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A massage treatment developed for children who have
autism can lessen its severity by a third in the first five months after
diagnosis, making the treatment an effective early intervention,
according to a newly published report.
The treatment, developed by Louisa Silva, founder of the Oregon-based Qigong Sensory Training Institute and a visiting professor at Western Oregon University, was found to be effective for both high- and low-functioning children with autism.
“That’s important because there really are very, very few effective research-based treatments for low-functioning children,” said Silva, who holds a medical degree from the University of California Los Angeles as well as a master’s degree in public health from the Medical College of Wisconsin.
That’s because most autism treatments require some degree of language and ability to focus, she said. Her treatment removes those barriers by centering on a 15-minute whole-body massage. The treatment, which she trains parents to use daily with children under the age of 6, is now the subject of a two-year replication study to assess its effectiveness.
The first report on the study, published recently in the peer-reviewed journal Autism Research and Treatment, found that overall autism severity among the 103 Oregon preschoolers in the study decreased by 32 percent, resulting in improved behavior and language. Autism severity is assessed by evaluating symptoms against screening tools such as the Autism Behavior Checklist.
More specifically, sensory problems improved by 38 percent and sensitivity to touch and texture improved by 49 percent after five months of treatment.
Children in the study also experienced an 18 percent increase in receptive language, Silva said. Among low-functioning children, a lack of receptive language means “they don’t answer to their name, they don’t understand.” Among high-functioning children, she said, “it’s that they don’t listen — it’s more that they would have a monologue” instead of a conversation.
Parenting stress, a phrase Silva said refers to the difficulty of parenting children with autism because of their communication and sensory challenges, improved by 44 percent.
Also notable was an improvement in parent-child bonding and interactions, Silva said. Despite the fact that many parents of children with autism are highly engaged, she said, there’s still evidence of bonding problems. “We think that the reason for that is, there’s a problem with the sense of touch and that interferes with the child’s perception of touch and touch is the main means of bonding,” she said.
Parents participating in the study were almost unanimously positive in their comments, which were included in the journal article:
• “It has built more trust when it comes to touch.”
• “He’s more aware of his body, more eye contact. Massage gives tools to help calm him. We can use the massage to get him to sleep if we need to. Potty training progress.”
• “We’ve become closer and he’s developed a stronger bond with both his parents. His speech development has made dramatic progress. He’s using full sentences now, often to our amazement and gratitude.”
Celeste and Mike Descloux of Fairview, Ore. said they’ve seen similar outcomes with their son, Kristoffer, 4, who received a diagnosis of autism spectrum disorder shortly after he turned 3. The family was offered a spot in the study by the researchers through Kristoffer’s preschool, which provides early childhood special education. Since last April, mother and father have taken turns doing the massage treatment nightly, after bath time and before bedtime.
Celeste Descloux said her son used to seem oblivious to his hands and feet, almost as if he didn’t realize he had them; now he’s definitely aware of them. In addition, “he didn’t like to be held too long or touched in some parts of his body, but now he doesn’t have that problem,” she said. “He has opened up more.”
She also said his speech and language skills have blossomed in the past year, though how much of that is attributable to the massage treatments and how much to his speech therapist is unclear.
“I feel like we were very lucky to be a part of the study and we’ve seen the benefits of the study,” Descloux said.
The study is now looking into whether the same results can be achieved for older children with autism.
The report noted several caveats:
• Treatment results depended on how faithfully parents stuck with the massage. “It’s something that if it’s not done, it doesn’t work,” Silva said, adding that she asks parents to do the massage six to seven times a week.
• The children in the study did not have any additional chronic disabilities.
• The children in the study were not receiving psychoactive medication or pharmaceutical chelation therapy.
• Only two of the 103 children in the study were receiving intensive behavioral treatment, and both were undergoing that treatment for 10 or fewer hours a week.
Still, the report said, the study results are strong enough to recommend the QSTI massage treatment to parents and early childhood special education programs at the time autism is diagnosed, often by the age of 2.
Silva declined to comment on how long the positive effects from the massage treatment could last, saying the study is not complete. But in previous studies with smaller sample sizes of 50 children, Silva said, the massage treatment continued to be effective after 10 months.
The treatment, developed by Louisa Silva, founder of the Oregon-based Qigong Sensory Training Institute and a visiting professor at Western Oregon University, was found to be effective for both high- and low-functioning children with autism.
“That’s important because there really are very, very few effective research-based treatments for low-functioning children,” said Silva, who holds a medical degree from the University of California Los Angeles as well as a master’s degree in public health from the Medical College of Wisconsin.
That’s because most autism treatments require some degree of language and ability to focus, she said. Her treatment removes those barriers by centering on a 15-minute whole-body massage. The treatment, which she trains parents to use daily with children under the age of 6, is now the subject of a two-year replication study to assess its effectiveness.
The first report on the study, published recently in the peer-reviewed journal Autism Research and Treatment, found that overall autism severity among the 103 Oregon preschoolers in the study decreased by 32 percent, resulting in improved behavior and language. Autism severity is assessed by evaluating symptoms against screening tools such as the Autism Behavior Checklist.
More specifically, sensory problems improved by 38 percent and sensitivity to touch and texture improved by 49 percent after five months of treatment.
Children in the study also experienced an 18 percent increase in receptive language, Silva said. Among low-functioning children, a lack of receptive language means “they don’t answer to their name, they don’t understand.” Among high-functioning children, she said, “it’s that they don’t listen — it’s more that they would have a monologue” instead of a conversation.
Parenting stress, a phrase Silva said refers to the difficulty of parenting children with autism because of their communication and sensory challenges, improved by 44 percent.
Also notable was an improvement in parent-child bonding and interactions, Silva said. Despite the fact that many parents of children with autism are highly engaged, she said, there’s still evidence of bonding problems. “We think that the reason for that is, there’s a problem with the sense of touch and that interferes with the child’s perception of touch and touch is the main means of bonding,” she said.
Parents participating in the study were almost unanimously positive in their comments, which were included in the journal article:
• “It has built more trust when it comes to touch.”
• “He’s more aware of his body, more eye contact. Massage gives tools to help calm him. We can use the massage to get him to sleep if we need to. Potty training progress.”
• “We’ve become closer and he’s developed a stronger bond with both his parents. His speech development has made dramatic progress. He’s using full sentences now, often to our amazement and gratitude.”
Celeste and Mike Descloux of Fairview, Ore. said they’ve seen similar outcomes with their son, Kristoffer, 4, who received a diagnosis of autism spectrum disorder shortly after he turned 3. The family was offered a spot in the study by the researchers through Kristoffer’s preschool, which provides early childhood special education. Since last April, mother and father have taken turns doing the massage treatment nightly, after bath time and before bedtime.
Celeste Descloux said her son used to seem oblivious to his hands and feet, almost as if he didn’t realize he had them; now he’s definitely aware of them. In addition, “he didn’t like to be held too long or touched in some parts of his body, but now he doesn’t have that problem,” she said. “He has opened up more.”
She also said his speech and language skills have blossomed in the past year, though how much of that is attributable to the massage treatments and how much to his speech therapist is unclear.
“I feel like we were very lucky to be a part of the study and we’ve seen the benefits of the study,” Descloux said.
The study is now looking into whether the same results can be achieved for older children with autism.
The report noted several caveats:
• Treatment results depended on how faithfully parents stuck with the massage. “It’s something that if it’s not done, it doesn’t work,” Silva said, adding that she asks parents to do the massage six to seven times a week.
• The children in the study did not have any additional chronic disabilities.
• The children in the study were not receiving psychoactive medication or pharmaceutical chelation therapy.
• Only two of the 103 children in the study were receiving intensive behavioral treatment, and both were undergoing that treatment for 10 or fewer hours a week.
Still, the report said, the study results are strong enough to recommend the QSTI massage treatment to parents and early childhood special education programs at the time autism is diagnosed, often by the age of 2.
Silva declined to comment on how long the positive effects from the massage treatment could last, saying the study is not complete. But in previous studies with smaller sample sizes of 50 children, Silva said, the massage treatment continued to be effective after 10 months.
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Update # 2: there are also a few with Moebius who also have Asperger's Syndrome. But if you have Aspergers, you need not be held back; check out this guy, who is making news:
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David Matthews (“no relation to that caterwauling alt-rock singer,” he says) had a story to tell.
So in 2011 he got on Facebook and messaged a Pittsburgh-area
documentary filmmaker, Julie Sokolow, enlisting her help in making a
movie about him to impress a woman he wanted to date. Matthews and
Sokolow met for coffee, and even though the woman in question ended up
rejecting his advances, Sokolow stuck around.
Sokolow, now 27, spent the next two-and-a-half years filming Matthews’ adventures in love, art and life. The final product is a 72-minute feature documentary called “Aspie Seeks Love.”
The film follows Matthews, who is 49 and lives in Aliquippa, Pa., as he tries to find a meaningful relationship and success as a writer, all while navigating a late-in-life Asperger’s syndrome diagnosis that put him on the autism spectrum.
But Sokolow was compelled to make the movie not because he was on the spectrum, or because he sought love, but rather because of Matthews’ sense of humor and sincerity. She was not familiar with Asperger’s or autism when she first met him for coffee and decided to make the movie. She was instead drawn to him as a person.
“It is a profile of one individual,” said Sokolow. “It’s a story about…his quest to learn about his own identity and to learn to be in the world with other people, to not sacrifice who he is to connect and find love.”
Asperger’s is a complex neurodevelopment disorder on the autism spectrum. Those with the condition have normal intelligence and near-normal language development but may have problems communicating with other people.
Sokolow had known of Matthews prior to their meeting. She had seen him running around town (“he doesn’t walk anywhere; he runs,”) in his distinctive sweaters, glasses and overcoat, and she was aware of his flyers taped on telephone poles around Pittsburgh. The fliers — part personal ad, part art project — had been a part of Matthews’ ongoing quest to find fulfillment in love.
When that well dried, he turned to online dating. His sometimes funny, sometimes painful, sometimes moving forays into that field were documented by Sokolow. She sat in on his dates, a potentially awkward situation made comfortable by Matthews’ innate honesty.
“David is 100 percent David whether the camera is there or not,” she said.
She was also careful to treat everyone who appears on camera with respect, influenced in part by a piece of literary advice Matthews received in the film: Love your characters and treat them with respect. Having that love and empathy for everyone in the film, said Sokolow, made the film itself better.
For three years, she worked on a documentary series on underinsured and uninsured artists living in Pittsburgh. Then Matthews contacted her, and she became a one-woman film crew on her first feature-length documentary. Making the movie was the hardest thing she had ever done in her life, she said.
“My naivete going into it was probably essential. I was pretty wide-eyed — ‘Oh, I’ll just pick up a camera and make a movie,’ ” she said.
After Sokolow had pieced together a rough cut of the film from 100 hours of footage, she was unsure about the next step. So she reached out to the Pittsburgh-based Animal Media Group and Danny Yourd, who had produced “Blood Brother,” a documentary that won the Grand Jury Prize and Audience Award at the Sundance Film Festival in 2013. Yourd took Solokow under his wing, and “Aspie Seeks Love” moved onto the festival circuit.
The movie had its world premiere Feb. 27 at the Cinequest Film Festival in San Jose, Calif., where it was named Best Documentary Feature Film. It also won Best Documentary earlier this month at the Omaha Film Festival, and it will continue to play at other festivals before running in Pittsburgh April 25-29.
Matthews saw the film a couple weeks before its premiere.
“I felt a little self-conscious seeing my image blown up onto the big screen,” he said, “but I noted the very favorable reaction of the audience, and I felt honored.”
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Sokolow, now 27, spent the next two-and-a-half years filming Matthews’ adventures in love, art and life. The final product is a 72-minute feature documentary called “Aspie Seeks Love.”
The film follows Matthews, who is 49 and lives in Aliquippa, Pa., as he tries to find a meaningful relationship and success as a writer, all while navigating a late-in-life Asperger’s syndrome diagnosis that put him on the autism spectrum.
But Sokolow was compelled to make the movie not because he was on the spectrum, or because he sought love, but rather because of Matthews’ sense of humor and sincerity. She was not familiar with Asperger’s or autism when she first met him for coffee and decided to make the movie. She was instead drawn to him as a person.
“It is a profile of one individual,” said Sokolow. “It’s a story about…his quest to learn about his own identity and to learn to be in the world with other people, to not sacrifice who he is to connect and find love.”
Asperger’s is a complex neurodevelopment disorder on the autism spectrum. Those with the condition have normal intelligence and near-normal language development but may have problems communicating with other people.
Sokolow had known of Matthews prior to their meeting. She had seen him running around town (“he doesn’t walk anywhere; he runs,”) in his distinctive sweaters, glasses and overcoat, and she was aware of his flyers taped on telephone poles around Pittsburgh. The fliers — part personal ad, part art project — had been a part of Matthews’ ongoing quest to find fulfillment in love.
When that well dried, he turned to online dating. His sometimes funny, sometimes painful, sometimes moving forays into that field were documented by Sokolow. She sat in on his dates, a potentially awkward situation made comfortable by Matthews’ innate honesty.
“David is 100 percent David whether the camera is there or not,” she said.
She was also careful to treat everyone who appears on camera with respect, influenced in part by a piece of literary advice Matthews received in the film: Love your characters and treat them with respect. Having that love and empathy for everyone in the film, said Sokolow, made the film itself better.
For three years, she worked on a documentary series on underinsured and uninsured artists living in Pittsburgh. Then Matthews contacted her, and she became a one-woman film crew on her first feature-length documentary. Making the movie was the hardest thing she had ever done in her life, she said.
“My naivete going into it was probably essential. I was pretty wide-eyed — ‘Oh, I’ll just pick up a camera and make a movie,’ ” she said.
After Sokolow had pieced together a rough cut of the film from 100 hours of footage, she was unsure about the next step. So she reached out to the Pittsburgh-based Animal Media Group and Danny Yourd, who had produced “Blood Brother,” a documentary that won the Grand Jury Prize and Audience Award at the Sundance Film Festival in 2013. Yourd took Solokow under his wing, and “Aspie Seeks Love” moved onto the festival circuit.
The movie had its world premiere Feb. 27 at the Cinequest Film Festival in San Jose, Calif., where it was named Best Documentary Feature Film. It also won Best Documentary earlier this month at the Omaha Film Festival, and it will continue to play at other festivals before running in Pittsburgh April 25-29.
Matthews saw the film a couple weeks before its premiere.
“I felt a little self-conscious seeing my image blown up onto the big screen,” he said, “but I noted the very favorable reaction of the audience, and I felt honored.”
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