Tuesday, January 24, 2012

MOEBIUS SYNDROME AWARENESS DAY
It is today--with today chosen because it is the birthday of the doctor who "discovered" our syndrome, Dr. Moebius.  And look at all the awareness being raised today:

Natalie Abbott, who has Moebius, writes a poem about the hopes being raised, and provides her thoughts about the meaning of this day.

My friend Chelsey Thomas shares what having Moebius means to her.

Last year, my friend Kelsey Ferrill told CTV News what Moebius Syndrome meant to her as well.

And just yesterday, Kelsey explained, very well, even further why Moebius Syndrome Awareness day is important to her.

A mom from Canada spreads the word about her daughter's Moebius Syndrome.

Another mom spreads the word about Moebius on her blog in honor of her son, Luke.

Here, the parents of a Moebius child in North Carolina help to raise awareness.

And here is a piece on the founder of the Many Faces website, and one of those most passionate about Moebius Syndrome Awareness Day, Tim Smith.

And these are just a few.  Many people are wearing purple today in honor of the day.  Here's to their dedication, and their courage.  Happy MSAD!

"We must never be afraid to go too far, for success lies
just beyond." -Marcel Proust

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