have Moebius.

10.  Those of you with Moebius will get to meet and exchange ideas and experiences with others who have Moebius. It will change your life.

11.  There will be child care for those of you with young children.

12.  There will be activities designed for Moebius teens.

13.  You might get to find out why Roland Bienvenu calls Leslie Dhaseleer "Shortcake."

14.  Come to think of it, you might get to find out all of the other nicknames Roland has come up with.  But beware of the character named "RoPaul." :+)

15.  You'll get a big hug from Vick McCarrell.

16.  You might get to meet famous people who've been on TV--like Chelsey Thomas.

17.  The Sheraton hotel in downtown Philly is really nice; there are still rooms available at the conference rate. 

18.  You'll hear a keynote speaker named Rick Guidotti, and you'll get to find out why he is so important to movements like ours.

19.  Those of you with children who have Moebius can sign up for medical consults.

20.  Have I mentioned this?  Those of you with Moebius will get to meet and exchange ideas and experiences with others who have Moebius. It will change your life.

21.  You don't have to worry about the weather; it's pretty much guaranteed to be warm in Philadelphia in July.

22.  Maybe Kathleen Bogart will share with us more of her yummy food recipes.

23.  You'll meet people connected to Moebius from different countries--from Israel, Great Britain, South America, etc.  And of course don't forget our strong Canadian contingent.

24.  Speaking of our Canadian friends, maybe Kelsey Ferrill will explain to us what happened to her Ducks this year.  :+)

25.  You might get to meet Lisa Smant, and Ethan, and Sophie--the only children we know of born to two parents both of whom have Moebius (and of course neither Ethan or Sophie have Moebius themselves!)

26.  And remember--those of you with Moebius will get to meet and exchange ideas and experiences with others who have Moebius. It will change your life.

27.  You can finally make contact with all the folks on Facebook whom you've friended because they too have something to do with Moebius, but whom you've never actually met in person.

28.  Why do people with Moebius Syndrome have a great advantage when it comes to playing poker?  Find out!!!

29.  Why can the attempt to take the group picture of those with Moebius, on the last day of the conference, truly be compared to pur chaos?  Find out!!!

30.  Because if you attend, you'll never forget it.  See you in Philly...


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