A couple more things:
1] Later in the novel, Hazel and Augustus are getting on a plane, to take a trip to Europe. But they get to go on the plane first, ahead of most others. And of course, as they go through the gate, everyone stares at them. Their cancer, Hazel noted, "separates us from other people. We were irreconcilably other..."
People see you always as "different." As not "normal." Some of us with Moebius know that feeling.
2] So often during the book--when their suffering from cancer is really acute; when peoples' actions towards them are the most annoying; when life seems to be at its most unfair--both Hazel and Augustus will say this:
"The world is not a wish-granting factory."
And...well. No, it's not. It's really not that for anybody. I don't know how much comfort that is. Maybe it's rather cold comfort. But it does help keep things in perspective.
3] But remember this too--THE FAULT IN OUR STARS is partly a love story. It's about people, their lives, their loves, their dreams, and sometimes their heartbreaks. As Hazel's mother says to her--"you deserve to have a life." And she does.
And so do we with Moebius Syndrome. We all have lives too. We accomplish a lot of things. For those of you Moebius moms and dads who worry about your child with Moebius--what kind of life will he or she have? Will she really have a life? I say, don't worry. Your child will surprise and amaze you every day. I've seen it over and over again.
Because those with Moebius Syndrome are pretty amazing...
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