PICTURES SAY A THOUSAND WORDS
You know, one of the things I enjoy seeing are pictures, on Facebook or elsewhere, of friends of mine who have Moebius Syndrome...pics of them, that is, that show them hanging out with others who have Moebius.

Of course, we can't, for the most part, show facial expression.  So it's not that everyone has big smiles or anything.  But still, the body language shows a lot; it just shows a level of comfort, of fun, that all of us in the Moebius community has with each other.

And that really is true, isn't it?  It's not that we sit there all day and endlessly discuss the ins and outs of having Moebius with each other.  Nobody would want to sit there and do that endlessly.  We of course can discuss it.  And we do.  And it is so good to be able to talk about it with someone whom you know understands, who "gets" exactly where you are coming from.  We always appreciate those non-Moebius folks who listen to us, who try to understand.  But unless you've been there yourself, it's not the same.

So yes, we talk about it.  But not all the time.  No, instead, it's that level of comfort you have with another Moebius person that's the key.  You know he or she isn't staring at you when you're not looking.  You know that other person isn't secretly wondering about you, isn't saying internally "what is the deal with him/her?"  You know that your Moebius friend knows.  And you can talk about things if you wish.  Or, you can just be friends, and talk about whatever.  It's a nice feeling.  And you can see that in the pictures.  It's one of the best things about the conference, and about other Moebius meet-ups.  They can create friendships which are priceless, and which can last a lifetime.

So I urge those of you with Moebius--if you have a chance to go to a conference in the future, do it.  If you have an opportunity to meet up with another person with Moebius, do it.  It can be a great thing, and can change your life--for the better!

“When I feel lost and can't make a decision, I just stop and get quiet. I take a time-out. I ask myself, How does this feel? What do I want my life to be like? I try not to listen to the shoulds or coulds, and try to get beyond expectations, peer pressure, or trying to please- and just listen. I believe all the answers are ultimately within us.”

Kim Cattrall (born 1956)