Wednesday, October 31, 2012

TACKING BULLYING, ONE PIGTAIL AT A TIME
Today, a fascinating story about how one mild-mannered young lady in high school took on those who tried to bully her.  A great story--and we with Moebius, who certainly have had plenty of people make fun of us due to _our_ looks, can be glad that the anti-bullying train chugs onward, one step at a time.  Like this one:
"
One of Maisie Kate Miller’s schoolmates always had something belittling to say — about her body, her boyfriend, her fashion choices. But that last little dig, no big deal in itself, brought the 15-year-old sophomore at Marblehead High, north of Boston, to tears a couple of weeks ago. On the stairwell just behind her, the other girl, who’s a sports standout in the school, was loudly riffing on Maisie’s hairstyle: “Who wears pigtails still? What is this, kindergarten?”
Maisie Kate Miller, far right, and some of the girls in her photography class who showed pigtail solidarity.

“I turned around,” Maisie said, “and she said, ‘Keep walking!’ I don’t know, I was having a hard week anyway, and by the time I got to bio, I was crying.” Maisie’s mom, Joanne Miller, texted her back and advised her to just let the incident go: “Don’t give it any energy is what I told her.”
What came to Maisie, though, was an idea for passive resistance, pigtail-style: Instead of either scurrying away or returning the girl’s nastiness in kind, she’d wear her hair like that all week — I’m fine the way I am, thanks — and maybe get a couple of friends to do likewise. She poured out her heart — and her plan — on Facebook, then headed off to her after-school babysitting job.
When she had her first chance to check in again, a few hours later, she was overwhelmed to find more than 500 notifications and hundreds of friend requests waiting: “Some of them were people I’ve looked up to and never met! I started shaking and couldn’t stop.” But — and this is my favorite part — Maisie did manage to type out a second status update, asking for restraint: “I’d like to remind people that this is a protest against bullying,” she wrote, so bullying the girl right back “would be against the movement,” which she dubbed ‘Pigtails for Peace.’
The next day, much of the school in the historic fishing village — girls, boys, a dog and at least one teacher — was pigtailed, and the bully absent. “There were hundreds of them — almost all of the sophomore class” copying Maisie’s ‘do, said Loren Weston, a counselor and sponsor of an anti-bullying club. “People from every friend group and year did it,” said a junior who didn’t want to be named. “The way she dresses — she’s funky — and outspoken and positive, but she hadn’t been feeling so good,” the girl said, and kids were glad to have the chance to rally around her.
In the days since, the student who’d mocked Maisie has not only backed off but sent a message of contrition through friends: “She’s been going through some stuff, too,” Maisie told me on the phone, and hopes that down the line, they’ll be able to talk about it. She’s also gotten multiple messages along the lines of “She’d been bullying me, too, and now she isn’t any more; thank you!”
Old-fashioned cruelty has always gone on, of course; I’ll never forget the old German nun who routinely yelled at a boy in my class who had trouble reading aloud that he was “so stupid,” — STYOU-pid, she pronounced it — or the girl with albinoism at summer camp who everyone said was a lesbian; I sat with her at lunch one day, not out of compassion, I’m sorry to say, but because she was ahead of me in line in the cafeteria, and that’s how we usually sat. I still remember the stage whispers around us as everyone else steered clear, and have often wondered what became of her, and wished I’d had the moral moxie to get to know her.
A few prep school pranksters and Mean Girls keep their skills up long after graduation, too; when a colleague made fun of the giant crucifix passed down from my grandmother a decade ago — “God, even Madonna doesn’t wear those any more” she said; do these people work from a handbook? — I wanted to cry in middle age.
Cyber-bullying has only upped the ante, making it possible for Dharun Ravi, the Rutgers freshman who set up a webcam to catch his gay roommate making out, to widely disseminate his handiwork in a way that led to Tyler Clementi’s suicide. But here Maisie has shown us that social media can also be the bullhorn that amplifies the word ‘no,’ and stops the intimidation.
It’s important, I think, that it was Maisie who came up with her own way out of the problem. And what she did instinctively is a kind-hearted version of the “shaming” suggested as a way of internally policing a common social area – a school, or an Internet group where the humans involved actually see each other occasionally – by the late Elinor Ostrom, the first woman to win the Nobel Prize for economics.
Maisie is “someone who sticks up for people,” said Weston, the counselor who leads the anti-bullying group in Marblehead, “and that’s why this response.” I found Weston on Facebook, which is where I first saw Maisie’s story, through an acquaintance who’s from Marblehead, and she led me to Maisie and her family.
Her mother thinks that Maisie’s insistence on sticking up for people comes from watching her father, a surgeon who was diagnosed with a brain tumor when she was just three, become more and more compromised in the three more years before he died. A theater kid with flair and “a big personality,” her mom laughs, she’s the sort of person who won’t go to the party if her buddy with Tourette’s isn’t included. The kind of independent spirit who, when told that her saleswoman mom couldn’t swing the Shakespearean summer in England that she’d hoped for, got busy working at various jobs and paid for the trip herself.
Maisie made me laugh right off the bat by prefacing our conversation with, “I want to apologize in advance for the fact that I’m going to say ‘like,’ a lot.” But she’s taught me something serious. Some wise souls are young in age, and this one has reminded me that the majority usually does want to do the right thing, and is maybe only waiting to be invited and shown how."


Tuesday, October 30, 2012

OVERCOMING YOUR FEARS
Everyone has to do it sometime--but people with Moebius Syndrome certainly know a lot about this.  And, no doubt, have to confront this situation often as well.  But how can we more easily accomplish the task?  How do we overcome our fears?  Here's an interesting piece explaining a way to go about it:
"As with any habit, it's almost impossible to just delete an unhealthy behavior and expect a new and wonderful behavior to replace it instantly. So I have come up with a formula for changing patterns. It is:
Recognize and Replace Repeatedly = Rewire and reJOYce!
In neuroscience, experts suggest that for our brains to rewire to a new habit, we have to repeat the new pattern many times. That's why the repeating the new pattern or behavior is so critical to my formula.

When we learn how to do something the first time, a "scratch" is put on our brain. Each time we repeat this thing, the scratch becomes deeper and deeper, until it is a groove or trough -- and the movement/activity/ behavior becomes automatic.

So: Your already-entrenched patterns are in very deep grooves; they happen with no thought or consciousness. To break those patterns, you need the recognition and awareness so you can catch yourself just before the impulse fires down the groove!

Once you do that, you can choose to respond another way -- a new way. You make a new "scratch"! Each time you respond the new way, that scratch becomes deeper and deeper, until it becomes deep enough to be the default pattern.

Celebrating and rejoicing when you have made the changes is critical to the process of cementing them in the brain.

The Next Step
Imagine what your life would be like if you recognized the real fears that are holding you back -- in every area of your life. Defensiveness, anger, jealousy, the need to be right, lack of confidence, the need to control things, unhealthy relationships, fights, stress, anxiety, office paranoia, and countless other behaviours would vaporize.

Fear of abandonment, uncertainty, not being lovable, looking stupid, being judged by others, not getting approval, separation, other people's moods, being unsafe, or not having a sense of belonging to a family, group or higher power... the list of fears could be very long! These fears underlie and cause most of our negative behaviours.

Select Three....
Look at the three behavior patterns you would like to stop. Write them down. Now. ask yourself the question, "What am I frightened of in this situation? Really frightened of?"

Write down the fears you identify. (Not worth loving? Not good enough? Unsafe?)

Then ask yourself, "When did this fear start? Is it still relevant? Does this fear play any useful purpose in my life now? Is it helping me achieve what I want in life?''

Dwell on your answers. Most of the time, you will be stunned at how deep the fears are and how they are all from your early years in life -- usually ages 0-5!

You can then become your own "perfect" parent and deal with the issues that may not have been resolved when you were little. Give your inner toddler the adult perspective and truth of what was really happening at the time you established your beliefs and fears.

Now it's a choice. Once you know about fear, you can choose to walk with the fears and let them rule your life, or you can consciously choose the way of joy.

Find the fears that are ruling your life and challenge them. Replace them with understanding and joy!"

Monday, October 29, 2012

A PLAY EXAMINES PARENTING A CHILD WITH AUTISM
If any of you have a child with autism, you might want to investigate this--it could give you some interesting insights:
" On Monday night around 10:30, producer Terry Schnuck managed to shush the crowd at the Knickerbocker, a stylish bar in an Edith Wharton-esque corner of old New York, long enough to revive a theatrical custom dating back to a time when newsprint was king: the reading of an early review.
Standing at his side in a flowing chiffon gown, playwright Deanna Jent seemed to hold her breath. She had not yet seen Rex Reed's review for the New York Observer. She didn't know what it said.
It was a rave.
Reed praised the actors, the direction, the lighting and the set. He said that Jent's play “Falling,” which had opened a few hours earlier off-Broadway at the Minetta Lane Theatre in Greenwich Village, delivered a full complement of theatrical pleasure while telling a true-to-life story, about families coping with autism, that many people simply don't know.
More reviews would arrive in the hours and days ahead. Maybe they would be just as positive; maybe they would carp. But no matter what, they wouldn't change the fact that for Jent — and for several other theater artists who have been with “Falling” since its beginnings, in Clayton — Monday was a dream come true: a New York opening night.
A popular director on St. Louis stages who heads the theater department at Fontbonne University, Jent has written a number of plays, chiefly adaptations of novels by other writers. Most have been presented by Mustard Seed Theatre, the Fontbonne-based professional troupe where Jent is artistic director.
“Falling” started at Mustard Seed, too. But as soon as it premiered, in September 2011, it was clear that this show was something special. The story of a family under the relentless pressure of living with a severely disturbed autistic son in his late teens, Jent based “Falling” on her own life. Andy, the youngest of the Jents' three children, has autism.
It took Jent three weeks of steady practice to prepare her son for the extended separation the New York production would mean. Her daughter, Lindzey, began taking over daily routines; her husband Steve's parents spent more time with Andy, in preparation for the opening night when all the other Jents would be in New York, and they would stay with him.
The emotionally wrenching play gives audiences just a taste of life in a household where the smallest intrusion, such as the sound of a dog barking outside, can provoke complete upheaval, even violence. Jent didn't make that up; she knows whereof she writes.
But on Monday night, she caught a welcome break.
“Here I am in my fairy-princess gown,” she said, “and Terry Schnuck is my knight in shining armor.”
Scion of the grocery-store family, Schnuck decided a few years ago to “run away and join the circus,” as he puts it. Relaunching himself, he became a Tony-winning producer with credits that include “Clybourne Park,” “Spring Awakening” and the recent revival of “Porgy and Bess.”
But he still lives in St. Louis, where he chairs the Muny's board of directors. When “Falling” proved so popular last year that it had to be extended twice, Schnuck went to see it at Fontbonne.
He says he knew right away that it deserved a bigger audience. “I am fonder of this project than of anything I have ever worked on,” he said. “And (during previews) we had great audience response.”
Given the subject matter, that was a relief. Jent said that when she first told her daughter that some people wanted to take “Falling” to New York, Lindzey asked, “Do they know what it's about?”
Jent thinks that, for whatever reason, this is autism's “moment,” a time when people are willing to consider a difficult subject that used to be swept under the rug. But she hasn't pondered that too much; this week, she barely has time to change out of that gown and get back to everyday life.
Jent has to return to her campus, which will honor her for outstanding teaching later this week, and to her students. (She's been teaching by Skype.) She's about to start rehearsal for the next Mustard Seed play, her stage adaptation of Matt Mikalatos' book “Imaginary Jesus.”
Andy Jent would like her home, too. When she returned during a break in rehearsal, he kept urging her to put on pajamas. He may not communicate easily, but Jent thought that message was crystal clear. “You don't wear pajamas outside,” she explained. “He doesn't say 'I miss you' or 'I want you to stay.' But in pajamas, Mom doesn't leave home.”
Jent never intended “Falling” as a plea for sympathy, or a demand for better treatment, or some kind of well-intentioned “afterschool special” for grown-ups. It's simply a drama about the fears and dreams all parents live with, forced into high relief by a baffling syndrome.
“For a long time, all we had was Dustin Hoffman in 'Rain Man' and Leonardo DiCaprio in 'What's Eating Gilbert Grape?,'” she mused Saturday in the cramped Greenwich Village apartment that she and “Falling” director Lori Adams shared throughout the rehearsal period. “But there's something in the air now, a lot of interest in this subject. Other people seem willing to ride this ride. This is the time for our story.”

“Do not wait to strike till the iron is hot; but make it hot by striking.”---William Butler Yeats (1865-1939)

Friday, October 26, 2012

FRIDAY FOOTBALL PICKS!!

Last week:  I was 8-6-1; for the year, I'm 50-63-4.  Movin' on up (though every so slowly).

NFL PICKS
I had Tampa Bay upsetting Minnesota last night, so I am already 1-0.

CHICAGO 8 over Carolina.  My pick:  BEARS.  The Bears keep rolling; and it doesn't help Carolina that Cam Newton is in a funk.  Playing the Bears can put you into a deeper one.

DENVER 6 over New Orleans.  My pick:  SAINTS.  A tricky one.  Denver and Peyton Manning are improving; but remember, the inconsistency is still there--they beat San Diego the other week, but only after a bad first half.  Meanwhile, the Saints' offense is humming and can at least keep this one very, very close.

DETROIT 2 over Seattle.  My pick:  LIONS.  But only because the Lions' defense should match up pretty well against a conservative Seattle offense.

GREEN BAY vs Jacksonville.  This game has been off the boards much of the week due to Jaguar injuries.  My pick:  PACKERS.  This should be an easy one for them.

KANSAS CITY 1.5 over Oakland.  My pick:  RAIDERS.  Because KC is even more messed up and injury-riddled on offense than is Oakland.

New England 7 over St. Louis (game played in London).  My pick:  PATRIOTS.  I keep expecting Brady and the Pats to explode offensively; this may be the week.

NY LucGiants 1 over DALLAS.  My pick:  GIANTS.  For Dallas, DeMarco Murray is out, Sean Lee is out...and Eli Manning always plays well in Cowboys Stadium.

NY JETS 2 over Miami.  My pick:  JETS.  The Jets have actually been playing better; they should have won last week in Foxboro.  I think they'll find a way this week at home.

PHILADELPHIA 2.5 over Atlanta.  My pick:  EAGLES.  The Falcons have been just getting by recently; and they could be stale after their bye.  Meanwhile, Andy Reid's teams historically play very well after their bye week--and guess what:  they are just finishing a bye week.

PITTSBURGH 5 over Washington.  My pick:  STEELERS.  Remember, this is doubly tough for the RGIII and the 'Skins--not only did they lose a tough one last weekend, but it was a road game against a divisional foe.  Now they're beat up and have to re-focus against yet another tough opponent in a tough environment.  Go with the men of Steel.

San Diego 2.5 over CLEVELAND.  My pick:  CHARGERS.  Cleveland has shown some improvement; but the Chargers have more talent and should be the more desperate team here.

TENNESSEE 3.5 over Indianapolis.  My pick:  TITANS.  Have you noticed?  Ever since Matt Hasselbeck returned as the Titans' QB, the Tennessee offense has begun to move.  Look for that to continue--and look for Andrew Luck to struggle a bit in a tough road environment.

San Francisco 7 over ARIZONA.  My pick:  NINERS.  AZ is just too beat up to handle this physical SF bunch.

COLLEGE PICKS

Notre Dame at Oklahoma.  My pick:  SOONERS.  I gotta go with the crowd here; I think in a way this is the biggest matchup of the weekend, but ND has just barely been getting by...their offense is shaky...they really can't throw the ball much...and they haven't faced anyone the caliber of OU.  Their run of luck ends here.

Florida vs Georgia. My pick:  BULLDOGS.  Just a hunch.  Everyone is picking Florida; but this is a rivalry game...Georgia has talent...they have nothing to lose...it could be their day.

Thursday, October 25, 2012

MOEBIUS TEENS: WE NEED YOU
So I've been talking lately on this blog about various issues of interest to lots of people, but issues I think that especially are relevant to teenagers:  when people stare at you; about getting a job (eventually); etc.

But let's broaden this out a little bit and talk about this in a wider context.  I don't think enough people have said this, but we need to say it more:  when it comes to the general Moebius community...when it comes to the conferences put on by the Moebius Syndrome Foundation every two years...teenagers with Moebius Syndrome, we need you, and we need your input.

I think it would be especially great if more Moebius teens came to the conferences every two years (a goodly number come already; but we need more).  But if you're a teen and you've never been to a conference, maybe you wonder:  why should I go?  Isn't it just a bunch of older people sitting around talking about medical issues?  Will a bunch of people stare at me and put me under sort of a spotlight, and want to focus only on my Moebius and not on the person I really am???  I know that can be an issue.  As a teen, you want to fit in.  You don't want endless focus on how you're different.  You're not comfortable with it.

But the thing is--at the conference, that's not what happens.  There will be other teens there, who have the same thing you do.  But you don't have to endlessly talk about that.  You can hang out together, and have fun...and do so knowing that your peers at this conference won't stare at you or think you're strange.  Wouldn't that be a great thing?  Don't you want to hang around others who know what you're going through?  And if you want to, you can talk about Moebius; and do so knowing that those to whom you're speaking know all about it.

You should know, too, that at the conference there are activities designed just for teens; and there are sessions designed just for those who have Moebius--teens, adults, you name it.  We talk about how to live life with Moebius, how to survive, how to prosper.  There are other sessions as well; but there are sessions and activities for everybody.

And maybe we can make the conferences better, make our community better and more supportive, whether it be on Facebook or other social media sites.  You know what we need?  We need you to tell us what you want, and what we can do for you.  So contact us.  Tell us.  Tell me.  Contact the Moebius Syndrome Foundation and Vicki McCarrell, and tell her how we can make the conferences better.  Talk to us on Facebook, through MoebiusConnect, through the Many Faces of Moebius Syndrome site.  What can we do?  We want to know.

When I was a teen, there was no community such as this existing.  There was nothing.  I don't know what I would have done if there had been one.  But I think it might have helped; and this one can help you.  So don't be shy.  Reach out...and if you do so, you'll feel that smile coming from everyone's heart. :+)

Wednesday, October 24, 2012

LOOKING FOR A JOB?
Some of you teens and twentysomethings out there who have Moebius aren't just teens and twentysomethings--you are a group whom many have labeled "millenials."  And you may be looking for jobs soon.  If so, there are some things you have in common...and things you need to look out for when searching for work.  Read more about it:
"l'll be the first to admit that I knew very little about getting a job when I first set out to do so in the fall of 2007. As a general rule, most recent university graduates know far more about U.S. economic history and "The Lord of the Flies" than about how the modern workplace functions and how to succeed in it. Yet come senior year of college, it couldn't be more important or more timely to learn the basics of getting a job.
Two jobs and two startups later, there's plenty I had to learn the hard way.
Now, one of my goals with my current company, The Muse, is to make it a whole lot easier for the next generation of graduates to find and excel in jobs they love. So, here's what you need to know about landing an interview and presenting yourself as a polished, professional applicant from someone who's made every mistake in the book.
Understanding your market: Who are you, and where do you want to work?
For many people, the hardest thing about job-seeking is figuring out where to start. All through college, I heard my friends asking themselves, "What do I want to do with my life?" And guess what? After college, and after that first job, people still ask the same question.
So first, realize that you don't have to have all the answers just yet -- you have many years ahead to explore a lot of options. Next, start by figuring out what it is you're passionate about. What extracurriculars did you love when you were in college? Maybe more importantly, what types of positions or roles did you gravitate toward in those extracurriculars? The answers to those questions will likely give you hints as to what sort of job you'd love.
Finally, recognize that there are many jobs out there that didn't exist a generation ago. These are jobs that, while you weren't prepped explicitly for in school, you very well may excel in because you grew up stalking sales from your favorite brands on Facebook or following thought leaders (er, celebrities) you admired on Twitter.
For a guide to today's digital-age jobs, check out "You're a What?! Decoding Today's Job Titles."
Getting an interview: Your resume, application and social media persona
Before you even have a chance to meet a hiring manager face-to-face, you're being judged. A clean, easy-to-read resume and a concise but thoughtful cover letter or e-mail are, of course, the first steps to making a great first impression. But as a millennial, there's one more key piece of your first impression: your presence on social media.
So, Google yourself and see what comes up. No, you won't be exiled to permanent unemployment just because there's a picture somewhere of you holding a red Solo cup and looking underage. But, your Google results tell a story: Have you been in the news? Authored articles or blog posts? What types of topics do you frequently tweet about?
Your online persona has an immense potential to create a positive impression of you as an active, engaged individual with a certain set of passions -- or you can look like every other recent grad out there. You should strive to make sure there's more to your online personality than vacation photos, a stream of graduation messages and tweets about inside jokes to your friends.
Acing the interview: Show up looking the part and don't get intimidated
The day of your interview, make sure you look sharp. Now, especially if you aren't applying to a corporate job, this may not mean blue shirt and black suit.
If you're looking to work in a creative industry, a fashionable but conservative ensemble may help you create just the impression you're seeking to make. And if you want to work at a tech startup, jeans are the way to go (nice jeans, yes, with a nice top or shirt, but please, don't wear a tie). For a guide to interview day attire, check out "Looks That Land the Job: What to Wear to (Any!) Interview."
In the interview, be prepared to answer the most common questions: What skills do you bring to the position? What accomplishments should you highlight? What's your biggest weakness? (Check out an "Interview Cheat Sheet" here to help you prepare, or "3 Ways to Answer 'What's Your Biggest Weakness?' "). Be honest and stay positive -- employers don't want to hear a long rant about your terrible previous boss. Keep in mind that every interview question is a chance to showcase why you'd be a great asset to the company.
Rinse and repeat: Every interview is another chance
Above all, remember that job-seeking is an iterative process: Each application is a chance to get better. As you move through the application process, keep refining the way you present yourself. Like any skill, you'll only get better with practice, and you'll only hurt yourself if you get discouraged too early.
This is one race that's definitely a marathon, not a sprint."
 
“The struggle of today, is not altogether for today–it is for a vast future also”
Abraham Lincoln (1809-1865)

Tuesday, October 23, 2012

STARING
One of our friends on Facebook the other day once again raised the age-old question, if you have Moebius Syndrome.  And that is:  we hate it when people stare at us.  What can we do about it?

The truth is, I've never had a great answer for this.  I hate it when anyone stares at me, and is obviously doing so because of my Moebius, be they young or old.  You can always tell when the staring arises from the way you look, can't you?  Anyway, I hate it.  It makes me uncomfortable.  I've never been sure of what to do about or exactly how to handle it when such a situation comes up.

But in talking with and listening to others with Moebius, here are some solutions that have been brought forward.  1] Just ignore it, especially when it's an adult.  People should know better.  They know its not polite.  Yet if they stare anyway, clearly it's they who have the maturity (and many other) problems, not you.  Always try to keep that in mind.  2] Remember, if it's a child staring at you, don't forget:  they're not doing it to be mean.  They are probably just curious.  They don't dislike you.  They just want to know more about you.  That puts a whole new spin on it, doesn't it?  3] And occasionally I've had the guts to do this:  if someone is staring at you, stare back.  I guarantee you, eventually the other person will be the first one to turn away; and they probably won't stare at you again. :+)

And there's this, something several of my friends always mention:  you can always try engaging the stare-ers in conversation (especially if its a child).  Talk to them.  Say hi to them.  That could either unnerve the meanies, but also it might be an opening to educate someone who is not mean, but who might just be curious about Moebius.  Myself, I find it's hard to get the guts to do that.  Or maybe it's not guts exactly; maybe it's just sometimes you don't feel like you have the energy or the "want-to" to do that.  But several of my friends say it helps.  More of us should try it.

In any case, if others staring at you is something you hate, believe this:  you're not alone.  It's no fun, and nobody should try to tell you that it is.  And there's a bunch of us here who know what you're going through; and that's a good thing, too. :+)

Monday, October 22, 2012

INSPIRATIONAL STORY OF THE DAY
A boy with a rare condition is inspired...by a 3-legged dog.  Read more:
"A 7-year-old boy with a fear of open spaces has finally started venturing outside, thanks to a three-legged dog.
Shy Owen Howkins was too afraid to leave his house until his family adopted Haatchi, an Anatolian Shepherd, and the pair became inseparable.
Owen had become withdrawn from social situations when he realized a rare genetic disorder made him different to other boys and girls at school. The condition, known as Schwartz-Jampel, causes his muscles to be permanently tense.
It left him scared to talk to people and worried about leaving his home in Basingstoke, Hants in the U.K.
When his family adopted Haatchi, they were thrilled with the positive effect he had on Owen's confidence.
As well as leaving the house to take his dog for walks, Owen is now happy to talk to strangers — telling them all about his energetic pet.
And he now feels differently about his condition after seeing Haatchi take his "medicine" — a mix of manuka honey, salmon oil and supplements.

“Before his arrival, Owen didn’t like going out - he was practically agoraphobic," said Colleen Drummond, Owen's soon-to-be stepmother. “When he first started school, he became more aware of being different, and he became even more withdrawn.”
Owen’s condition requires regular hospital treatment but the simple joy of being around the energetic puppy makes it easier for him to cope.
Haatchi’s amazing survival and the positive impact he has had on Owen’s life has resulted in him winning an award from the International Fund for Animal Welfare.
The dog will be presented with the honor at the Animal Action Awards event at the House of Lords next week by Queen guitarist Brian May."

“Love is that condition in which the happiness of another person is essential to your own.”
Robert A. Heinlein (1907-1988)

Friday, October 19, 2012

FRIDAY FOOTBALL PICKS!

Well, last week I outdid myself in being horrid; I was 3-12 in my picks against the spread.  Yikes.  For the year I'm 42-57-3.  Well, let's try it again...

NFL PICKS

SAN FRANCISCO 8 over Seattle. My pick:  NINERS.  The 49ers have lost two games this season.  But each time, they've bounced back strong.  I look for that to happen again in this game; it's just hard to see Seattle and Russell Wilson moving the ball against that defense.

BUFFALO 3.5 over Tennessee.  My pick:  BILLS.  Buffalo bounced back last week against Arizona and played tough.  I'm guessing they'll keep the better mojo going against a Tennessee team that, yes, is coming off a big upset over Pittsburgh, but still has problems.

MINNESOTA 6.5 over Arizona.  My pick:  VIKINGS.  The Cardinals have a good defense, but they just have too many injuries on offense, especially to win on the road in a difficult environment like the Metrodome.

INDIANAPOLIS 2.5 over Cleveland.  My pick:  COLTS.  Rookie QBs tend to be a bit up and down.  Andrew Luck has had his ups; last week was definitely a down in New York against the Jets.  But look for him to bounce back strong here.

HOUSTON 6.5 over Baltimore.  My pick:  TEXANS.  Houston sure stumbled against Green Bay last week.  I suspect adjusting to the loss of Brian Cushing was harder than they thought.  But they've had a week to do so now; and Baltimore is banged up too.

Green Bay 5.5 over ST. LOUIS.  My pick:  PACKERS.  I respect the Rams' defense, but I have a hunch the Pack got back on the right track last week.

Dallas 2 over CAROLINA.  My pick:  COWBOYS.  This one just seems to set up right for the inconsistent Cowboys--Cam Newton has struggled, Carolina's defense is vulnerable, and the Cowboys, with their owner pressuring them this week, telling them he in effect wants to win now, should play desperate.

NY GIANTS 6 over Washington.  My pick:  GIANTS.  I suspect Eli Manning will win out in a high-scoring affair.

New Orleans 2.5 over TAMPA BAY.  My pick:  SAINTS.  I don't know if the Saints are marching in again...towards the playoffs that is...but they did get their ship righted a bit the other week vs the Chargers, it appeared; and I think their firepower will win the day here.

NEW ENGLAND 10.5 over NY Jets.  My pick:  JETS.  This one's complicated.  Somehow, in no way do I see the Patriots actually losing this game at home.  But...but...10 and 1/2 points????  I mean, come on--this Patriots team is a 3-3 team which includes losses to Seattle and Arizona.  They've got their problems.  This Jets' defense can help keep this game close.

OAKLAND 4 over Jacksonville.  My pick:  RAIDERS.  Mainly because they're at home; they're due for a win.

Pittsburgh 1.5 over CINCINNATI.  My pick:  BENGALS.  Yikes.  Both teams have issues--the Steelers with their aging, beat-up, perhaps overrated defense; and the Bengals with their consistency.  But I just have a feeling the Bengals' speed at wide receiver and elsewhere will help them here.

CHICAGO 6 over Detroit.  My pick:  BEARS.  The Bears are rested and healthier than they've been.  The Lions got a much-needed win last week over the Eagles, and are always dangerous.  But--are the Lions' problems fixed?  I dunno; for example, had the Eagles not switched last Sunday to a zone defense in the 4th quarter, going away from what had worked for them for 3 quarters, the Lions might be 1-4.  Hard to go against the Bears at home.

COLLEGE PICK

The way my picks have been going lately, I'm not sure any college team wants me to pick them either, so...today I'll just go with two games:

MICHIGAN vs Michigan State.  My pick:  WOLVERINES.  Michigan has improved; they've lost 4 straight years to State, but I think this year is their time.

LSu vs Texas A&M.  My pick:  TIGERS.  The Aggies have surprised this year with their good start; but I don't think they've faced anything like this LSU defense yet.  I expect LSU to win this game.







Thursday, October 18, 2012

MOEBIUS SYNDROME:  THE TEEN YEARS
Some of my friends on Facebook have been talking about this general issue lately, and so I thought I'd try to throw a few things out there concerning it.  It's an important issue.

Because make no mistake about it--the teen years can be some of the most difficult times if you have Moebius.  When you're in junior high (at least, that's what we called it when I grew up in Michigan--in some places, it's "middle school") or in high school, certain things are very important to every teen there.  What are they?  Well, try these:  1] Appearance is important.  To a degree this has to do with things like clothes and hair.  You want to be wearing what's cool, what's in, the kinds of things others are wearing.  You want your hair to reflect in some way the latest hairstyle for your age.  And of course 2] looks are important at that age.  Are you seen as cute?  As "hot"?  Hey, let's face it--there's a reason why the most popular people in a junior high or high school class are often the ones considered the best-looking, the most beautiful, the most handsome, the most athletic.  They're the ones who become the popular cheerleaders, the jocks, and the class officers.  Really then, what it all comes down to is 3] in middle school and/or high school, what teens really want to do is "fit in", be accepted, be part of either _the_ crowd or at least of a crowd, some group, some peers to hang with.

So, then, when it comes to Moebius Syndrome, we all know what the problem becomes.  With Moebius, it can seem really hard to fit in, to be accepted, to be popular.  You get teased.  Sometimes you get bullied.  Unfortunately some of the other teens join in because they too want to "fit in", and they see this as a way to do it.  None of this is exactly a news flash.

Okay, but how do we deal with it?  I don't have perfect answers.  I sure as heck don't have easy answers.  There aren't any.  Nor can anyone promise you that every day is going to be wonderful, filled with hearts and flowers (it's not like that for anybody, whether you have Moebius or not).  But I can say this--first:  look, I bet all of you Moebius teens do have friends.  You wish you had more, maybe, but you do have friends.  Hold on to them.  Think about how great it is that you have them.  It means there are people in the world who can get past the fact that you look "different."  Second:  okay, yes--there are a lot of your peers who are absolutely fixated on these surface things; on how everyone looks, etc and who will reject you because in their view you're not cool enough for them.  Okay, think about that--is that the kind of person you want to hang out with???  I say no; not really.

And, remember this:  it will get better.  When you go to college, and beyond, you'll get to deal with adults.  Many people (not all of them, unfortunately, but most) mature.  They get beyond being obsessed with looks and all the rest of it.  If you go to college, I think you'll find that your experience will be different (and better!) than it was in high school.  People will accept you more; they come to realize what's really important.  I know--that can be small comfort when you're having a bad day.  But always know too, that you have a community of people with Moebius Syndrome now just a click away on your computer.  Get to know them.  Lean on them.  It helps.  If you haven't yet, think about coming to the Moebius Syndrome conferences held every two years.  They help.  I don't know what would have happened if, when I was, say, 16 years old, I had been able to meet others with Moebius (instead I didn't meet anyone until I was well into my 30s).  But I do know this--it certainly wouldn't have been a bad thing!  It can be a good thing for you.  Just some musings from musings from someone (me) who's no longer in his teens, and hasn't been for some time, but sure remembers them...

Wednesday, October 17, 2012

MORE ON AUTISM
Autism is sometimes--though certainly not always--associated with children having Moebius Syndrome.  So here are a couple of articles updating us all on some of the latest happenings with the autism condition.  First, there's this:
Could The Next Miss America Have Autism?

Alexis Wineman always knew she was different.
“Socializing with my classmates, even when I wanted to, was awkward to say the least. I wouldn’t get their jokes half the time. I took everything so literally,” said the Cut Bank, Mont. resident.
Alexis Wineman, 18, has autism and will represent Montana in the Miss America pageant in January.
Alexis Wineman, 18, has autism and will represent Montana in the Miss America pageant in January. (Courtesy: The Wineman Family)
When Wineman was diagnosed with autism at age 11, she finally had a name to put to her experience. Rather than use her diagnosis as an excuse and give up, she took the bull by the horns.
Today, Wineman, now 18, may very well be the next Miss America. She was crowned Miss Montana in June, becoming the first person on the autism spectrum to claim the sash. In January, she will travel to Las Vegas where she could become the first with the developmental disorder to capture the national title.
It’s been a long road for the self-described “oddball out” whose best friend as a girl was a Winnie the Pooh doll, which she still holds onto.
“He showed me that being different was okay and there was nothing wrong with pacing or sitting in one place for hours just thinking,” Wineman said. “I say why fit in when you were born to stand out.”
Encouraged by her family, Wineman began to break out of her shell after she was diagnosed and engage in school activities. Performing became a way for her to face her fears and learn to cope. Wineman joined the cheerleading squad, ultimately becoming team captain and appearing in the Macy’s Thanksgiving Day Parade.
Now less than four months into her term as Miss Montana, Wineman and her mother have already put 7,000 miles on their car traversing the state to present her platform — “Normal is Just a Dryer Setting‚ Living with Autism” — at schools, hospitals, conferences and parades.
“It’s amazing how people don’t accept other people just because they’re different. Being different is not something to look down on, but to be embraced,” Wineman said. “People need to understand. I want to talk to kids with autism too and share with them that it’s nothing to be ashamed of.”
Adjusting to the unpredictability of life as Miss Montana has been a challenge, says Wineman’s mother, Kimberley Butterworth.
“She has at times struggled,” Butterworth said. “There isn’t a set schedule, which can be very hard.”
When things get tough, Wineman relies on coping skills she’s developed through the years like listening to Celtic music on her iPod.
“With her iPod, she has been able to disengage for a minute, and plug herself into it and regroup,” Butterworth said.
When Wineman is not on the road she’s focused on preparing for the Miss America pageant by brushing up on the comedy monologue she will perform in the talent competition, exercising and eating healthy, and more often than not, walking in heels.
“I was never a girl to walk in heels, and I did not prepare. That was the hardest part,” she said.
Jan Holden, executive director of the Miss Montana Scholarship Program, thinks Wineman will have no problem at the national level."

Good for Ms. Wineman.  Next:  once again, the importance of pets enters the picture:
"For individuals with autism, bringing a new dog or cat into the household can lead to significant social improvements, a first-of-its-kind study finds.
Researchers reported Wednesday in the journal PLoS One that those with autism displayed improvements in two areas — “offering to share” and “offering comfort” — within a few years of welcoming a new animal into their lives.
Similar progress was not observed among study participants on the spectrum who lived with a pet since birth or those who never had a pet at all.
“This study reveals that in individuals with autism, pet arrival in the family setting may bring about changes in specific aspects of their socio-emotional development,” wrote the study’s lead author, Marine Grandgeorge of the Centre Hospitalier Régional Universitaire de Brest in France, and her colleagues. “To our knowledge, this is the first study showing an association between pet arrival and changes in prosocial behaviors.”
For the study, researchers compared individuals with autism who had dogs, cats or small animals like a hamster or rabbit in their home since birth to a control group made up of people with similar characteristics but who never lived with a pet.
They also looked at those on the spectrum who got a pet after age 5 as compared to individuals with autism without pets.
The 40 study participants were assessed using a test known as the Autism Diagnostic Interview-Revised, or ADI-R, that was conducted when they were ages 4 to 5 and then once more when the children were older.
Researchers also interviewed the individuals’ parents about the presence of any pets in their homes and, where animals were present, asked about the relationship between the person with autism and the pet.
While no change was seen for individuals without pets or those who had pets since birth, acquiring a new animal appeared to increase the likelihood of sharing and comforting parents or peers, two so-called prosocial behaviors.
The reason for the improvements is not entirely clear and more research is needed, the study authors said.
Interestingly, however, they indicated that children who acquired a new pet were much more likely to spend time petting or playing with their furry friend than those who had a pet since birth.
In about half of cases where a new pet came into the home, parents reported that they acquired the animal specifically for their child with autism, but whether or not that was the reason did not appear to influence the level of social progress that the individual achieved, researchers said."

"The dog is man's best friend."--who knows who said it first?  :+)






 

Tuesday, October 16, 2012

DON'T SNOOZE ON SLEEP ISSUES
We all know how important sleep is; for just anybody, but especially for kids and others with Moebius, who can sometimes have sleep issues.  And the fact is, research shows that kids who get more sleep are able to cope with things in a better way.  That makes it even more important for Moebius kids, who have plenty to cope with, believe me.  Read on:
"Sleepy school children make crabby classmates, while students who get plenty of sleep are better behaved, according to a new study published this week in the journal Pediatrics.
"Extending sleep opens the door to an effective, feasible way to improve children's health and performance," says study author Reut Gruber, director of the Attention Behavior and Sleep Lab at the Douglas Research Center in Quebec, Canada.
The study
Gruber and his colleagues wanted to find out if the behavior of elementary school children was affected by how much sleep they got. The researchers, with the permission of parents, enrolled 34 students ages 7 to 11 in the study. These were healthy kids who didn't have sleep problems or behavior or academic issues.
During one week of school, half the students were put to bed earlier than normal, averaging about 27 minutes more sleep a night. The other half stayed up later than their routine bedtime, losing about 54 minutes of shut-eye each evening.
The results
Teachers - who didn't know the sleep status of the students - reported significant differences in how the children behaved and coped with everyday challenges. Students who were sleep-deprived not only seemed overly tired, but were more impulsive and irritable than their well-rested classmates. They were quick to cry, lose their tempers or get frustrated.
The children who got plenty of sleep had a better handle on their emotions and were more alert in class.
Sleep experts say these results make sense and provide more evidence about the importance of sleep.
"We know that sleep deprivation can affect memory, creativity, verbal creativity and even things like judgment and motivation and being (engaged) in the classroom," explains Dr. Judith Owens, director of sleep medicine at Children's National Medical Center in Washington. "When you're sleepy, (being engaged) isn't going to happen."
And when children have trouble coping with day-to-day situations, Owens adds, this can affect a child's relationship with teachers, as well as their success in school, social skills and the ability to get along with peers.
Tips for parents
So how do you know if your child is getting enough sleep? Children in elementary school generally need between 10 to 11 hours each evening, but no two children are alike. Parents should look for clues, experts say.
"Kids in this age range should not be sleepy during the day," Owens says. "If the are falling asleep in the car or watching TV, that's a red flag."
Another way to gauge your child's sleep need is to pay attention to how much they sleep during school vacations, when they're sleeping without a time schedule. If they consistently sleep longer than on school nights, your child probably isn't getting enough sleep.
Take action
Parents can take steps to get their children off to bed at a reasonable hour.
– About a half hour before bedtime, have your kids start winding down - put down the electronic devices, turn off the TV and shut down the computer
– Have a consistent bedtime and wake time and try to make this apply to the weekends as well
– Be good role models for your children. Go to bed at a reasonable time and talk to them about the importance of sleep
"Consider that (sleep) is one of the building blocks of your child's health, well-being and academic success," Owens says. "It's equivalent to good nutrition, exercise and all the other things we try to foster and provide for our children. You've got to put sleep right up there at the top of the list."

“For the first couple years you make stuff, it’s just not that good. It’s trying to be good, it has potential, but it’s not. A lot of people never get past this phase; they quit. We all go through this. And if you are just starting out or you are still in this phase, you gotta know it’s normal and the most important thing you can do is do a lot of work. It is only by going through a volume of work that you will close that gap, and your work will be as good as your ambitions.”---Ira Glass (born 1959)

Friday, October 12, 2012

FRIDAY FOOTBALL PICKS!
Last week I was exactly .500--8-8.  So for the year, I'm 39-45-3.  Time to get back to the break-even mark!

NFL PICKS

Cincinnati 2 over CLEVELAND.  My pick:  BENGALS.  Cincy ran into a tough Miami defense last week (the Dolphins deserve more respect, by the way).  But I think Andy Dalton and co. bounces back strong this week.

NY JETS 3.5 ov.er Indianapolis.  My pick:  COLTS.  The Jets lost a tough one on Monday night; now they have a short week, they still have a ton of injuries on offense, and they face an improving Colts team.  It may soon be Tebow time in NY.

TAMPA BAY 4.5 over Kansas City.  My pick:  BUCCANEERS.  It's a bit of a tough pick, because with Brady Quinn starting this week for KC, you can't be quite sure what effect he'll have; can he give the Chiefs offense a needed jolt?  But my guess is that the Bucs will take care of business at home.

ATLANTA 9 over Oakland.  My pick:  RAIDERS.  Not to win.  But to keep it close.  9 points is a lot; and although they've continued to win, the Falcons have given up some points on D and have been living close to the edge.  Look for that to continue.

BALTIMORE 3.5 over Dallas.  My pick:  RAVENS.  Baltimore was flat last week vs KC, but don't look for that this week.  They should play strong at home; and the Cowboys' offense has struggled.  Baltimore is not a good defense to play when you're scuffling.

PHILADELPHIA 3.5 over Detroit.  My pick:  EAGLES.  I'm a Lions fan, and I'd love to pick them; but I just fear that Detroit's defense won't hold up against Mike Vick and the Eagles' many playmakers.

MIAMI 3.5 over St. Louis.  My pick:  DOLPHINS.  But not by much; this should be a hard-hitting game featuring 2 tough defenses (did you see the Rams body-slam the Cardinals around last week?).  Look for Miami at home to have just a little bit the better of it.

New England 3.5 over SEATTLE.  My pick:  PATRIOTS.  I respect the Seattle defense a lot.  But Tom Brady will find a way; and Russell Wilson is just a rookie.

ARIZONA 4.5 over Buffalo.  My pick:  CARDINALS.  The Bills have fallen on hard times; they're not a good road team (see last week's demolition at the hands of the Niners).  AZ struggled last week, too; but look for them to get well at home.

WASHINGTON 2.5 over Minnesota.  My pick:  REDSKINS.  It appears RGIII will play; the Vikings have been a pleasant surprise, but remember that Christian Ponder is still a very young QB, and they are prone to erratic play.  I just have a feeling he'll have a down week on the road this time.

SAN FRANCISCO 6.5 over NY Giants.  My pick:  NINERS.  San Fran has played very well at home; they appear right now to be the best team in the NFC.  The Giants' defense has had a few holes.  The Niners just appear to have too much right now.

HOUSTON 3.5 over Green Bay.  My pick:  TEXANS.  Green Bay lost a shocker last week.  I'd be surprised if they didn't come back strong this week.  BUT--Houston looks to me to be the best team right now in the AFC, and they're at home. 

SAN DIEGO 1 over Denver.  My pick:  CHARGERS.  I just think Peyton Manning and the Broncos are coming on...but they're not quite there yet.  The Chargers will come out focused at home.

COLLEGE PICKS

I see two games to focus on:

Oklahoma 3 over Texas.  My pick:  LONGHORNS.  It's in the Cotton Bowl; the Red River rivalry.  Texas has a good offense and a good QB; the Sooners have been a tad inconsistent.  I just have a hunch that it will turn out to be Texas' day; they're due.

LSU 2 over South Carolina.  My pick:  GAMECOCKS.  South Carolina is coming on; last week's demolition of Georgia proved that.  And I just wonder if LSU's offense can score.  They sure didn't against Florida.  Go with Steve Spurrier's bunch.

Thursday, October 11, 2012

HOW TO BOUNCE BACK
Goodness knows, persons with Moebius Syndrome know that life can be tough sometimes.  But when one goes through tough times--how can we get better at bouncing back?  This piece has some interesting ideas:
"Why is it that some people can bounce back from a tough event, while others never quite seem to get their mojo back? While it's true that resilience comes more easily to some of us than others, the good news is that anybody can learn to be more emotionally hardy.
Resilience—the capacity to respond and recover when life wallops you upside the head—is a pretty essential ability to have, especially in these unpredictable times. Being able to handle minor daily setbacks helps prime you for bigger-picture curveballs such as a job loss or the death of a loved one. "We need stress to grow," explains resilience expert Mary Steinhardt, Ed.D., professor of health education at the University of Texas at Austin. "It's like working out: You're not going to get stronger unless you stress the muscle. And if you don't work out, you'll atrophy."
It seems what doesn't kill you does make you stronger. A recent study from the University at Buffalo found that people with chronic back pain were able to get around better if they had experienced serious adversity (such as illness, divorce, or living through a natural disaster), whereas folks who had sailed through life without any major problems became more impaired. Super resilient people, it turns out, do five things right—and these are skills anyone can learn. Ahead, the moves that make all the difference.

1. Choose to be a survivorWhen we're confronted with bad news, it's hard not to jump to extreme conclusions. (I'll never work again! It's definitely a tumor!) But resilient people steer clear of this kind of catastrophic thinking, which makes you spiral downward, ramps up stress levels, and blocks purposeful action. Plus, Steinhardt says, "most of our worst fears don't come true, anyway."
Bounce-back women do what Nora Ephron famously recommended ("be the heroine of your life, not the victim") and avoid "negative scripts," say Robert Brooks, Ph.D., of Harvard Medical School and Sam Goldstein, Ph.D., of the University of Utah School of Medicine, authors of The Power Of Resilience.
Following a negative script means going with the same counterproductive course of action time after time ("my good work speaks for itself, so why should I have to ask my boss for a promotion?") when you have the power to change things for the better (by making a case for that promotion, say, or finding a new job). Brooks and Goldstein say that a major step toward resilience is to recognize that we are the authors of our lives, able to change the action.
Bottom line: You can't always control what happens to you, but you can control your attitude and enact change when bad times hit.

2. View setbacks as temporaryThe most resilient people have what shrinks call an "internal locus of control" — in other words, they believe that the actions they take will affect the outcome. So they don't take losses personally or lump defeat into bigger, scarier patterns. They realize that a setback such as a layoff or conflict at home can be a challenge and an opportunity, notes New York psychotherapist Jeffrey B. Rubin, Ph.D., author of The Art of Flourishing. "Success is often an obstacle to learning," he says. "When everything is going well, we continue to do what worked, and we don't learn much. But a crisis can lead to a breakthrough."
So when you're blindsided, write down your options. Think of friends you can call (resilient people see things from multiple perspectives, and if you are having trouble doing so, well, that's what friends are for). List books you can turn to. Decisive action creates a feeling of control, which is vital. According to many studies, the most resilient people are those who believe they have control over their emotions and state of mind.
Also take a conscious moment (or a few!) to remember how you've dealt before. You've gotten through other crises, right? You're still here—correct? San Diego psychologist Mark Katz, Ph.D., who created the Resilience Through the Life Span Project, asks participants to identify setbacks and "turning point experiences," having them recall the factors—like a kind-hearted mentor—that helped them overcome.

3. Think out of the oh-no boxAn unforeseen mishap causes many of us to freeze, paralyzed by indecision and fear. But flexibility is one of the core characteristics of highly resilient types. To get un-stuck during a crisis, train yourself to ask—and answer—these questions, says Karen Reivich, Ph.D., co-director of the Penn Resiliency Project at the University of Pennsylvania.
• What other things might have contributed to this problem?
• If I shared this issue with my friend, what would he/she see as having caused it?
• What parts of the problem can I directly control? Influence? Leverage?
• What solutions have I not tried?
In fact, if you make a concerted effort now to consider alternate approaches, you'll be better equipped to improvise during the next difficult patch. So when you have a minor problem, brainstorm with a friend to open up your thinking. If you tap into your inner MacGyver and get into the habit of devising new ways of doing things, "you'll be able to solve problems more easily when you do get stressed," says Bobbi Emel, a psychotherapist in Los Altos, California, and author of the Bounce blog.

4. Dote on yourselfPhysical health is a pillar of resilience. Before and during a crisis, it's essential to have healthy habits such as eating well, exercising, and avoiding mood changers like alcohol and other vices. (Interestingly, a 2007 study of residents living near the 9/11 attacks in New York City found that the people who coped best—meaning they showed the fewest signs of post-traumatic stress disorder—were the least likely to smoke cigarettes or use marijuana.)
In tough times, rest can be the first thing to go, so bring it on with sleep-promoting habits like exercise (another crucial building block for resilience, because it controls levels of cortisol, the stress hormone).
When it comes to coping, yoga is especially beneficial. A recent study from Harvard Medical School tracked a group of students over the course of 11 weeks. One group did a standard gym regimen, while the other one practiced yoga. At the end of the study, the yoga students reported that they were better able to calm themselves down when they felt upset. "Yoga promotes self-regulation, which is the ability to step back from a situation and not be reactive," says Jessica J. Noggle, Ph.D., one of the researchers.

5. Don't go it aloneOne of the myths about the highly resilient is that they possess unique internal strength that they rely on in the face of adversity. Not necessarily: The Teflon types are actually likely to reach out to others for help. A 2007 study by University of Chicago psychologists bears out this fact. It found that socially isolated people have a significantly more difficult time recovering from life challenges. "The more you hide your problem, the more power it has over you," Emel explains. "Other people remind you of who you are and reflect back that you're still that same person."
You can even boost your resilience by picturing others and wishing them well. In 2008, researchers at Emory University discovered that those who practiced compassion meditation (in effect, meditation while wishing others happiness and freedom from suffering, starting with loved ones and proceeding to enemies) had lower emotional distress levels in response to stress tests.
But connection is really the key. So in order to fortify your coping skills, it's important to build up as many meaningful relationships as possible. A 2010 study in the journal Social Psychological and Personality Science found that participants who plunged their hand in icy water were able to keep it there twice as long if they thought of five of their social groups (as opposed to others, who were told to picture one group they belonged to). This, along with previous research, led the researchers to conclude that being part of many different groups—work friends, neighbors, volunteer gatherings—is critical.
Being interconnected gives us the strength to handle challenges by helping us develop a sense of belonging and purpose—which, when it comes to getting through the tough stuff, may be the most important component of all."

“The purpose that you wish to find in life, like a cure you seek, is not going to fall from the sky. ...I believe purpose is something for which one is responsible; it's not just divinely assigned.”
Michael J. Fox (born 1961)


Tuesday, October 9, 2012

TODAY HEALTH UPDATE: IMPROVING YOUR SLEEP
So many of us with Moebius just have difficulty with sleeping--bad dreams, night terrors, etc.  So what can you do?  Good eating habits can help--read on:
""Sleep is the new sex," Dr. Nancy Snyderman said on TODAY Monday.
It's true many of us don't get enough shut-eye. "There are times you think, 'Do I want sleep or do I want exercise?'," Snyderman said. "I would argue that sleep is restorative and will put years on your life, more than anything else."
So what's a good medication-free way to get a nice, deep sleep? Thanks to popular culture (not to mention that infamous Seinfeld episode), many of us still believe certain foods -- like turkey and wine -- can put us out like a light.
But TODAY diet and nutrition editor Madelyn Fernstrom, Ph.D, Certified Nutrition Specialist (CNS), says getting a good night's sleep is much more about what you don't eat before you hit the hay.
"You want to avoid high fat meals or eating a lot of food before you go to bed because digestion interrupts comfortable sleep," she says. "You should also avoid highly spiced foods because when you lay down, you may have reflex."
Sugary foods are also bad before bed, says the author of The Real You Diet, whether in the form of fruit or something else (we're talking to you Cherry Garcia). Alcohol and caffeine (i.e., coffee, tea, soda or even chocolate, if you're sensitive), are also before-bed no-nos.
In fact, Fernstrom says you should curtail all caffeine consumption after 3 p.m.
How much time should you leave between dinner and bedtime?
"In a perfect world, you should have three hours from dinner before going to sleep," she says. "Although many people have a snack that can help relax them."
Interestingly, bedtime snacks -- which many people swear by -- can help induce sleep. But not because of any biological factors.
"There's nothing that will help you get to sleep immediately," says Fernstrom. "It's more the behavioral part of it -- the warmth, the settling down."
The best sleepy-time snacks are palatable, comforting, warm and around 150 to 200 calories, she says, and should be consumed no closer than a half hour before you go to bed. Her suggestions:
Caffeine-free tea or sugar-free hot chocolate. Fernstrom says something that you sip slowly, with your feet up, will generally help you relax.
A handful of dry cereal or slice of whole wheat toast. "Starch is typically good because it's low in fat and has a soothing quality. Most people don't want to crunch on raw vegetables before bed."
Graham crackers.Low in fat and moderate in sugar, these puppies are fairly low in calories and may bring on warm, fuzzy childhood memories -- and zzzzs.
Yep, warm milk."Warm milk doesn't put you to sleep because of its biological effect," says Fernstrom. "It puts you to sleep because of the soothing effect. Someone will say, my mom used to bring me hot milk and read me a story. You sip it slowly and you automatically have a down time before going to sleep."

“Everything we do is infused with the energy with which we do it. If we're frantic, life will be frantic. If we're peaceful, life will be peaceful. And so our goal in any situation becomes inner peace.”--Marianne Williamson (born 1952)

Friday, October 5, 2012

FRIDAY FOOTBALL PICKS!!
I was 9-7-1 last week; I am now 31-36-3 for the year.  I'm movin' on up.  Unfortunately I'm already 0-1 this week though, as I had Arizona over St. Louis last night,,,while instead the Rams won, 17-3.  Ah well.  On to this week's picks:

NFL PICKS

Atlanta 3 over WASHINGTON.  My pick:  FALCONS.  I think RG3 will help the Redskins score points.  But I think Atlanta will simply score more.

PITTSBURGH 3.5 over Philadelphia.  My pick:  STEELERS.  The Steelers are getting healthy, they must avoid a 1-3 start, and they're at home.  They'll find a way.

Green Bay 7 over INDIANAPOLIS.  My pick:  COLTS.  This is a tough one.  I think the Packers will in the end win this game.  But--the Colts wil play this one for Coach Pagano; they're at home; and I just don't the Packers' offense is clicking on all cylinders.  So I see a close game.

NY GIANTS 8.5 over Cleveland.  My pick:  BROWNS.  Beware of this one; the easy thing to do is to pick the Giants, but the G-men have a horrible history in games like this at home.  So often in the past they don't cover, and for Cleveland Brandon Weeden is improving and the Browns have the weapons to keep this one close.

MINNESOTA 5.5 over Tennessee.  My pick: VIKINGS.  Because the Titans just don't give you enough reason to pick them, especially on the road.  The Vikes meanwhile have played well this year.

CINCINNATI 3.5 over Miami.  My pick:  BENGALS.  They're at home, they have playmakers, and they have momentum.  I think Cincy will score enough to cover this.

Baltimore 6 over KANSAS CITY.  My pick:  RAVENS.  Again, what has KC done to merit picking them?  Matt Cassel is struggling; while the Ravens are rested coming off a bye.

CAROLINA 3 over Seattle.  My pick:  PANTHERS.  I very much respect the Seahawks defense; but it's their offense, led by Russell Wilson, which causes them the most trouble.  Look for Cam Newton to pose problems for Seattle, and for more Seahawks turnovers.

Chicago 5 over JACKSONVILLE.  My pick:  BEARS.  Jacksonville QB Blaine Gabbert at least hasn't thrown too many picks.  But it's largely because the Jags' offense plays it so safe and conservative.  That won't get it done against this Bears defense.

NEW ENGLAND 6.5 over Denver.  My pick:  PATRIOTS.  I have the feeling last week's 2nd half steamrolling of the Bills has got the Pats' offense rolling.  Look for it to keep going, and Peyton Manning and the Broncs will score some too but won't be able to keep up.

SAN FRANCISCO 9.5 over Buffalo.  My pick:  BILLS.  Not to win the game.  But to keep it close.  That's a lot of points, and it might be tough for SF to remain as focused as they should.

NEW ORLEANS 3.5 over San Diego.  My pick:  SAINTS.  Like many others, I just think the Saints and Drew Brees are bound to break though.  This will be the week.

Houston 8 over NY JETS.  My pick:  JETS.  Again, not to win.  But beware of this one.  The Jets are at home; everyone's trashing them and loving on Houston; and that can create a classic trap game for the Texans.  The Jets still have players and will be real focused; I think they can at least keep it close.

COLLEGE PICKS

West Virginia 14 over TEXAS.  My pick:  LONGHORNS.  Again, look for 'WVU to score lots of points; but so will Texas, and the 'Horns will at least keep this one close.

OHIO STATE 3.5 over Nebraska.  My pick:  CORNHUSKERS.  Ohio State's been living on the edge the last few weeks, sometimes barely getting by.  I think this week it will come back to bite them; the 'Huskers in an upset.

Thursday, October 4, 2012

ANOTHER MOEBIUS SYNDROME HERO
This time it's a mother from the UK who cares for not one, but two sons who both have Moebius Syndrome:
"A SOUTH Tyneside mum knows how beneficial time off from caring can be.

Pat Trotter, 64, of Hebburn, is a full-time carer for her sons David, 39, and Ian, 41, who both suffer from a rare neurological disorder called Moebius syndrome.
The debilitating genetic condition affects just one in 500,000, and sufferers have a catalogue of disabilities including incontinence, mobility issues, visual impairments and partial facial paralysis.
Since her husband’s death, Pat has spent the last 25 years caring for her sons by herself
She said: “My husband died of a heart attack many years ago, but even then I didn’t look for outside assistance as I always felt that as their mum it was my responsibility to look after them.
“I love them both and it is rewarding to see them enjoy parts of their lives, but it can also be tiring to never be away from them, as they require 24-hour care.”
Pat only began to look for care assistance a decade ago and Cast helped supply careers for an afternoon or evening’s respite.
But now the pensioner receives funding from South Tyneside Council to pay wages for caring support.
She said: “I receive help to do a lot of activities together with both Ian and David that gets the three of us out of the house and into social experiences; these include cooking, gardening and creative crafts, which we take part in at South Tyneside College.
“But I also now can have occasional overnight help which allows me to have a small break, and I’ve been known to see a show in London.”

“There’s something very freeing about losing the anchors that have always defined you. Frightening, sad, but exhilarating in a poignant way, as well. You’re free to float to the moon and evaporate or sink to the bottom of the deepest ocean. But you’re free to explore. Some people confuse that with drifting, I suppose. I like to think of it as growing.”--Deborah Smith

Wednesday, October 3, 2012

BULLYING--IT'S NOT JUST FOR KIDS
Unfortunately, it can also affect adults--in this particular case, it affected a local TV news anchor whose body, someone decided, just wasn't ideal.  But her response was a good one--check out the story:
"A Wisconsin television anchor’s bold retort to a viewer who suggested she was too fat to be on TV has spurred a heartwarming response -- and a new discussion about the boundaries of bullying.
Jennifer Livingston, 37, an anchor/reporter at WKBT-TV in La Crosse, Wis., received an email last week from a viewer criticizing her size.
“Obesity is one of the worst choices a person can make and one of the most dangerous habits to maintain,” the viewer said. “I leave you this note hoping that you’ll reconsider your responsibility as a local public personality to present and promote a healthy lifestyle.”
Many media types may have shrugged off the criticism as part of the job. Anyone who’s in the public eye is used to hate mail, name-calling -- and worse. But then Livingston’s husband, fellow WKBT anchor Mike Thompson, posted the email on the station’s Facebook page.
More than 300 people left comments; more than 2,200 “liked” the posts.
And so Livingston decided to fight back.
In an on-air segment that ran more than 4 minutes, she acknowledged that she is overweight – “You can call me fat, and yes, even obese on a doctor’s chart,” she said -- but then she lashed out at the viewer for contributing to a culture of bad-mouthing and bullying.
“If you are at home and you are talking about the fat newslady, guess what, your children are probably going to go to school and call someone fat,” she said.
She urged children and others who have been victims of cruel criticism to take heart.
“Do not let yourself be defined by bullies,” she said.
The man who wrote the email, Kenneth Krause, told the Associated Press that his emails had nothing to do with bullying. Livingston and Krause exchanged a few emails, but Livingston said he wouldn't back down from his opinion that she was a bad role model. Krause, who wouldn't reveal his profession or age, said he no longer had the emails.
But Livingston’s move is a step toward civility in a society that thinks a woman’s weight is fair game, said Dr. Robyn Silverman, a body image expert and author of the book “Good Girls Don’t Get Fat: How Weight Obsession is Messing Up Our Girls & How We Can Help Them Thrive Despite It.”
“I applaud her for her response,” Silverman said. “It was a very responsible response.”
We’ve become a “fault-finding” society where it’s acceptable to make snarky comments about anyone, but especially those in the public eye, Silverman said.
When Livingston stood up to the mean-spirited viewer, she was helping combat the messages that say it’s OK to judge people based on weight.
“We send the message to our children that they are not good enough, they are not valuable enough, unless they look a certain way,” Silverman said.
Though some of the responses to Livingston’s video were as cruel as the original comments, others were an affirmation of her individuality and courage.
“Tell your wife she rocks,” one poster wrote.
“Your wife is AWESOME! You’re a lucky man,” wrote another.
“Wish more people would focus on promoting compassion and kindness instead of focusing on appearances only,” wrote a third.
Livingston, whose station profile says she’s the mother of three young girls, did not respond to TODAY Health requests for comment. But in her on-air segment, she told viewers she was buoyed by the outpouring of support – and wanted others to be, too.
“Learn from my experience,” she said. “That the cruel words of one are nothing compared to the shouts of many.”
 
Yes, we should all try to be healthy and watch our weight.  But just because a person does the news on TV doesn't mean others have the right to engage in rather cruel personal criticisms of her.  Nor should people be targeted just because their body image doesn't fit some societal-constructed ideal.  I really hope we with Moebius Syndrome feel sympathy for Ms. Thompson.  Some day it could be we who are being told to stay out of the public eye or whatever, because somehow we offend someone's sensibilities.
 
“Life has many ways of testing a person's will, either by having nothing happen at all or by having everything happen all at once.”
Paulo Coelho (born 1947)
 
 

Tuesday, October 2, 2012

INSPIRATIONAL STORY OF THE DAY
An autistic ballerina dances her way into peoples' hearts:
"\In a popular YouTube video, the beaming little ballerina dances an entire four-minute routine seemingly perfectly, matching the steps of the professional Australian ballet dancer whose image is seen in the video's lower corner. They both raise and lower their arms in the style of a lifesize dancing doll, whirling and turning in accordance with the steps of the 19th century comic ballet, "Coppelia."
It would be an impressive achievement for any 10-year-old girl, but the viral video stunned the Internet in part because 10-year-old Clara Bergs is autistic and also has DiGeorge syndrome, a genetic disorder that often affects development.
Her mother, Lisa Anderson of Toronto, told TODAY that Clara spent almost the entire first 16 months of her life in the hospital. She walked at age 5, spoke at 6, breathed through a tracheostomy until she was 6 and still relies on a gastrostomy tube for nourishment,. But she was always determined to fight through her challenges.
"We knew that she no longer needed her trach when she kept pulling it out and throwing it away in the park, on the sidewalk, in the lake," Anderson told TODAY.
Clara has been taking ballet lessons for three years, her mother says, and has also studied piano. She comes by her artistic interests naturally -- Anderson studied piano performance and Clara's father, Roger, is a composer, music director and composition teacher. Still, no one expected her to have so completely mastered the complex dance.
"We knew Clara would dance and practice this ballet but we never knew how precise her movements were until one of Clara's therapists, Marielle Yap, decided to videotape her and compared it to the original performed by the Australian Ballet, which is the version Clara usually watched.," Anderson said. "We were all completely shocked and amazed!"
Anderson has high praise for the Intensive Multi-Treatment Intervention program, founded by Jonathan Alderson, who works with Clara and her family. A group of others, mostly college students, also have been trained to work with Clara, and "have become like an extended family to us," Anderson said. 
"THe IMTI program is customized for each child and brings in all sorts of treatments (and) therapies the specific child may need," she told TODAY.  "So, for example, with Clara, due to her weaknesses, we have done lots of gross motor and self-help skills, vision therapy due to low muscle tone, yoga, eating by mouth, speech therapy, osteopathy due to scoliosis etc.  Jonathan has a gift of being able to observe a child and determine what that child needs at that time."
Clara's family has always been able to pay for about half of the cost, but recently lost funding for the rest of it. And because the Canadian government will not cover the costs of the IMTI program, the family turned to more creative means, including publicizing the video, to raise money. Interested people can donate to Clara via PayPal and also follow her on Tumblr and Facebook.  
"We've been overwhelmed by the attention this video has received," Anderson told TODAY. "We've received so many lovely comments from people all around the world who have been inspired by Clara."
Clara still dances every day, her mother says, and in addition to ballet, she also enjoys jazz and contemporary music, including her fellow YouTube hit, "Gangnam Style."
"It makes me want to go back to the doctors who basically said there was no hope for her and show them just how much inspiration this little girl has given so many others," Anderson told TODAY."

“Don't fear failure so much that you refuse to try new things. The saddest summary of life contains three descriptions: could have, might have and should have.”
Louis E. Boone (born 1941)

Monday, October 1, 2012

PICTURES SAY A THOUSAND WORDS
You know, one of the things I enjoy seeing are pictures, on Facebook or elsewhere, of friends of mine who have Moebius Syndrome...pics of them, that is, that show them hanging out with others who have Moebius.

Of course, we can't, for the most part, show facial expression.  So it's not that everyone has big smiles or anything.  But still, the body language shows a lot; it just shows a level of comfort, of fun, that all of us in the Moebius community has with each other.

And that really is true, isn't it?  It's not that we sit there all day and endlessly discuss the ins and outs of having Moebius with each other.  Nobody would want to sit there and do that endlessly.  We of course can discuss it.  And we do.  And it is so good to be able to talk about it with someone whom you know understands, who "gets" exactly where you are coming from.  We always appreciate those non-Moebius folks who listen to us, who try to understand.  But unless you've been there yourself, it's not the same.

So yes, we talk about it.  But not all the time.  No, instead, it's that level of comfort you have with another Moebius person that's the key.  You know he or she isn't staring at you when you're not looking.  You know that other person isn't secretly wondering about you, isn't saying internally "what is the deal with him/her?"  You know that your Moebius friend knows.  And you can talk about things if you wish.  Or, you can just be friends, and talk about whatever.  It's a nice feeling.  And you can see that in the pictures.  It's one of the best things about the conference, and about other Moebius meet-ups.  They can create friendships which are priceless, and which can last a lifetime.

So I urge those of you with Moebius--if you have a chance to go to a conference in the future, do it.  If you have an opportunity to meet up with another person with Moebius, do it.  It can be a great thing, and can change your life--for the better!

“When I feel lost and can't make a decision, I just stop and get quiet. I take a time-out. I ask myself, How does this feel? What do I want my life to be like? I try not to listen to the shoulds or coulds, and try to get beyond expectations, peer pressure, or trying to please- and just listen. I believe all the answers are ultimately within us.”
Kim Cattrall (born 1956)