Thursday, October 31, 2013

I-JUST-THOUGHT-THIS-WAS-INTERESTING DEPT: 10 THINGS ABOUT HALLOWEEN

Ten strange facts, that is, that maybe you did not know about Halloween.  I just thought it was interesting.  So, in honor of Halloween today, read on:

********************************

hen you stop to think about it, Halloween is one of the strangest celebrations of the year. It's a whole holiday built around ghosts and sugar.
Weirder still is how it affects the behavior of nearly everyone in America, no matter their age. Kids dress up in silly costumes and parade around town collecting candy from complete strangers. College students dress up in silly costumes and parade around town getting drunk with complete strangers. And grown adults stay inside to watch the marathon of "Roseanne" Halloween specials on WE TV.
Like we said, it's super strange.
And if that wasn't enough, here's 10 strange facts that make Halloween even stranger:
#1. After the original CBS broadcast of "It's the Great Pumpkin, Charlie Brown," viewers from across the United States sent packages of candy specifically for the title character. According to "Peanuts" creator Charles M. Schulz, they were upset because Charlie kept getting rocks instead of candy while trick-or-treating.
#2. Halloween retail store Spirit Halloween claims they can determine the outcome of a presidential election based on the sales of each candidate's mask. In the past four elections, which is as long as they've been keeping track, the sales of Spirit's masks has accurately predicted the winner. In 2004, BuyCostumes.com claimed they had data to support this same phenomenon all the way back through Reagan's first election.
#3. More cars are stolen on Halloween than any other holiday, with 2,328 cases being reported in 2011 alone (the last year data was available). New Year's Day is a close second, with 2286 reported cases in 2011.
#4. In Hollywood, California, it's illegal to use, posess or sell Silly String in public areas between 12:01 a.m. on October 31 through 12:00 p.m. on November 1. "A lot of people have made fun of this ordinance," said Matt LaBonge, the councilman who proposed the ban in 2004. "But if you talk to the street cleaners and the police officers, it has been an effective tool." Silly String offenders may face a fine of up to $1,000 if caught.
#5. According to Michael Downing, the author of "Spring Forward: The Annual Madness of Daylight Savings Time," the candy industry had a hand in changing the length of Daylight Savings Time in order to sell more candy before Halloween. Candy-makers were among the supporters of the Energy Policy Act of 2005, which shifted the end of Daylight Savings Time from "the last sunday in October" to the "first Sunday of November," effectively giving trick-or-treaters an extra hour of daylight to gather sweets. (Downing also recounts how they failed to accomplish the same thing at the 1985 Daylight Saving hearings after putting candy pumpkins on the senators' seats.)
#6. The producers of John Carpenter's 1978 film "Halloween" modified an old Captain Kirk mask (featuring a likeness of William Shatner) in order to create serial killer Michael Myers' emotionless mask for the movie. Shatner became aware of this fact, so after "Halloween" became a hit, he bought a Michael Myers mask to wear while taking his children trick-or-treating.
#7. The National Highway Traffic Safety Administration has named Halloween as the third deadliest day for pedestrians, with an average of 30 people being struck and killed by cars every year. December 23 and January 1 are the first and second, respectively.
#8. In 2006, researchers at Yale University determined that women are less likely to give birth on Halloween by way of scheduled cesarian sections and spontaneous births. "One possible explanation is that … there are different kinds of psychological factors, which could have a role on hormones," said Becca R. Levy, the associate professor of epidemiology and psychology at Yale's School of Health. The same study also found that the number of births increased on Valentine's Day.
#9. Billboard recently released a list of the most-played "Halloween-themed" songs in America, based on airplay between October 25 and October 31, 2012. Coming in at the top spot was Michael Jackson's "Thriller," followed by "Monster Mash" by Bobby "Boris" Pickett & the Crypt-Kickers and "Ghostbusters" by Ray Parker, Jr.
#10. Before becoming synonymous with Halloween, Brach's once marketed candy corn as "summertime candies." By the mid-20th century, the confections soon became more popular during Halloween and Thanksgiving (party due to their autumnal colors), but they continued to be a frequent addition to Easter baskets during this time.

************************************

Wednesday, October 30, 2013

FOR MOEBIUS MOMS AND DADS: DON'T DO IT

Don't do what?  Very simple:  don't blame yourself.  Don't blame yourself, that is, for the fact that your child has Moebius Syndrome.

This was something that came up among my friends on Facebook.  A Moebius mom raised the issue.  She felt some guilt because her child had Moebius.  Had she done something wrong during her pregnancy?  Was she somehow to blame?  And in the comments that followed, one could tell that more than one parent of a Moebius child has had these feelings.

Now what do I say in response to that?  I'm an adult with Moebius.  I was born with it.  Having Moebius certainly wasn't something I sought.  You don't have a choice in the matter.  But, I say, and I think everyone I know with Moebius would say:  don't do it.  Don't blame yourself.  It's not your fault!

Look, more specifically:  I am glad though that this issue got raised.  Obviously it's a feeling that some have.  One can certainly understand why it comes.  I'm a parent too.  Whenever anything at all happens to your children, you worry that somehow you did something wrong that may have caused it.  So get it out there.  It's a good thing.

But, as someone with Moebius Syndrome, and as someone who thus knows something about the condition, there are some things we know:

1] We're not exactly sure exactly what happens that causes a child to have Moebius Syndrome, but nobody thinks that parents, during pregnancy, can do this or that to prevent.  It happens.  But no one is to blame, and we shouldn't seek to assign it.

2] There are certainly times I wish I didn't have Moebius.  But I don't sit around and occasionally think of who to blame.  I don't waste my life doing that.  I know that no one is to blame.  Everybody else I know with Moebius feels the same way.  So we don't blame you, parents...and therefore:  don't you go around wasting energy blaming yourselves.

3] Instead, we have lives.  We have opportunities.  I think all of us being together on this network is a great thing, because now we can also encourage each other to seize those opportunities.  Many of us have good lives, and we're glad to have them.  And you parents have helped us get to that point where we can do something with our lives.  So again--don't blame yourselves.  Instead, be glad about how much you've helped your child along the way.

No blame.  No guilt.  Instead, seize the day!

Tuesday, October 29, 2013

FOR MOMS AND DADS: BABIES AND ELECTR0NIC DEVICES

Many pediatricians say:  don't let your young children below the age of 2 use them much.  Why?  Read on:

********************************

In the never-ending battle over whether screentime is good or bad for kids, two new reports — released, ironically, on the same day — paint both a concerning and ambiguous picture of how children consume media in 2013.
Nearly half of babies have used a computer or mobile device before their 2nd birthday, found a report by the think tank Common Sense Media.
But doctors should strongly discourage parents from letting kids under 2 use these devices, ruled the brand-new media guidelines from the American Academy of Pediatrics.
(Common Sense Media)
(Common Sense Media)
Clearly, there’s a big gap between what children and parents are doing and what doctors advise. The CSM study found that children spend less time in front of screens than they did two years ago. But that drop is due mostly to a loss of interest in traditional media; time on phones and tablets is up big since 2011.
Two years ago, for instance, only 14 percent of kids under 2 had used a computer or mobile device — now 48 percent have. And while the AAP recommends that children spend no more than one to two hours in front of a TV or computer, this survey shows most kids fall at the very upper limit of that spectrum, devoting an hour and 55 minutes each day to their screens.
Among the other findings from the CSM report:
  • The average child (used throughout the report to mean a kid 8 or younger) spends an hour and 19 minutes watching TV or DVDs, 11 minutes using a computer, 10 minutes playing video games, and 15 minutes using a mobile device each day.
  • By age 2, two-thirds of kids have watched a TV and 38 percent have used a smartphone or tablet.
  • 75 percent of children have access to a smartphone or tablet at home, up from 52 percent in 2011.
  • Nearly one in five kids uses a mobile device every day.
  • Nearly three in five parents has downloaded a mobile app for their kids.
  • The average child spends 11 minutes a day on the computer, a number that goes up with age.
  • 3 percent of kids use Facebook or another social network.
The question that CSM hesitates to answer is whether all this screentime is good or bad for kids. The short answer? We don't know for sure — which is why, AAP argues, we shouldn’t let kids loose around computers and cellphones.
(Common Sense Media)
(Common Sense Media)
There’s research that links unlimited media use to obesity, aggression, developmental delays and sleep and attention problems in young children. At the same time, shows like “Sesame Street” have enormous health benefits for little kids, the AAP says — which suggests certain kinds of educational programs or games could have health benefits, too. CSM finds that very young children are usually using apps and surfing the web for educational purposes. And the average child still spends more time reading than playing with apps or video games.
Of course, it will still be several years before researchers can conclusively measure the long-term effects of computer and smartphone use among small kids. Until then, we'll give the AAP the final word. Its recommendations to parents:
  • Limit the amount of total entertainment screen time to less than one or two hours a day.
  • Discourage screen media exposure for children under two years of age.
  • Keep the TV set and Internet-connected electronic devices out of the child’s bedroom.

    *************************************

Monday, October 28, 2013

MOEBIUS SYNDROME IN THE NEWS

And today it's all about our good friend, Austin Halls!  You may have already seen it--but if not, check it out!  Great job, Austin...

*******************************

For 15-year-old Austin Halls, being unable to smile and living with a face that’s disfigured isn’t such a big deal. It’s just who he is — and he’s making no apologies.
In fact, he’s proud of it.
"We have smiles in our hearts," said Austin, who was born with Moebius Syndrome, a rare disorder in which sufferers are born without or undeveloped cranial nerves that help their facial muscles form a smile.
"I’m self-confident. I pretty much wipe off what people have to say about me," Austin said during an interview with his mother, Beth, at their home in Sandyston in Sussex County.
"You could focus on the negative — why was I born with this? I try to focus on the positive, that’s who I am."
Vicki McCarrell, president of the Pilot Grove, Mo.-based Moebius Syndrome Foundation, first met Austin in the lobby of a Philadelphia hotel, the site of the foundation’s 2012 biennial convention, and heard someone playing the piano.
Impressed by the sounds, McCarrell went to see who was giving the impromptu performance and, to her surprise, saw Austin pounding the ivories.
"He’s an amazing musician, a great musician. And a neat kid," said McCarrell, adding that Austin, who also plays bass drum in the marching band at Kittatinny Regional High School, later played guitar at the foundation’s talent show.
Based partially on what he and his mother saw at the convention — many children with Moebius who were extremely shy because of their appearance — Austin is taking steps to try to raise awareness of the syndrome.
In addition to being unable to smile, Moebius often brings with it other medical problems. Like Austin, who cannot fully close his eyes at night, many Moebius patients can move their eyes up and down, but not laterally.
"Many of them (people with Moebius) have had a hard time getting through life. A lot of kids are shy, they’re bullied," said Austin, who until a few years ago wore his own perpetual frown, the telltale sign of Moebius, before a successful 18-hour "smile surgery" in 2008 gave him the ability to smile on the right side of his face.
A second surgery, in 2009, to allow him to smile on the left side of his face, was unsuccessful. Plans for a third surgery are in the works, his mother said.
"Lots of parents came to the convention with like their kids under their wings, to protect them," added Beth Halls.
On his Facebook page, Austin has launched a campaign to raise money for the Moebius foundation’s next conference, which is scheduled for July 2014 in Bethesda, Md. By helping to sell various Moebius memorabilia, he hopes to raise $1,000 to $10,000 toward the $135,000 cost of the three-day convention.
He’s also been trying to make a guest appearance, possibly playing the guitar, on his favorite TV show, "The Ellen Show," hosted by comedian Ellen DeGeneres.
In an effort to get DeGeneres’ attention, Austin has collected more than 1,000 "likes" on his Facebook page. He’s also sent many emails to the show, but has not received any replies.
"I want to be a role model for kids. It’s okay to be who you are and love yourself," he said.

**************************************************

"Decide that you want it more than you are afraid of it."--Bill Cosby

Friday, October 25, 2013

FRIDAY FOOTBALL PICKS

Last week I was 8-8.  I am 50-62-2 for the year.
Well, at least it wasn't a losing week, exactly...

COLLEGE PICKS

UCLA at Oregon.  My pick:  OREGON.  They've been very impressive all year, though they tend to go under the radar because they play on the West Coast.  And they're very tough at home.

Texas Tech at Oklahoma.  My pick:  SOONERS.  It would be fun if Texas Tech won here; it would be a great story.  And Tech is unbeaten.  But Oklahoma would appear to me to be head and shoulders above any team the Red Raiders have played, and don't forget that Tech also has injury issues at QB.

NFL PICKS

San Francisco 16.5 over JACKSONVILLE.  My pick:  49ERS.  Another tough day for the Jags, facing a team that's way better than them.

DETROIT 3 over Dallas.  My pick:  COWBOYS.  Too often, against decent/good teams, the Lions find ways to lose.  We saw it last week--again.  Look for Tony Romo to exploit the Lions' secondary.

PHILADELPHIA 6.5 over NY Giants.  My pick:  EAGLES.  Looks like Michael Vick will play, which will greatly help Philly.  The Giants' offense, already ravaged by injuries, was further damaged this week when it was announced that center David Baas is out for the season.  Ouch.

KANSAS CITY 7 over Cleveland.  My pick:  BROWNS.  Not to win; Andy Reid and the Chiefs will find a way to win another close one.  But the Browns' defense is pretty good--good enough to keep this one close, given the Chiefs' conservative offense as well.

NEW ORLEANS 12 over Buffalo.  My pick:  SAINTS.  Buffalo has a good defense, but look for them to wear down in the second half; and also look for young Buffalo QB Thad Lewis to struggle in the loud environment Saints' fans create.

NEW ENGLAND 7 over Miami.  My pick:  PATRIOTS.  The Pats' clunker of a game last week in New York surprised me.  I don't expect it to happen 2 weeks in a row, especially against the reeling Dolphins.

CINCINNATI 6.5 over NY Jets.  My pick:  BENGALS.  Geno Smith, the Jets' QB, is better than I thought.  But he's also been inconsistent.  Last week he was good.  This week look for him to come down to earth a bit against the tough Bengals.

Pittsburgh 3 over OAKLAND.  My pick:  STEELERS.  The Steelers are on the rebound.  And this week the schedule is kind--this will be a tough game, but Ben Roethlisberger will find a way to win it.

DENVER 13 over Washington.  My pick:  REDSKINS.  I think the Broncos are returning to earth a bit.  Peyton Manning is a bit dinged up; he had to miss a day of practice this week.  And the Redskins and RGIII are improving, especially offensively.  I look for Denver to win this game--but look for Robert Griffin to help put up enough points to keep the final spread under 13.

ARIZONA 2.5 over Atlanta.  My pick:  FALCONS.  A tough one; because both these teams are tough to read.  Arizona's defense is tough; but offensively they turn the ball over too much.  Not a good thing to do against Matt Ryan.

Green Bay 9.5 over MINNESOTA.  My pick:  PACKERS.  So now the Vikings are back to Christian Ponder at QB.  But his confidence is likely shaken.  Aaron Rodgers' isn't.

Seattle 10.5 over ST. LOUIS.  My pick:  SEAHAWKS.  No Sam Bradford for the Rams = little chance.

Wednesday, October 23, 2013

MORE ON SLEEP ISSUES

We've been talking recently about sleep.  And it's an issue for many of us--some of us are morning people; others, night owls.  Why?  Some always sleep well.  Others, not.  Why?  Well, maybe it depends on what "chronotype" you are.  Huh?  True--read on:

**********************************

This article appeared in the October 20, 2013 issue of The New York Times Magazine.
If you consider yourself to be a born morning person or an inveterate night owl, there is new research that supports your desire to wake up early or stay up late. Each of us has a personal “chronotype,” or unique circadian rhythm, says Till Roenneberg, a professor of chronobiology at Ludwig Maximilian University in Munich and one of the world’s experts on sleep. In broad strokes, these chronotypes are usually characterized as early, intermediate or late, corresponding to people who voluntarily go to bed and wake early, at a moderate hour or vampirishly late. If you are forced to wake up earlier than your body naturally would, you suffer from what Roenneberg calls “social jet lag.”
People with an early chronotype may do well with a 7 a.m. workday rising time, but others do not. Sleeping out of sync with your innate preferences can be detrimental to your health, especially for late chronotypes, who tend to be the most at odds with typical work schedules. A study conducted by the National Institutes of Health and published in March in PLOS ONE found that obese adults with late chronotypes tended to eat larger meals, develop more sleep apnea and have higher levels of stress hormones and lower levels of HDL, or “good,” cholesterol than obese people with other chronotypes.
Their chronotype may also have contributed to weight gain in the first place, Roenneberg says. Research has shown that a single hour of social jet lag, the mismatch between your chronotype and your schedule, increases your risk for obesity by about 33 percent. In a study published in June in Chronobiology International, late-night chronotypes gained more weight during their freshman years at college than other new students did, even though college is one of the best fits for night owls.
The brain can also be affected. Another study in Chronobiology found that “individuals having a preference for evening hours to carry out their daily activities are prone to depression,” more than earlier chronotypes are. In an August study in NeuroImage, scientists in Germany scanned the brains of young men and found that white matter, which carries and amplifies signals between neurons, was less cohesive in certain parts of the brain in late chronotypes than in the other volunteers. This could make the brains of late chronotypes a little “less efficient,” says Jessica Rosenberg, a researcher at the Institute of Neuroscience and Medicine in Jülich, Germany, and an author of the study, although, she points out, it’s impossible to tell whether the lack of sleep caused the brain changes or vice versa.
Almost every cell in our bodies is likely to reflect our chronotype. In a study in May in Chronobiology, scientists typed volunteers using a questionnaire, then examined cells from their inner cheeks and found that late chronotypes tended to have activity in genes that contribute to later sleep onset, offering further evidence that the urge to stay up late or to rise early is not a lifestyle choice but resides in our DNA.
Few people have the luxury of organizing their lives by their chronotypes. If you can’t convince your boss that your body clock requires a later start, consider “getting outside more,” Roenneberg says. Infusions of sunlight nudge most chronotypes toward an earlier sleep time. More immediately, look forward to Nov. 3, the end of daylight saving time. The summertime clock typically disrupts sleep for all chronotypes, he says. “Everybody sleeps better when it ends.”

**********************************

Tuesday, October 22, 2013

HEALTH TIP OF THE DAY

Yet more reason to get a good night's sleep--it helps your brain.  Read on:

****************************

Here's a reason to get some shuteye: A new study suggests our brains go on a cleaning spree during sleep, flushing out gunk that builds up while we're awake.
Though the cleaning was observed in mice, scientists think it happens in people too.

The findings were reported in Friday's issue of the journal Science and may provide new clues to treat Alzheimer's and other brain diseases.

People who are sleep-deprived have trouble learning and making decisions. But despite decades of research, scientists can't agree on the basic purpose of sleep.
For the study, researchers led by the University of Rochester Medical Center observed the brains of mice while awake and asleep. They found cellular waste flowed faster out of the brains of sleeping mice than awake mice.

*****************************

"We are like the little branch that quivers during a storm, doubting our strength and forgetting we are the tree--deeply rooted to withstand all life's upheavals."--Dodinsky (author)

"Kindness is a language which the deaf can hear and the blind can see."--Mark Twain

Monday, October 21, 2013

TURNING SADNESS INTO GOOD

A sad no-longer-a-bride-to-be turns that sadness into something good--for those with physical differences.  Read on:

*****************************

When her dream wedding was abruptly called off, one bride chose to turn her misfortune into a special opportunity for those with disabilities.
Michelle Marxen planned for a year for her nuptials scheduled for this Saturday in Fargo, N.D. But the day the invitations were supposed to go out, Marxen’s fiancé said he no longer wanted to go through with the marriage.
“He didn’t want to marry me. He said he didn’t love me anymore,” Marxen told WDAY.
At that point, however, it was too late to cancel the ballroom, band, flowers and other arrangments already contracted for the couple’s big day.
Instead of letting it all go to waste, Marxen is now donating her party to Creative Care for Reaching Independence, a local organization that provides services for people with disabilities, so that the group’s clients can have a Halloween celebration.
“What was supposed to be my special day will now be their special day,” Marxen said.

********************************

"Watch the sunrise at least once a year, put a lot of marshmallows in your hot chocolate, lie on your back and look at the stars, never buy a coffee table you can't put your feet on, never pass up a chance to jump on a trampoline, don't overlook life's small joys while searching for the big ones."--H. Jackson Brown, Jr. 

Friday, October 18, 2013

FRIDAY FOOTBALL PICKS!!

Here they are!
Last week was another tough week.  I was only 4-9-1.  For the season I'm 42-54-2.
Lots of work to do.

COLLEGE PICKS:

USC at Notre Dame.  My pick:  IRISH.  I see Notre Dame is only a 3 point favorite.  But the Irish are coming off a good win over Arizona State, and I like them to play well here. 

TCU at Oklahoma State.  My pick:  HORNED FROGS.  The TCU offense has struggled.  But their defense is really good.  And every year it seems that Gary Patterson pulls off a win that no one expects.  I think this week is that week.

NFL PICKS

New England 3.5 over NY JETS.  My pick:  PATRIOTS.  Doesn't seem to matter who they have or don't have; Tom Brady and the Pats always seem to find a way, most of the time.  Same thing here.

San Diego 7.5 over JACKSONVILLE.  My pick:  CHARGERS.  Yes, the Jags played better last week.  They were pumped up.  But beware a letdown; and don't overreact to last week.

KANSAS CITY 6.5 over Houston.  My pick:  CHIEFS.  That defense and their solid, consistent play will keep them rolling over the beat up, confused Texans.

DETROIT 2.5 over Cincinnati.  My pick:  LIONS.  They've played well at home; as long as they have Calvin Johnson, even as largely just a decoy, that offense should be able to score.

MIAMI 7.5 over Buffalo.  My pick:  DOLPHINS.  They should be able to get rolling again against the undermanned Bills.  Thad Lewis last week as the Buffalo QB wasn't bad; but going on the road in the NFL is a different animal.

WASHINGTON pick 'em vs Chicago.  My pick:  BEARS.  Two teams you're not quite sure about.  But what dominates my thinking here is this:  RGIII just isn't the same, and look for the Bears to take advantage of that.

PHILADELPHIA 3 over Dallas.  My pick:  EAGLES.  Simple--the Cowboys are on the road, where they haven't played that well this season; they're injured--no DeMarcus Ware, no DeMarco Murray; and they're following a win...when they haven't shown yet they can play consistent football.  Nick Foles has played well for the Eagles.

CAROLINA 6.5 over St. Louis.  My pick:  PANTHERS.  Really both teams looked good last week; I think it's time though for the Panthers and Cam Newton to put something together--look for them to roll again.

ATLANTA 7 over Tampa Bay.  My pick:  FALCONS.  I know, Atlanta is down, and injured...but remember, they're playing the Bucs.  Matt Ryan will find a way.

San Francisco 4 over TENNESSEE.  My pick:  49ERS.  Look for Frank Gore and Vernon Davis to have good games again; perhaps the 49ers are returning to form.

GREEN BAY 10 over Cleveland.  My pick:  PACKERS.  They're the better football team; they usually take care of business at home in games like this.

PITTSBURGH 2 over Baltimore.  My pick:  STEELERS.  I'm not sure the Steelers are back; obviously for them getting a win was a big deal.  But mainly the Ravens just aren't the same; and offensively they are not clicking.  Bad news when you have to go into Pittsburgh and play a revived Steelers team.

Denver 6.5 over Indianapolis.  My pick:  BRONCOS.  This will be a competitive game with a lot of emotion; I expect Peyton Manning to play well, and I don't see the Colts offense quite being able to keep up.

NY GIANTS 3.5 over Minnesota.  My pick:  GIANTS.  The Giants aren't going to lose every game; they're not THAT bad.  And the Vikings--going with Josh Freeman so soon?  He hardly knows their system.  There are bound to be glitches.

Thursday, October 17, 2013

MOEBIUS SYNDROME IN THE NEWS

Just in case you have not seen this.  This story comes from the UK:

****************************************************

The parents of a Bucks toddler with a rare incurable condition hope a fundraising event they are holding will help get answers for them and other families.
Eight-month-old Isabella Young has Moebius Syndrome, which means the left side of her face is paralysed, she cannot smile and has to be fed through a tube.
It also means the Wing youngster has poor hearing and struggles to move her eyes from side to side.
Isabella was born with the condition but it took doctors several weeks to diagnose her because so little is known about it.
Now her parents, Sara Hill and Mark Young, are organising a day of activities and events to raise money for the Moebius Research Trust.
Isabella also has a two-year-old sister, Caitlyn, and Miss Hill said dealing with her condition has been hard for the family.
Miss Hill said: “She will never be able to smile or frown, but hopefully she will have a normal life apart from that.
“She needs a team of 11 different specialists that help her.
“She has different doctors for her eyes, ears, feet.
“We have to spend a lot of our time in hospital.
“It has been hard, especially having another young child as well.”
The family are organising the fundraising event for Isabella’s first birthday on February 8.
It will include stalls selling goods, a raffle, an auction, music and refreshments.
The family are hoping businesses from the area will donate prizes so they can raise as much money as possible for the charity.
Miss Hill said: “Hopefully if we raise lots of money they can maybe one day give us and other families some more answers about this condition.”

***********************************************

I hope they have great success!

Wednesday, October 16, 2013

BULLYING UPDATE

There may be new sources, new places from which bullying can occur.  Naturally they are online.  They can have deadly consequences.  Read on:

*****************************

(CNN) -- "Why aren't you dead?"
"You should die."
"Wait a minute, why are you still alive?"
"Go kill yourself."
It's impossible to comprehend another human being, let alone a child, sending such hateful messages to another person, but according to Polk County Sheriff Grady Judd in Lakeland, Florida, these messages are all too real.
They were sent to 12-year-old Rebecca Sedwick, who ultimately jumped to her death in September, he said. The messages didn't come via the social networking sites many of us are familiar with: Facebook, Twitter or Instagram. They were sent via newer, lesser-known social applications called Ask.fm and Kik, according to Judd.
"These apps are free, and as a result ... you can either go up anonymously or create a fictitious identification, and you can torment other children, and it is frightening to see that occur," the sheriff said.

And now, two girls, ages 12 and 14, are charged with felony aggravated stalking in the case, the sheriff told CNN Tuesday. "We take bullying and cyberbullying exceptionally serious in this county and always have," he said in an earlier interview.
Tricia Norman, Sedwick's mother, thought she was doing everything she could to protect her daughter from the bullying she was experiencing. She sent her to a different school and closed down her Facebook page, according to the New York Times.
She had no idea her daughter was using apps such as Ask.fm and Kik, and was being tormented on the new platforms. "I had never even heard of them; I did go through her phone but didn't even know," she told the Times.
"Even though (Rebecca) was separated from the bullies because she was in a different school ... ultimately they were able to get back and I don't know if it's pick at each other but certainly say hateful things," said Judd, whose office is investigating the case.
'Parents don't know about them'
In conversations with law enforcement, educators, bullying experts and parents, it's clear that while parents may be getting up to speed on some social networking sites such as Facebook, Twitter and Instagram, there are plenty of other platforms popular with tweens and teens that parents don't know.
In addition to Ask.fm and Kik, there's Voxer, which is a walkie-talkie-type app for messaging, and Snapchat, which allows the sender to set a time limit for how long recipients can view their photo, text or video messages. (Check out our gallery above for other sites your teen might be using!)
"The biggest part of these sites is parents don't know about them," said Sue Scheff, author of the book "Wit's End: Advice and Resources for Saving Your Out-of-control Teen."
"What happens is a new site, we won't find out about it until a tragedy happens but the kids know about it," Scheff said. "It's as simple as that. No one really knew a lot about Ask.fm until Rebecca died."
How children are using the sites is a concern for parents and educators across the country. Brian Lidle, the principal at Ann Simpson Davis Middle School in Dublin, Ohio, said he's seen as many as a dozen cases of student harassment on Kik during the past several months.
"It's just a very difficult thing to see, a child being harassed by nameless, faceless people and feel ganged up on," Lidle said. He said that the school has gone to the authorities but that Kik has not shared information about who is behind the harassing accounts.
"We were very frustrated at that point, so what we decided to do is really get the parents in the mix," Lidle said. "And as we get information in, I've been sharing that with our parents through our e-mail list service and just to make sure they know what apps are out there, what's happening to them."
In response to an interview request from CNN, a Kik spokesman said the Canada-based company "actively cooperates with law enforcement agencies all over the world to help ensure the safety of our users."
"The safety and well-being of our users is extremely important to us," spokesman Bob Patterson said. He said the site has added new features over the past few years, such as the ability to block other users without revealing they've been blocked. The company also developed a parent guide to provide information about "how parents can help their teens ... have a great (and safe) experience on Kik."
"Kik has policies in place to help us respond in the best way possible when something is reported to us by one of our users, or if we are contacted by law enforcement," Patterson added.
As for Ask.fm, in a statement, a spokesman said that in light of recent events, the Latvia-based company is working with online child safety expert Annie Mullins to review and update its safety and privacy policies to ensure that its "abuse and inappropriate content reporting systems are among the most effective in the industry."
"We are committed to doing everything we can to protect our users and stamp out bullying or any other kind of abuse. Sadly bullying can take place anywhere -- on or offline -- so it is important we, parents and users work together to fight it," the statement said.
"If a user sees something that isn't appropriate before we do, we would ask that they help us stand up to bullies by reporting it. Any complaints made about this kind of abuse are prioritised automatically and will be dealt with immediately."
Teens want to be 'validated'
Why are kids downloading these apps? Sameer Hinduja, criminology professor at Florida Atlantic University and co-director of the Cyberbullying Research Center, says part of the appeal of platforms like Ask.fm -- where you create a profile and allow people to ask you questions -- is the need for affirmation.
"You need to be validated when you're a teenager because you are wondering if you're turning out OK, and so these sites completely meet that need," Hinduja said. "Because it's like, 'This is so great. Someone asked me a question. Someone took the time to visit my profile ... and like my picture and leave a comment.'
Kids don't want to hear us preach and lecture about all of (technology's) evils. They will immediately tune out.
Sameer Hinduja, co-director of the Cyberbullying Research Center
"I understand why kids do it, but there's way more negatives than positives that could possibly come out of it, and if I were raising a son or daughter, I would be like, 'Why do you care so much about people asking you these questions and demonstrating interest in you this way, because it opens you up for more harassment,' " said Hinduja, co-author of "Words Wound: Delete Cyberbullying and Make Kindness Go Viral," a book for teens to be released in December.
If you are a parent and you are slightly freaked right now, I can relate. I can't even imagine what apps, sites and platforms will be around when my kids, who are 5 and 7, are in the middle and high school years.
But Hinduja, whose site has numerous resources for parents, says parents can feel empowered rather than overwhelmed by being as actively involved in their kids' online lives as they are in their offline lives. That means being familiar with the technology but not necessarily declaring sites like Ask.fm and Kik off-limits.
"Kids don't want to hear us preach and lecture about all of (technology's) evils. They will immediately tune out," Hinduja said.
The better approach, he said, is to embrace the latest technology and strike up conversations with your kids about it, asking them about stories of bullying and harassment in the news.
"Constantly having these conversations with kids so that they know their parent is not oblivious to these issues goes such a long way," he said.
Lidle, the middle school principal, agrees and encourages parents to plunge fully into their kids' online world.
Stay in touch!
Don't miss out on the conversation we're having at CNN Living. Follow us on Twitter and Facebook for the latest stories and tell us what's influencing your life.
"This is not our world that kids are operating in," Lidle said. "They call us digital immigrants. We have to immerse ourselves in what's going on in their world, as uncomfortable as it is. Our kids are at stake, and we cannot drop the vigilance of knowing what's going on in their worlds."
Polk County Sheriff Grady Judd said parents should also keep open communication with their kids' friends.
"A lot of times, you'll hear from your children's friends before you hear from your own child," he said.
'Say those few kind words'
Scheff, the parent advocate and author, believes parents and educators can also teach our kids to be "cybershields" for other children.
She wonders what might have happened if any of the 15 or so kids believed to have been cyberbullying Rebecca Sedwick decided to protect her instead.
"Wonder if they decided ... 'Hey listen, we can do something to be kind to this girl. Let's say ... your hair looks nice today. You look pretty today. Don't listen to these girls. You have a reason to live. You don't have to do this. ... Don't think you have to end your life,' " Scheff said.
"All it would take is a few words in the opposite way, and that's what (kids) need to learn, how to say those few kind words."

*************************************

Tuesday, October 15, 2013

FOR MOEBIUS MOMS AND DADS; TAKE CARE OF YOURSELVES

Does the below ever describe any of you?  If so, like I say:  take care of yourselves.  Taking care of a child with Moebius can be hard.  Of course, all of you would do anything for your Moebius child, and you do it every day.  But it can be hard.  Be sure and take care of yourselves, too--the below describes why:

********************************

A child’s serious illness can cast a very long shadow across a family, often for years after the crisis has passed.
A mother sat in our clinic recently, crying because her older child was having trouble in school. She blamed herself. A couple of years ago, her younger child had been very sick, and she felt she had been so consumed with worry — at the time and ever since — that she made mistakes parenting the older child. Behavioral and academic problems were the result, she insisted, and she would not be dissuaded.
I wondered whether she was distraught at least partly because the hospitalization of her youngest still frightened her — even though the child, now fully healthy, was running around the room. Or maybe — I only thought about this later — she was crying because any medical setting, with doctors and nurses and medical sights and smells, brought back intense emotions.
Parents can be haunted by a child’s illness or injury. At the time, they are faced with the terrifying truth that a child is in danger or in pain. When the normal stress responses of the parents play out in extreme cases — and when they continue well beyond the child’s illness — additional harm can come to the family. The emotional trauma of the experience, the parental equivalent of coming through the wars, can echo for years.
Researchers who study parental stress tend to reach for the oxygen-mask metaphor: if you don’t breathe yourself, you aren’t going to be able to take care of your child.
“Parents need to feel well enough that they can then be there for their child, their other children,” said Nancy Kassam-Adams, a psychologist who is the director of the Center for Pediatric Traumatic Stress at Children’s Hospital of Philadelphia. “The hardest thing is self-care.”
Dr. Kassam-Adams is the lead author of a new review of post-traumatic stress in both children and parents after the children were injured, which concludes that about one in every six children, and a similar percentage of parents, experience significant, persistent symptoms. They may have intrusive and distressing memories and dreams, or continue to avoid people or places that evoke the circumstances of the injury, or struggle with mood problems, including depression. If untreated, this can damage the child’s emotional and physical recovery.
Research into the effects of parental stress developed as pediatric cancer treatment claimed more and more success stories, medical victories that gave children their lives back. Clinicians and social workers — and parents themselves — began asking questions about how to help families continue on with those triumphantly recovered childhoods.
It helped, in part, to tell parents that they’d been enlisted in a war, said Anne E. Kazak, a pediatric psychologist and co-director of the Center for Healthcare Delivery Science at Nemours Pediatric Health System in Wilmington, Del. Parents connected to this metaphor: “You’ve been part of the war on cancer, the battle fighting it,” she said.
Some of the strategies and insights gained from this body of research are already visible in most children’s hospitals: a place for parents to sleep, even in the intensive care unit; including parents in so-called family-centered rounds; a staff attuned to interpret a parent’s extreme behavior as a cry for help, rather than a source of irritation and extra work.
But what happens after children are out of the medical danger zone? Many parents continue to experience the physical symptoms of stress — the racing pulse, the dry mouth. They continue to flash back to the moment of the cancer diagnosis, the moment of the very premature birth, the moment of the accident.
“It’s my belief a parent who’s traumatized is always expecting the other shoe to drop, will always be scanning the horizon,” said Dr. Richard J. Shaw, a professor of psychiatry at Stanford.
In an article published this month in the journal Pediatrics, Dr. Shaw and his colleagues showed that a simple preventive intervention could significantly reduce the levels of traumatic stress and depression experienced by parents with premature babies in intensive care. These parents — watching their improbably tiny babies struggle in one of the most high-tech and unsettling settings in medicine — are known to be at high risk for severe stress symptoms, including flashbacks and nightmares, anxiety and avoidance.
“The hope for our study was that if we could reduce parental trauma and anxiety, it might help parents as their kids got older,” Dr. Shaw said.
He and his colleagues used many techniques from cognitive behavioral therapy. Parents learned about the ways that stress commonly manifests, and about techniques to cope, like muscle relaxation. They also learned ways to understand and describe what was happening to them.
“Cognitive restructuring techniques help people reinterpret and pay attention to the positive and not catastrophize, developing a trauma narrative of their experience,” Dr. Shaw said.
One message for doctors is to go on asking about the past illness and possible related symptoms, and to make sure that families who are struggling get referred to mental health services where people have experience with traumatic stress.
“As parents, we want our kids to be safe,” Dr. Kassam-Adams said. “Once you’ve been through this, you know they will never be 100 percent safe, and it’s hard to stop thinking about it.”

***************************************

Monday, October 14, 2013

GOOD NEWS

Sometimes television can be a vehicle for raising awareness:

***********************************************

Text Size  A  A
Twice as many characters with disabilities will appear on broadcast television this year as compared to last, a new report finds, though they still account for just 1 percent of those depicted.
Max Burkholder stars as Max Braverman on NBC's
Max Burkholder stars as Max Braverman on NBC’s “Parenthood.” The character, who has Asperger’s syndrome, is one of eight with disabilities expected to appear regularly on broadcast television this season. (Joe Pugliese/NBC)

Out of 796 characters appearing regularly on 109 scripted, prime-time shows this year on ABC, CBS, NBC, Fox and The CW, eight have disabilities, up from four last year.
The findings come from an annual analysis of diversity in television programing conducted by GLAAD, a media advocacy organization for the gay and lesbian community. The report looks at the number of characters representing various minority groups — including those with disabilities — on shows scheduled for the 2013-2014 television season, which just began.
Despite the increase, advocates lamented the fact that actors with disabilities are still rarely cast to play the parts that do exist, particularly on broadcast television.
“When it comes to broadcast television, characters with disabilities are mostly represented by the non-disability community, while casting for disability roles on cable television is certainly more progressive: at least half of all scripted characters on cable with disabilities are portrayed by performers with disabilities,” said Anita Hollander, chair of the actors’ union SAG-AFTRA’s National Performers with Disabilities Committee, in the report which her group helped GLAAD prepare.
Characters with disabilities who are expected to appear this season include Max Braverman who has Asperger’s syndrome and his mother who’s recovering from breast cancer on NBC’s “Parenthood,” characters on Fox’s “Glee” and NBC’s “Ironside” who use wheelchairs, a character with Parkinson’s disease on NBC’s “The Michael J. Fox Show,” a father who is blind on NBC’s “Growing Up Fisher” and characters using prosthetic legs on ABC’s “Grey’s Anatomy” and CBS’s “CSI: Crime Scene Investigation.”
As the percentage of characters with disabilities increased, the GLAAD report found that ethnic diversity on television has remained steady while there have been declines this year in representations of gender and sexual orientation on broadcast television.
“Overall, representation on prime-time broadcast television continues to not accurately reflect the diverse American population,” the report indicates.
***************************************

Friday, October 11, 2013

FRIDAY FOOTBALL PICKS!

This time I'll focus just on NFL picks.
Last week, my college and pro picks combined got me a 9-8 record.
For the year, I am 38-45-1.
Still time to get over .500!!

NFL PICKS

Cincinnati 7.5 over BUFFALO.  My pick:  BENGALS.  I doubt E.J. Manuel will play for the Bills.  Even if he does,, he won't be 100%.  That Bengals defense continues to improve.

DALLAS 5.5 over Washington.  My pick:  COWBOYS.  Both teams have issues on defense.  But I continue to wonder if RGIII is at 100%; and I just don't see the Redskins being able to slow the Cowboys and Tony Romo down much.  Look for the 'Boys to outscore 'em.

DENVER 27 over Jacksonville.  My pick:  BRONCOS.  Wow--so many points; such a big spread.  Usually you stay away from that.  But the way the Broncos offense is clicking, I think they can cover this; indeed, you have to expect them to.

Detroit 2.5 over CLEVELAND.  My pick:  LIONS.  The key here is whether Calvin Johnson plays or not for Detroit.  If he does, I think offensively they will outscore Cleveland...and I'm betting, based on what I've read, that he'll play.

Green Bay 2 over BALTIMORE.  My pick:  RAVENS.  A tough one.  I think the Packers are a good team.  Are the Ravens really still the Ravens?  After that game in Buffalo a couple of weeks ago, one had to doubt.  But last week's win in Miami was impressive.  And the Ravens have played well at home this year so far.  So it could be another tough loss for the Pack, who've played a demanding schedule.

HOUSTON 7.5 over St. Louis.  My pick:  TEXANS.  I think Matt Schaub hit bottom last week.  He'll start to come out of it this week against the Rams, who have not played well on the road all year.

KANSAS CITY 9 over Oakland.  My pick:  CHIEFS.  That defense is very solid, and I think they'll be able to contain Terrelle Pryor, as well as capitalize on the mistakes made by the always-sloppy Raiders.

MINNESOTA 2.5 over Carolina.  My pick:  VIKINGS.  Seemed to me Matt Cassel gave the Vikings a spark in their last game.  They're also helped by the fact that they play the very inconsistent, can't-seem-to-get-it-together Panthers.

NEW ENGLAND 2.5 over New Orleans.  My pick:  SAINTS.  Tough one--could go either way.  But I suspect Rob Grontkowski will not play again this week; that Patriots offense is still struggling a bit.  Drew Brees isn't, and this Saints team has already won tough games on the road.

NY JETS 2 over Pittsburgh.  My pick:  JETS.  Wow.  Who'd a thunk this kind of pick would be coming down the pike at the start of this season?  But the Jets defense is tough; the Steelers just seem to be in a mess, with little improvement in sight; and did you know--the Steeler D doesn't have a single takeaway this season?  Look for the Jet defense to get more, though.

Philadelphia 1 over TAMPA BAY.  My pick:  EAGLES.  They  just seem to have so much more firepower, and the Bucs seem to be a divided team that's still all messed up.

SAN FRANCISCO 11 over Arizona.  My pick:  CARDINALS.  San Francisco will win.  But the Cardinal defense is much improved, and will keep this game closer than 11.

SEATTLE 13.5 over Tennessee.  My pick:  SEAHAWKS.  Seattle will bounce back after last week's tough loss; Ryan Fitzpatrick as the Titan QB will struggle against that tough Seahawk defense.

Indianapolis 1.5 over SAN DIEGO.  My pick:  COLTS.  Probably a close game, but San Diego has injuries on their O-line, and Andrew Luck will find a way to get it done late again.

Thursday, October 10, 2013

I-JUST-THOUGHT-THIS-WAS-INTERESTING DEPT: FOR MOEBIUS MOMS AND DADS, AND REALLY FOR ALL PARENTS

Does it "get easier" as your kids grow up and get older, can handle more things by themselves?  Will it get easier, less tiring, less exhausting?  I catch myself thinking that and saying that.  Do you other parents, too?  Ah, but--is that really true?  Will it get easier?  Here's a very different viewpoint--and you know what, I think she might be right:

**************************

One of the great fictions embraced by new parents, mostly out of desperation, is the following hope: “It will get easier when . . .”
The “when” can be any number of things. When they sleep through the night. When they can dress themselves. When they go to school.
Go ahead believing that if you want, but I’m here to tell you it simply isn’t true.Every parent imagines the pressure will ease with the next milestone. I remember thinking there was nothing more difficult than leaving my 6-month-old twins when I returned to work. A far wiser, veteran mother disabused me — perhaps a bit harshly — of this notion.
“It’s so much harder,” she told me, “when they can talk and they say things like ‘Please don’t go to work, Mommy.’ ” She was right.
And so it is with every stage.
You can’t wait until your family room is no longer cluttered with bouncy seats, mechanical swings and play mats. Until they are replaced by tiny Lego blocks that guarantee you won’t walk barefoot in your house for the next three years.
You can’t wait till they can dress themselves, and then you have to cope with what they decide to wear.
You can’t wait till they’re no longer begging to be read “Goodnight Moon,” until you have to bribe them to tackle their summer reading.
You can’t wait to be finished with the elaborate, expensive birthday parties at indoor soccer fields or places where everyone can dress up as princesses. Except those two-hour extravaganzas give way to sleepovers. Eighteen hours of a dozen 10-year-olds sleep-deprived and sugared up is no parent’s idea of fun.
It’s not that each stage is harder than the previous one. That’s certainly not the case. It’s infinitely easier to tell a child to get dressed than to wrestle a long-sleeve shirt onto the squirming arms of an 18-month-old. But every stage comes with a trade-off you don’t think about while you’re anticipating how great the next phase will be.
Having sons who can drive has allowed me to largely retire my chauffeur’s cap. Their ability to get themselves to school means it’s possible for me to make it to an 8 a.m. yoga class at work. Ommmmm.
But last week I received this text message: “Mom, we got hit on our way to school. We’re okay; some damage. Car that hit us drove off.”
So here’s the lesson, for new parents and, yes, even not-so-new-parents. When asked “What’s the best stage of childhood?” the answer should always be “This one.” That goes even for the terrible twos and the tough teenage years. Because your children will quickly leave whatever phase they’re in and move onto another one. And once it’s over, it’s over for good.
After all, the words “A comb and a brush and bowlful of mush and a little old lady whispering hush” are enough to set on edge the teeth of just about every toddler parent, who, no doubt, is convinced that Margaret Wise Brown was some demon-woman hellbent on turning parental brains to mush. Years later, you’ll come across the book, perhaps a little worn from all those nights of reading, tucked away in a box somewhere. And you’ll pull it out and turn the pages, remembering the small body snuggled in the crook of your arm.
You just might find yourself wishing for one more night like that.

**************************************

Wednesday, October 9, 2013

MORE ON BULLYING

We talk about bullying, and the problem it poses in this society, some on this blog.  But it's also important to think about this:  do we sometimes overuse the word?  Do we sometimes label things as "bullying", which in fact are not?  We don't want to overdo things or dilute the meaning of the word.  We want to focus on true bullying, and nothing else.  This recent piece from CNN discusses this further:

****************************

In the last few months, the word rippled through news reports of tragic teen suicides in Connecticut, New York, Nova Scotia and Britain.
It's the same word sometimes used to describe the way reality TV stars treat one another on camera, or how unfriendly office mates interact or why grade school pals stop getting along.
Every parent, teacher and child knows the word: "bullying." But this month, as schools and communities launch fresh campaigns around National Bullying Prevention Month, some are urging more precise use of the B-word.
"Bullying," some researchers say, has been misused and abused in the last few years -- too casually uttered about every hurt, slight and fight, too frequently used in place of "teasing" or "fighting," too often brought up before there's proof it happened.
The very word, some say, has been bullied.
"By calling everything bullying, we're actually failing to recognize the seriousness of the problem," said Elizabeth Englander, a professor of psychology and founder and director of the Massachusetts Aggression Reduction Center at Bridgewater State University. "It's one of the unfortunate side effects of doing an awareness campaign ... everyone wants to adopt it."
Don't miss out on the conversation we're having at CNN Schools of Thought. Follow us on Twitter @CNNschools or on CNN Living on Facebook for the latest stories and to share your perspective.
It began a few years ago, as horrifying stories of bullying hit the media and serious awareness began to spread. Educators, lawmakers, parents and children all tried to make sense of it, even as it evolved with the latest social network. But along the way, people sometimes confused bullying with the unfortunate -- but normal -- moments of angry, thoughtless or hurtful behavior.
Actual bullying, many educators and social scientists say, is intentional, repetitive abuse by a powerful person toward a less powerful target.
But not everyone defines it the same way: Although most states have bullying laws on the books, according to the Education Commission of the States, it's handled differently around the country. New Hampshire's law specifies that an act need occur only once -- not multiple times -- to be bullying. Nebraska's law calls on local districts to create bullying policies. Several states recently added provisions to cover cyberbullying -- bullying or harassment through technology. Laws in Massachusetts and New Jersey detail how educators should prevent, report and investigate bullying.
Say the word in almost any school these days, and it will get a quick reaction. In many cases, advocates said, that's helpful. But sometimes, when it's not really bullying, kids miss out on a chance to learn to cope with minor conflicts on their own.
"The label 'bullying' is really incendiary," Englander said. "It ratchets everything up emotionally. It makes it hard to really address, rationally, what the best course of action is."
The people hurt most by the overuse of "bullying," Englander said, are young people most desperate for a solution -- those in the midst of very real, traumatic instances of bullying, students whose pain might be overlooked in a crush of reported cases.
"Being deliberately isolated and laughed at cruelly every single day can be devastating socially and academically, because the target must both endure the present and constantly dread the future," Englander wrote in the book "Bullying and Cyberbulling," released this month. "It's this unrelenting cruelty and the callous nature of such an environment that is watered down when we include every social slight or quarrel under the bullying rubric."
"If everyone's a victim," she wrote, "then no one's a victim."
Still, some educators and parents worry that even scaling back on the word "bullying" could put a chill on training and conversations about bullying -- and quash the newfound courage some have found to stand up against it.
'It wasn't all that simple'
Even after years of training, it can be hard to untangle the threads of a possible bullying case.
How to stop bullying
Coach suspends entire football team
California school to monitor kids online
Expert: Cyberbullying can be final straw
Becki Cohn-Vargas, an educator for more than two decades, recalled how conflicts between students were never as black-and-white as they seemed at first. A child who bullied might express remorse, then relapse. A girl would complain of bullying by a child she'd once targeted. LGBT students in a school known for its kind atmosphere would quietly admit to daily torment. Religious students were targeted, and secular students, too. All over the playground and lunchroom, students might freeze out another child, demeaning him without saying a word.
To identify a child as a bully or victim was difficult -- and dangerous.
"As a principal, parents would come to my school and you'd kind of dig in, and it wasn't all that simple," Cohn-Vargas said. "It's not like there are bad bullies and good kids. Every kid is able to do some kind of bullying behavior."
People should be diligent about how they use the word bullying, Cohn-Vargas said, but that doesn't mean they should stop talking about it. As the director of Not in Our School, she now advocates creating "identity safe" schools. The idea is to prevent bullying and create a positive learning spaces by teaching kids about each others' cultures and encouraging them to step up if they believe someone will be hurt by another person's actions.
Englander, of the Massachusetts Aggression Reduction Center, suggests teachers and parents talk with students immediately if they see a behavior that violates social norms; whether it's the only time it has happened, or it's part of a bullying situation, young people need to hear right away that it's not OK to whisper about others or tease people, for example.
But even schools that feel safe will sometimes experience fist fights, tearful teasing -- and bullying. After many years of research and practice, Cohn-Vargas now knows she shouldn't respond to them all the same way, and that bullying prevention training has to be ongoing.
"It's not a one-shot assembly or learn the rules thing," she said. "You have to have a really good understanding of the definition, and everyone has to know how to respond."
It's one thing to train teachers and school staff members, but it can be tough to train people outside the school, especially parents.
"Nothing was bullying 25 years ago. It was kids being kids. Not saying it was right, but parents thought it was part of growing up," said Kevin Quinn, president of the National Association of School Resource Officers. "Now we see a lot of parents trying to generalize what bullying is -- any time kids do something to each other, let's call it bullying and deal with it that way."
At the Arizona high school where he works, they get more reports of bullying than they once did, but they also spend time researching whether they're really onetime scrapes, minor offenses, criminal activities that should be handled by police or acts of bullying that need to be reported to administration.
"The last thing we want to do is start turning every single kid in the school into a suspect," he said. "You've got to train teachers, staff, get information to parents. The definition (of bullying) is only as good as the people that know it."
'Not a word we're afraid to use'
Susan Guess now knows the definition by heart, for reasons she never could have imagined.
Just a few years ago, neither Guess nor her daughter, Morgan, thought they needed to know much about bullying. She was a fixture in her daughter's classroom. They were close, always talking. If there was ever a problem, she was sure Morgan would tell her.
But when Morgan entered third grade, Guess began to notice a few changes -- little things, like how Morgan walked past her friends to spend time with one girl, or how that girl always seemed to lead Morgan around. Morgan mentioned nothing, and at first, Guess didn't ask. When she finally did, Morgan was ready to talk.
The girl was pinching her and pulling her hair, Morgan said. She might elbow her in the back one day, and hold her hand the next. She wouldn't let her play with her other friends. If she complained, Morgan feared it would get worse.
The girl wanted to be her friend, Morgan explained, but she didn't know how.
Meanwhile, Morgan had grown anxious and depressed. She began to have stomach spasms, and to struggle more academically. The realization made Guess felt a little ill, too.
"Our schools spent time talking about the issue, but she did not know -- and I had not equipped her -- with the skills she needed to stand up for herself," Guess said, recalling those hard months two years ago.
Guess worked with the school to separate the girls, and the physical bullying mostly stopped. Guess would still sometimes find the child trying to block Morgan -- "a power play" -- or inserting herself among Morgan's friends.
Eventually, the girl changed schools.
Guess realized, though, that just as her daughter struggled to tell an adult what was happening, parents might not realize that their children were being bullied, or might worry they'd be seen as a troublemaker.
The mother and daughter launched the Guess Anti-Bullying Foundation to help educate their western Kentucky community about what bullying looks like, and how to create kinder, more empathetic schools. It can be difficult: Schools can't label a bully with the "Scarlet B," she said, but it was hard to feel any sensitivity toward the girl who'd hurt her daughter.
She's grateful for the education she's received on bullying, but doesn't believe the word is overused. You have to say it, she said, to help children understand which relationships are healthy, which ones aren't, and how to help a person in need.
"A child is suffering, and we spend so much time saying, 'This is bullying, this isn't bullying,' " Guess said. "If we've gained anything, I hope we're better people, more sensitive to our interactions with other people."
At age 10, Morgan is now doing wonderfully, Guess said. She's stronger academically, less shy than before and has been honored for her work to help people understand bullying. Bully, Guess said, "is not a word we're afraid to use anymore."
Last month, as Guess walked through the hallway of her daughter's school, she noticed a handwritten poster hanging on the wall.
"What is a bully?" it said in a child's writing, a small heart atop the "I."
"A bully is a bigger or stronger person that hurts or frightens a smaller or weaker person on purpose," it answered in rainbow letters, "over and over again."
Guess snapped a photo, and posted it on her anti-bullying foundation's Facebook page: "Every single act of education," she wrote,"makes a difference."

*****************************

Tuesday, October 8, 2013

WE CAN'T HIDE, AND WHY WOULD WE WANT TO?

So this musing of mine comes from something I read from one of my friends on Facebook the other week.  My friend is a Moebius mom.  Her wonderful daughter, who is ten years old now, has Moebius Syndrome.  And the mom was proudly telling us how her little girl was going to stand up and make a presentation on Moebius to her class.  Mom was proud.

As she should be.  And then Mom mentioned something else.  She said that some of her friends have been questioning why they were doing this.  Why was her little girl talking to her class about Moebius?  "Why draw attention to it?", they wondered.

Well, to my friend's credit, she would have none of this; and it didn't even appear to bother her too much.  Some people just don't understand.  But you know, reading what some of her friends thought kind of stuck with me.  And maybe others think like they do; maybe others who know nothing about Moebius wonder the same thing.  Yes, "why draw attention to it?"  Well, if there are people who wonder about that, let me explain why:

1] Whoa, people--it almost sounds like, when you wonder why we might draw attention to something, that maybe you think Moebius Syndrome is something to hide, is something to be ashamed of.  Guess what--it isn't.  It's simply a physical difference.  Everybody has some kind of physical difference--something unique--about them, and there's nothing wrong with that and nothing to hide.  Instead of hiding, we need to build awareness and educate people about how ALL should be accepted, whatever their difference, whatever their disability.

2] And anyway, Moebius Syndrome is there.  People can see it.  You can't hide it, nor should you want to.  Why pretend it isn't there?  By doing so you can create an elephant in the room, and there's no point to it.  People are going to wonder.  So educate them.

3] And only by doing so--only by making people realize that physical differences are nothing to be ashamed of, that there's nothing to hide, that being different doesn't automatically mean one must have an intellectual disability (and some people have that assumption and have that prejudice--don't think they don't) can we raise that awareness I mentioned earlier, can we get people to accept everyone else and build a true diversity society.  We've got to show people that diversity is not only about race, ethnicity, and class; it's also about physical differences too.

So hooray for everyone in the Moebius community who seizes the chance to educate others.  And don't let people tell you that hiding under a bushel is the way to go.  Instead, let it shine...right? :+)

Monday, October 7, 2013

AUTISM UPDATE

Many with autism have sleep problems.  And this is interesting because what many call "night terrors" can be associated with Moebius Syndrome.  Read on:

**************************************

Children with autism are waking up frequently and getting less sleep than their typically developing peers, researchers say, and the troubles may contribute to learning and behavior issues.
In a long-term study published online in the journal Archives of Disease in Childhood, researchers found that poor sleep is affecting many children with autism into the tween years.
Researchers looked at data on more than 14,000 children born in 1991 and 199­2 in England, 86 of whom were ultimately diagnosed with autism. Parents were asked about the kids’ sleep habits at eight different points when their children were between the ages of 6 months and 11 years. The children’s intelligence, social and communication skills were also assessed at age 7.
While there appeared to be no difference in the kids’ sleeping habits before 30 months, after that point those with autism tended to get between 17 and 43 minutes less sleep per day. This came as the result of later bedtimes, earlier wake times and frequent waking during the night, the study found.
What’s more, 13 percent of kids on the spectrum woke more than three times per night compared to just 5 percent of typically developing kids, with the problem becoming more pronounced as they grew older.
The differences persisted even when researchers accounted for factors like prematurity, low birthweight, maternal education and social class, the researchers said.
Although it’s unclear what’s causing the sleep troubles, previous studies have suggested that the issue may be related to problems with the production of the sleep hormone melatonin in some children with autism.
“This research emphasizes the importance of assessing sleep disturbances early in children with ASD, to offer support and anticipatory guidance to parents and to consider the use of melatonin to reduce sleep latency,” wrote British and Canadian researchers in the study.

************************************

Friday, October 4, 2013

FRIDAY FOOTBALL PICKS

Here we go--last week was a GREAT week; I went 11-5-1.  Let's keep it going!

COLLEGE PICKS

Arizona State vs Notre Dame in Arlington, TX.  My pick:  SUN DEVILS.  Oklahoma last week was fast, very fast, and that hurt the Irish.  ASU has lots of speed, too.

Ohio State at Northwestern.  My pick:  BUCKEYES.  I'd love to see Northwestern win this game; it would be a great story.  But I just can't see them slowing down that Ohio State offense.

Illinois at Nebraska.  My pick:  FIGHTING ILLINI.  This game is at Nebraska and most are picking the Big Red; but this is my upset pick of the week.  Have you seen Nebraska's defense?  It's horrible.  The Illini can exploit it.

Washington at Stanford.  My pick:  CARDINAL.  You know who appears to be the best team I've seen so far this year in college?  Stanford.  Go with 'em.

NFL PICKS

Carolina 2 over ARIZONA.  My pick:  PANTHERS.  Arizona just hasn't clicked yet; Cam Newton will provide Carolina with the extra oomph they'll need.

New Orleans PICK 'EM at CHICAGO.  My pick:  SAINTS.  The oddsmakers make this one an even game.  I know New Orleans is not quite the same team on the road as they are at home, but I think Drew Brees will make the difference here.

CINCINNATI 1 over New England.  My pick:  BENGALS.  Ah, Cincy--how can you figure 'em?  They looked to be in such great shape after that win over Green Bay; but then they go and lose at Cleveland.  They're an up and down team; but they have the tools.  I see them as being up this week.

Denver 7.5 over DALLAS.  My pick:  BRONCOS.  Not in a total blowout, but I just can't see Dallas slowing Peyton Manning and that offense down (no one else has.)

GREEN BAY 7 over Detroit.  My pick:  PACKERS.  I'm a Lions fan, but--they haven't won in Green Bay since 1991; yes, Green Bay has struggled, but they've had a tough schedule and Aaron Rodgers is still...Aaron Rodgers.  He always seems to play well against the Lions.

Kansas City 2.5 over TENNESSEE.  My pick:  CHIEFS.  Tennessee has impressed this year, but...with Jake Locker hurt and the resulting uncertainty they'll have at QB, you have to go with this solid Chiefs team.

MIAMI 3 over Baltimore.  My pick:  DOLPHINS.  Yes, they lost at New Orleans, but...they're tough.  And I thought the Ravens were the Ravens...but then came last week at Buffalo.

NY GIANTS 2 over Philadelphia.  My pick:  GIANTS.  Both teams are kind of a mess.  But the Giants are due.

ST. LOUIS 11.5 over Jacksonville.  My pick:  RAMS.  I've seen Jacksonville, and they truly look awful.

SAN DIEGO 4.5 over Oakland.  My pick:  CHARGERS.  Look for Philip Rivers to have another good day; he and Antonio Gates have really had a comeback season.

SAN FRANCISCO 6.5 over Houston.  My pick:  49ERS.  Houston seems to have so many tools, but...in the big games (see last week) they just don't seem to get it done.  Meanwhile, the 49ers may be getting back on track.

Seattle 2.5 over INDIANAPOLIS.  My pick:  COLTS.  Because while I have the utmost respect for Seattle, they don't...quite...seem to be the same team away from home.  Meanwhile this appears to be a good, physical Colts team.

ATLANTA 10 over NY Jets.  My pick:  FALCONS.  They'll take advantage of the mistake-prone Geno Smith.

Thursday, October 3, 2013

HEALTH TIP OF THE DAY: EAT RIGHT, SLEEP RIGHT, FEEL BETTER

This is especially for the female members of our Moebius Syndrome network; but honestly everybody could benefit from this.  Eat right and attend to your health, and the benefits flow:

*****************************

I am a huge proponent of feeding our kids well. They are our future. Their little bodies are growing like weeds, and their brains are being fueled by their food. But so are ours.
Our brains might not grow as fast as our children’s, but they are being used and taxed, as are our bodies. We need to feed ourselves just as well as we feed our children.
I have been hearing more and more women in particular who are beginning to suffer seemingly simple health problems, such as fatigue and low energy (even with regular sleep), weight gain, brain fog, insomnia, low tolerance for stressful situations and anxiety. According to James Wilson in his book “Adrenal Fatigue: The 21st Century Stress Syndrome,” it’s estimated “that up to 80 percent of adults experience adrenal fatigue during their lifetimes, yet it remains one of the most under-diagnosed illnesses in the United States.”
So what is adrenal fatigue? In a nutshell, a person overworks her adrenal glands, which are the little glands above the kidneys that produce stress hormones such as adrenaline and cortisol. In prehistoric times, these hormones were valuable for major fight-or-flight events, such as a bear approaching. After the bear retreated, the person would return to her regular routine, which included a good night’s sleep because there was no electricity or laptop to tempt her to burn the midnight oil.
These days, especially in a fast-paced, high-pressure environment like Washington, people produce these hormones not just occasionally but all day long. Rushing kids out the door in the morning when they can’t find a book triggers stress hormones. When you’re stuck in trafficor a work deadline looms, cortisol and adrenaline show up. Worry about finances, job security or a sick parent causes constant stress. Even when kids fight, many parents get that tense feeling of stress. When this happens all day long, the adrenals can become exhausted and will stop functioning efficiently. This taxes many other parts of the body.
And when the day is over, many folks don’t rest and repair enough. (According to a 2006 study in the Journal of Epidemiology, the average person spends just over six hours asleep a night.) We push ourselves relentlessly to do more, to be in contact with everyone day and night. Even on vacation we are attached to a BlackBerry. We constantly feel we should get more done, so we never allow our bodies to emotionally relax or to physically stop producing those chemicals. Many people use alcohol to relax, and, like caffeine, which is often used to stimulate, alcohol is taxing to the adrenals.
The result is a feeling of exhaustion, broken sleep patterns, food cravings, the need to use caffeine and sugar for energy, fat storage, lack of concentration, grouchiness and anxiety. Doesn’t sound pretty, does it?
If you think your adrenals might be overworked, here are a few suggestions:
●Eat regularly, snack healthfully and don’t skip meals.
●Eat within one hour of getting up to restore blood sugar levels.
●Include protein in every meal and snack.
●Skip caffeine and cut out processed sugar, both of which are stimulants that strain the adrenal glands.
●Limit alcohol.
●Get a minimum of seven hours of sleep every night.
●Stick to gentle exercise — hot yoga and strenuous running can be depleting.
●Ask your doctor about herbal adrenal supplements.
●Pick up “Is It Me or My Adrenals?” by Marcelle Pick for more details on the adrenals and the way these little organs affect our health.

********************************

"People, even more than things, have to be restored, renewed, revived, reclaimed, and redeemed; never throw out anyone."--Audrey Hepburn