MORE MOEBIUS SYNDROME IN THE NEWS
First, there's a great story about UK Moebius hero Jack Marshall, who once again has accomplished a major feat:
"Doctors said he'd never walk-but young Jack Marshall showed once again today what an inspiration he is by walking to the top of Scafell Pike, the highest mountain in England. Jack, 14, from Doncaster, has Moebius syndrome - a rare condition which affects his co-ordination, balance and speech.
He's also blind in one eye. But he's raised thousands of pounds to help other children he considers less fortunate than himself. Our reporter David Hirst filmed this footage for on his mobile phone."

Be sure and go to the link above, and check out the video of Jack's accomplishment--impressive!

Meanwhile, staying in the UK, check out the story of young Abbi Forester and her courageous family, as they seek to raise money to help them in their cause:
"THE FAMILY of a Kirkcaldy girl who can’t smile is appealing for help in raising money to allow more research into her rare condition.

Abbi Forrester (5) was diagnosed with Moebius Syndrome shortly after she was born - as well as other conditions - which means she is unable to move her face.
Her story comes just weeks after the Press reported on the case of Kirkcaldy tot Kianna Martin, who has a similar condition.
Abbi’s mum, Linda (38), told The Press that a scan at 20-weeks revealed Abbi had club feet.
Linda, who works as a machine operator, said: “I was able to deal with this because I thought it wasn’t life threatening - it could be fixed through operations - but we didn’t know she had Moebius Syndrome until after she was born. There isnt a pre-pregnancy test to show whether or not a baby has the condition.
“When she was two weeks old doctors started testing Abbi for epilepsy - they thought she was taking fits because her eyes were rolling, but she was actually blinking. We took her to the Sick Kids Hospital in Edinburgh and a doctor diagnosed her condition straight away.”
Facial paralysis
Abbi also has Pierre Robin sequence - meaning she has an underdeveloped jaw, an arched palate and abnormal tongue position - and CFZ syndrome, nonprogresseive muscle weakness.
The mum-of-two continued: “Abbi has facial paralysis - she can roll her eyes and stick out her tongue but there is no other movement. She can be treated with smile therapy but that’s more of a vanity thing, it’s not a cure.”
Linda said the family has been fundraising since 2006 to raise money to help pay for research into Moebius Syndrome.
She has organised race nights and a sponsored skydive, and this weekend, friends of the family, are taking part in fundraising events to boost the coffers.
Sponsored
Gary Thomson, work colleague, is doing a sponsored cycle from John O’Groats to Leven over three days from tomorrow (Friday), while Suzanne Lowe has signed up for the Ignis Asset Management Women’s 10K road race in Glasgow on Sunday.
Linda is hoping to raise as much as possible to help the Moebius Research Trust reach its target of £250,000.
She said: “I am just really pleased that Gary and Suzanne are doing this for us. We have raised almost £12,000 so far but are looking to keep adding to this. If people could make a donation we would be very grateful.”

Isn't it amazing that just recently not one, but two young children from that same small area have been found to have Moebius?  It's a small world sometimes.  And I think it's terrific that so many friends of the Forrester family are doing their best to help.  Good for them.

“You know, I used to think the future was solid or fixed, something you inherited like an old building that you move into when the previous generation moves out or gets chased out. But it's not. The future is not fixed; it's fluid. You can build your own building, or hut or condo...the world is more malleable than you think and it's waiting for you to hammer it into shape.”---Bono (born 1960)