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London art student, Dagmar Bennett has
created a bust of Jeans for Genes Ambassador Adam Pearson, who has type
one Neurofibromatosis, a genetic condition that causes the growth of
excess body tissue.
The student of Wimbledon College of Arts
created the bust of Adam in her final degree year and the work was
showcased at an exhibition at the college, earlier this summer.
Jeans for Genes ambassador, Adam
Pearson, is an actor, television caster, researcher, public speaker and
campaigner against stigma for people with visible facial differences.
Adam’s condition causes excess tissue to grow predominantly on his face.
Dagmar Bennett, said: “On the surface it
may seem that appearance can often be equated with success. However,
representations of beauty, appearance and disfigurement are conditional.
“In the UK today, over 540,000 people
have a facial disfigurement, many of whom are stigmatised and
discriminated against. Perceptions need to change – people with a
disfigurement should be valued as equal – and art can be a powerful tool
to change perceptions.
“For the final year of my degree I
created a heroic bust of Adam Pearson, an actor, television
caster/researcher, public speaker and campaigner against stigma for
people with a visible facial difference. He has type one
Neurofibromatosis, a genetic condition that causes excess body tissue to
grow predominantly on his face.
“After hearing his story, I felt
inspired by his positive attitude, bravery and determination to break
down barriers regarding how people with disfigurement are viewed and
treated. In my portrait I want to capture these personal qualities, show
him as an individual and help change perceptions on people with
disfigurement.
“British portraiture has mostly been
white, middle aged men; impervious icons of British solidarity. I aim to
challenge this tradition by creating a non-conventional portrait
representing the visual diversity of today’s heroes.”
Jeans for Genes Day is celebrating its
20th year of fundraising for children with genetic disorders on Friday
18th September 2015 and this year a host of celebrities are backing the
campaign.
Over the last 20 years, a sea of denim
has crept across the UK as the British public have taken up the Jeans
for Genes Day banner and helped raise over £40million.
For more information on how to get involved, please visit
http://www.jeansforgenesday.org/getinspired/ambassadors#adampearson
http://www.jeansforgenesday.org/getinspired/ambassadors#adampearson
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