Showing posts with label Moebius Syndrome; facial difference; Jodee Blanco; teasing; bullying. Show all posts
Showing posts with label Moebius Syndrome; facial difference; Jodee Blanco; teasing; bullying. Show all posts

Thursday, December 30, 2010

MORE
...from Jodee Blanco, who wrote a brilliant book on grade school/high school bullying, discussed yesterday.  In that book, she also wrote:

"No matter what you're going through right now, you can survive and things will get better.  You must stay strong and have faith in the extraordinary person inside you waiting for the opportunity to show the world what you're made of.  I believe in you and know that you have what it takes to not only get through whatever is causing your pain right now, but to use it to help others transcend their own pain.  You are my hero, and my fervent desire is that after you've read this book, it will have made you want to become someone else's hero too.  It doesn't require much:  a phone call, a word of encouragement, an invitation extended in friendship."

"The best of all gifts around any Christmas tree: the presence of a
happy family all wrapped up in each other." -Burton Hillis

Wednesday, December 29, 2010

ENJOYING THE HOLIDAYS?
I have been doing exactly that; and I hope you have, too.  That's why this blog has taken a bit of a break...though we don't intend to leave you completely high and dry.  One thing I do every holiday vacation is read a lot.  I love to read.  One book I've just finished reading...and I read it partly because it was of interest to me, and I thought it would be of interest to many of you with Moebius or with a facial difference...is a book by Jodee Blanco, called PLEASE STOP LAUGHING AT ME:  ONE WOMAN'S INSPIRATIONAL STORY.

It's a story about a woman who was considered different in high school; who didn't always run with the "in" crowd or do exactly what they expected her to do.  As a result, she was horribly taunted, viciously teased, and endlessly bullied.  Some of us know exactly what she went through.  All of us know something about what she went through.  As Ms. Blanco explains:

"From fifth grade through high school, I was kid that nobody wanted to be caught dead hanging out with and the one who rescued crickets while my classmates held competitions about who could squish the most bugs the fastest.  I would rather write poetry than play dodge ball or gossip in the neighborhood tree house and I always defended the underdog even when it meant facing the wrath of the cool crowd.  I had more in common with adults than anyone my own age and would have given almost anything for friendship, except my soul, which is what seemed to be the asking price.  I endured every form of humiliation during my school years, from teasing and taunting, being the target of cruel and twisted pranks, to actual physical abuse.  Years later when people would ask me what hurt most, I would explain that it wasn't the acceptance and love I was being denied that made it hard, it was all the love and friendship I had to give that no one wanted."

I suspect that last part has been true for those with Moebius Syndrome too.  So much love and friendship to give; but because we look and sound different, some don't want it.  Luckily there are many, however, who do, as well.