Friday, May 29, 2015

GOOD NEWS DEPT

Courtesy of Google Inc...read on:

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Google is looking to address the needs of a billion people with disabilities worldwide and it’s putting big bucks behind the effort.
The Internet search giant said this week that Google.org — the company’s charitable arm — is offering up $20 million to nonprofits “using emerging technologies to increase independence for people living with disabilities.”
As part of the initiative dubbed “The Google Impact Challenge: Disabilities,” the company is also asking people with disabilities to suggest problems that they would like to see addressed with the grant money.
Google has already committed funding to two groups — the Enable Community Foundation which links people needing prosthetics with volunteers who use 3D printers to create them at no cost and World Wide Hearing which will use the funds to develop a low-cost kit to detect hearing loss using smartphone technology.
“The Google Impact Challenge: Disabilities will seek out nonprofits and help them find new solutions to some serious ‘what ifs’ for the disabled community. We will choose the best of these ideas and help them to scale by investing in their vision, by rallying our people and by mobilizing our resources in support of their missions,” Jacquelline Fuller, director of Google.org, said in a blog post.
Alongside the monetary commitment, Google said it will work to ensure accessibility of its own products and add new offerings that benefit people with disabilities. The company cited its work developing self-driving cars as well as Liftware, a utensil designed to help people with hand tremors eat more easily, as examples of its existing work in this space.
“Historically, people living with disabilities have relied on technologies that were often bulky, expensive and limited to assisting with one or two specific tasks. But that’s beginning to change,” Fuller wrote. “Together, we can create a better world, faster.”
Advisers for the new project include autism self-advocate Temple Grandin and Catalina Devandas Aguilar, the United Nations’ special rapporteur on the rights of persons with disabilities.
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Thursday, May 28, 2015

MAKE SLEEP, NOT WAR

Sleep issues can be a problem for almost everyone who has Moebius Syndrome--whether you are young, middle-aged, or older.  Persons with Moebius sometimes have difficulty sleeping, and can be affected by occasional bad dreams or "night terrors."  So if you are a Moebius mom or dad, and your young one with Moebius has sleep issues, what can you do?  As the article below contends, for ANY parent whose child has difficulty sleeping, sometimes the best thing to do is...take a step back.  See what you think:

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Parents are given so much conflicting advice on children’s sleep, it’s no wonder the whole family is sleep deprived.
In new parent circles, you can’t swing a lovey without hitting an argument over baby sleep methods. Look into “sleep training” or “crying-it-out,” and you’ll find foreboding warnings about cruelty and lasting harm. Mention attachment parenting or co-sleeping in the wrong crowd and you’re sure to be met with judgment and eye-rolling. One blogger aptly called the parent-to-parent combat over the right way to sleep a “shamefest.”
Baby sleep advice is so polarized it’s enough to baffle a tired parent. It’s not just heated Internet battles, either—even experienced and trusted experts argue over sleep. My partner and I teach classes for new parents and constantly see people trying to piece together the clashing advice.
Last week a mom told the group her doctor recommended she “close the door and don’t go in ’til morning” to train her baby to sleep, while another told her the exact oppositeto soothe and feed the baby on demand through the night. She’d done a hodgepodge of both and felt more hopeless and confused.
One expert will swear by a sleep method, and another will not only disagree, he’ll tell you the first way is psychologically damaging. It instantly becomes an ideological debate. No matter which side they pick, parents are made to feel that they are at fault, like they’ve sacrificed something important.
How did sleep—a basic, natural part of life—become so controversial?
It’s not a new issue. Baby care manuals from the early 1900s had strict guidelines for getting infants to sleep, saying things such as: “all rocking and patting, or giving of a pacifier…ought never to be allowed” or else the baby will be spoiled. The manual popular in 1900, “The Care and Feeding of Children,” says “if the child is simply crying to be ‘taken up,’ it should not be interfered with,” and “it should simply be allowed to cry it out.”
The problem is that sleep advice has been divided ever since. It never found a logical common ground. We’re still talking about sleep in old-school terms—strict and structured, or responsive and soft. Science has moved on, but sleep advice is stuck in the past.
In the 1950s, parenting advice based on behavioral psychology held that actions are modified by consequences: pick up a baby when she cries and she will cry more; ignore the cries and they will go away (early behavioral research was mainly on pigeons and mice, so emotion wasn’t taken much into consideration). This was later countered by attachment research, showing the power of the parent-child relationship. Babies have an innate drive to bond, and they thrive on attunement and response from caregivers. Little babies who are soothed feel secure and safe—that is essential to their development.
Research (and good old common sense) tells us kids thrive when parents are balanced. The best parenting style is high on warmth and high on expectations and structure. This applies to sleep, too. Kids need emotional responsiveness, but they also need us to be in charge, provide consistency and let them practice their skills.
So leaving a baby to cry alone the whole night doesn’t sound right, or even logical. And young babies shouldn’t be weaned purposefully or put on strict feeding schedules—research shows nursing at night is natural and essential to successful breastfeeding.
But as babies get oldertoo much helping and soothing gets in the way, because it overshadows their emerging abilities. Most of the exhausted parents we meet are over-helping. They’re rocking older babies into a deep sleep and tiptoeing out, only to repeat the whole ritual a few hours later; or lying down with kids at bedtime (even though they’d rather not), missing alone time with their spouse and repeating the drill when the child wakes at 3 a.m.
A mom recently described her middle-of-the-night, hour-long bouncing routine with a one-year-old. Like many, she had developed back problems as a result. These are all well-meaning parents trying to do the right thing, many identifying with “attachment parenting.” Many feel guilty for wanting a full night’s sleep.
That’s a clear sign it’s time to change how we talk about sleep. Sleep is not rocket science—it’s innate and universal. Human beings are built to sleep, as long as the environment and habits are right. Most babies can sleep pretty well after six months, when their circadian system has matured (even though some might still feed at night, they can go back to sleep without much fanfare).
There’s no reason for attachment to conflict with this, and why would it? They’re both natural processes. The key is understanding what attachment really means: being attuned to a child’s needs, but also giving her space when she’s ready to master a new skill (such as sleeping). One of the goals of attachment, over time, is independence. When parents over-help, babies get hooked on sleep habits they don’t need. Those habits overshadow the child’s own skills and sleep gets worse instead of better.
We know to help without helicoptering during the day. If your toddler is about to take her first step, would you swoop in and pick her up, just because she looks wobbly? If your son is struggling with a puzzle, would you put all the pieces in for him so he doesn’t have to be frustrated?
It’s not that parents are “too attached,” it’s that we keep recycling an inaccurate definition of the word.
Same goes for sleep—if we do something for our babies that they’re capable of doing for themselves, we take away their chance to grow and progress. Kids will always need our help getting cozy, having the right routine or talking through fears of the dark. But if we expect them to sleep independently, then once they’re comfortable we have to step back and let them be in charge of falling asleep.
My partner and I love to catch parents when babies are little so they can fade their help gradually—pause before rushing in and discern normal baby noises so they don’t jump at every peep—hopefully avoiding the over-helping dilemma altogether.
Often we see parents at a crisis point, though. They have a 9-month-old who wakes every two hours, or a 20-pound toddler they bounce to sleep on a yoga ball (you wouldn’t believe how many we’ve met). Changing such an entrenched over-helping pattern usually means the baby will protest and cry at first.
This is where the attachment-versus-crying debate sparks flames. But again, our job as parents is not to make our kids happy at every moment, or to take away all their frustrations and make everything easy. A little struggle is okay. It’s our job to acknowledge difficult feelings, to hang in there and let our kids know that we’re with them and to let them do what they’re capable of.
Let’s unswaddle this tightly-wound debate. The argument itself is making people tired. The goals of the two sides (good sleep, good emotional health) are not only compatible, they feed each other. If we keep these goals in mind, we won’t scare parents into thinking they’re going to do it wrong. And we’ll all be able to do what we’re biologically programmed to do—get a good night’s sleep.

Heather Turgeon is co-author of the new book The Happy Sleeper: The Science-Backed Guide to Helping Your Baby Get a Good Night’s Sleep—Newborn to School Age. Follow her on Facebook @TheHappySleeper.

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Wednesday, May 27, 2015

MOEBIUS SYNDROME IN THE NEWS

A former college football player with Virginia Tech University, who is now starting a career as a football coach, has a son with Moebius Syndrome; read more about it:

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His body might have been in Brooklyn this spring, getting his football coaching career underway at a junior college, but former Virginia Tech wide receiver Dyrell Roberts’ mind was never far from Virginia.
His infant son, Dyrell Jr. or DJ, has been at Children’s Hospital of the King’s Daughters in Norfolk since being born in November after being diagnosed with Moebius Syndrome, a neurological disorder so rare that researchers are unsure of its exact incidence rate, estimating it to be anywhere from 1 in 50,000 to 500,000.
The condition affects the cranial nerves, so DJ can’t make facial expressions as simple as smiling. His chest muscles are weak, so he has needed the aid of a ventilator to breathe since birth. His cleft palate has made it impossible for him to eat on his own, so he has a feeding tube.
But he’s improving, gaining strength by the day. He’s being weaned off the ventilator and has had eye and chest surgeries to alleviate issues. He’ll have more surgeries as he gets bigger and stronger and, if everything checks out, should soon be able to go to his home in Smithfield for the first time.
It’ll be a homecoming of sorts for both father and son, with Roberts returning to Virginia after getting his nascent football coaching career off the ground at ASA College in Brooklyn, New York — a difficult balancing act in life for a first-time father.
“It’s been hard because you don’t really know what you’re going through,” Roberts said. “You have to get on the Internet and do research and all that and try to figure out what’s at the end of the road? What’s the light at the end of the tunnel? You really don’t know.”
The timing made things difficult. DJ was born Nov. 11. Roberts and DJ’s mother Hillary Gomez knew he was having trouble swallowing before he was born, but there’s no test for Moebius Syndrome. As soon as he arrived, doctors made the clinical diagnosis.
At the time, Roberts was still coaching as a co-offensive coordinator at Smithfield High School. It’s where he was a star four-year starter at running back prior to his time as a receiver at Virginia Tech, where he had 1,363 receiving yards in an injury-riddled career from 2008-12 and remains the school’s career kickoff return yardage leader with 1,577.
After a few tryouts with teams in the Canadian Football League, Roberts joined the Smithfield coaching staff in 2013, working as a deputy sheriff for the Isle of Wight County as well. But he always wanted to get back into college coaching, hoping to stay close to home. A few months after DJ was born, an opportunity to be a wide receivers coach arose at ASA College, a two-year junior college.
After consulting with numerous coaching mentors, including Shane Beamer, Bud Foster, Cornell Brown and Bryan Stinespring from the Hokies and his former position coach at Tech, Kevin Sherman, who’s now at Pittsburgh, he accepted the position and got to work in April.
“Everybody kind of gave me the same advice: if you want to go into it, go full speed into it,” Roberts said. “They said no experience is bad experience.”
It did keep him a good distance away from his son for long stretches of time, however. Roberts had never lived outside of Virginia. Now, he was more than seven hours away at an inopportune time, using his free moments to talk to DJ on FaceTime and coming back at least every two weeks to see him.
“Every time I came back, he got bigger, he got stronger,” Roberts said. “I was always coming back to something good.”
DJ is improving by the day. Weighing only 5 pounds at birth, he’s now closer to 20. (“He eats like a champ now,” Roberts said.) While he once needed to be given 40 breaths per minute on the ventilator, he’s between 9 and 11 now. He can open his mouth enough now to take a pacifier. He’ll need more surgeries — fixing the cleft palate is a significant one — but has a chance to go on to live a normal life.
“As time goes on, the older he gets, the stronger he gets and the more he can do,” Roberts said. “So it’s one of those things where the older he gets, the more he can out-grow everything.”
Still, it’s not without significant costs. Insurance covered a lot of it, but DJ will still need home care that could be expensive.
It’s why Gomez’s sister started a Go Fund Me page, which as of Sunday had raised $4,700. DJ’s godfather is Jordan Eason, Roberts’ best friend and former high school teammate who played offensive line at Air Force. He and his wife Cristina set up a fundraiser at Cypress Creek Golfers’ Club in Smithfield on May 31. Registered groups will golf and items will be auctioned to raise money.
“Being from the town that we’re from, everyone knows everyone,” Roberts said. “It’s almost like a big cookout.”
Roberts’ coaching odyssey, meanwhile, is only beginning. Shortly after returning to Virginia following spring ball, he found out he had been hired as the quarterbacks coach, special teams coordinator and strength and conditioning coach at Earlham College, a Division III school in Richmond, Indiana.
If all goes to plan, he’ll start there in June, continuing to juggle a career with unusual time demands and fatherhood, a difficult task, but one made better by DJ’s improving condition.
“It’s been tough,” Roberts said, “but it gets a lot easier.”

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Wednesday, May 20, 2015

THIS SHE BELIEVES

The below was written by my friend Alli Johnson, a college student who also happens to have Moebius    Syndrome.  It is an excellent, perceptive, profound essay that captures both the challenges...and the triumphs...of having Moebius Syndrome.  Read on--and thank you, Alli, for letting me feature this today:

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THIS I BELIEVE


Hello my wonderful readers,
So my dad is a high school teacher in my hometown, who teaches history and drama. He is one of those people that if you have the amazing opportunity to work closely with hime or to be guided by him, he’ll inspire you to achieve your dreams. He has touched so many lives through teaching, directing and his talent of instilling confidence in others. This post  is inspired by my dad because he has done this project with his students for years and has always encouraged me to do it, and so I am finally doing it. So this is my I Believe piece, dad this is for you. Hope you enjoy. :)
I was born with a mask on, as hard I try the mask will not come off and believe me I have tried everything. It hides the part of me that I love so much, the part that I want the whole world to see. If I could just take the mask off everyone could see the outgoing, funny, intelligent, crazy, caring loving person I am. But no I was born with this mask and I will die with this mask. The mask has a name it’s called Moebius Syndrome, my disability, my obstacles, my demons, my voice being smuggled, my nightmare, my hell. But my mask isn’t all bad it’s good too, my courage, my bravery, my love for life, my sense of humor, my perseverance, my stubbornness, my independence, my unconditional love, my wisdom.
Without my mask my life wouldn’t be the wonderful reality I am living today. Because of my mask I have been blessed with amazing loving people who can see the real me, who are so supportive, caring, and loving of me. They are my life support when the mask is suffocating me and I feel like no one can see the real me or hear what I have to offer to the world. They are the ones who make me forget that I am wearing the mask, who make me realize to just live my life to the fullest and be incredibly happy because they are the only one’s that really matter in my life. They are the ones who remind me to love myself and my life because of their constant unconditional love.
I believe that life gives us all masks, but your decision on how it effects you is up to you. You can either wear your mask with pride and say yes this a part of me but I will not let it define me. Or you can let the mask take over your life, only to see the bad things in life, and nobody should live like that. Living with Moebius syndrome is a struggle on a daily basis, I get tired and frustrated that I have to wear this mask everyday. But my life would be completely different without it, and honestly I really like my life thus far. So yes the mask hides the real me but I believe that I overpower my mask and the people who see who I really am, are the people who will bless my life. So wear your masks with pride and let your amazing self shine through.
Love,
Miss Understood

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Tuesday, May 19, 2015

GRACE AKERS: IN MEMORIAM

Many of you may have already seen this; but in case you have not, please read the below, from the Arc of Indiana newsletter.  It is in memory of Grace Akers, who passed away recently.  She was only a teenager; yet she deeply touched all who knew her.  Read the story below, and remember her...and to keep her memory alive, consider doing for others.  Just call it a "Gift of Grace."  Read on:

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Imagine
Sally Morris, Assistant Director of Public Relations

Sometimes it is the people who no one imagines anything of who do the things that no one can imagine.
The movie The Imitation Game shares the story of mathematician Alan Turing, who works to break the German’s enigma code with help from fellow mathematicians. Turning is portrayed as an individual who may be on the autism spectrum. As a child, he is bullied by his classmates. His one friend gives him hope when he shares with him, “Sometimes it is the people who no one imagines anything of who do the things that no one can imagine.”
As I listened to those words, and learned what Turning went on to accomplish, it made me think of the many people I have met through The Arc, both individuals with disabilities and their parents, who have accomplished things that many would never have imagined.
I think of Ilene Younger Qualkinbush and Dorothy Burnside, the original “lobbyists” for The Arc beginning in the mid ‘50’s when women typically did not enter the halls of the Indiana State House. At that time, there were no supports or services to help families care for their loved ones at home, and Ilene and Dorothy had to make the difficult decision to place their daughters at Muscatatuck State Hospital. Who would have imagined that Ilene would go on to be a founder of The Arc and that together, Ilene and Dorothy would work to pass legislation that led to the system of services we have today.
Who would have thought that Betty Williams, whose school teachers told her she could not take certain classes because of her disability, would go on to serve on the President’s Committee for People with Intellectual Disabilities; or that Melody Cooper, a shy and quiet girl, bullied by classmates who did not understand her disability, would lead Self-Advocates of Indiana.
For many days I have been thinking of Grace Akers, a young lady who left this world too soon, just shy of her 17th birthday. Grace was born with Moebius Syndrome, a condition that primarily affects the 6th and 7th cranial nerves, leaving those with the condition unable to have facial expressions. There were surely those who did not imagine anything of what Grace would accomplish in her short life. But for perhaps those few, how wrong they were to make such an assumption.
Her parents, Joe and Jennifer, shared in a tribute to Grace, “Grace loved playing her guitar, purple and pink, (and) listening to Elvis and Patsy Cline … She worked to teach the world about inclusion for people with disabilities, and she lived her life as a reminder about the message that 'Everyone belongs.' She promoted kindness and courage and tolerance, and she was a source of inspiration to people all over the world.”
Her legacy now is that her family has requested that her life be honored by paying it forward with a "Gift of Grace" by letting the world know that Grace was here and made a difference.
Grace’s legacy, and the continued actions of countless individuals with disabilities and their families, will continue to do things that no one can imagine; and the world will be a better place for it.





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Wednesday, May 13, 2015

I JUST THOUGHT THIS WAS INTERESTING DEPT (AGAIN)

If you are into online dating, what kind of photo might others find attractive; but at the same time--will they trust you?  Read on--and note that apparently smiles, or lack of same, played little role:

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Consider this next time you're agonizing over the perfect photo for your online dating profile: you might be "too hot to trust."
Researchers at the University of Connecticut conducted an experiment to determine how people judged each other based on their online dating profile photos. They presented 671 volunteers with a single photo that was either casual or enhanced and of a man or a woman. Researchers reported that men were less likely to trust women who posted an "enhanced" photo with good angles, good lighting and make-up.
But that didn't stop the men wanting to date those women anyway, said lead study author Rory McGloin, a communications professor at UConn.
"They thought she was more attractive, they wanted to go on a date with her ... but they didn't trust her," McGloin said.
On the flip side, women found men with enhanced photos to be more trustworthy, according to their findings, which is set to be presented at the International Communication Association annual conference later this month.
"Attractiveness of the male served as a halo," McGloin said. "Once they found him to be attractive, they assumed all of the other traits were good as well."
McGloin isn't a psychologist, but he studies how media affects behavior. The students who participated in the study were first-year communications students who were participating for credit. Their mean age was 19, and the age range was 17 to 36 years old, McGloin said.
He noted that his experiment eliminated "relative" attractiveness by only presenting each person with one photo and asking them a series of questions about it. However, he said it wasn't a field study and the participants were "fearless" because their actions had no consequences.

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Tuesday, May 12, 2015

FROM THE I JUST THOUGHT THIS WAS INTERESTING DEPT

How can we teach our children the art of being happy?  Read on:

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When I think about what I want for my children as they grow up, I think of the kind of people I’d like them to become: Adults who are kind, thoughtful and grateful, who laugh often and find passion in life. I hope they surround themselves with whatever brings them joy, that they find a career they love and that they forge meaningful relationships with people who cherish them as much as I do. Above all, I want them to be happy.
As parents, it is our job to guide our children in so many areas. We toilet train them, we teach them self-care and manners, we teach them how to read, what to do in an emergency, how to cross the street safely. We might teach them how to play a musical instrument or a sport we loved growing up. But can we teach them how to be happy?
Mike Ferry, a long-time middle school teacher, father of four and author of Teaching Happiness and Innovation, maintains that we can. Contrary to what many believe, success does not always bring happiness; but research has shown that the reverse is true — happier people are more likely to be successful at school, work, and in their personal lives. Ferry defines happiness as “an optimistic, communal, and disciplined perspective on life.”
The happier we are, the more successful we become. And thanks to the plasticity of our brains, Ferry explains that happiness and innovation can be taught, nurtured and practiced. He goes on to say what Shawn Anchor of The Happiness Advantage has expressed: that when we are in a positive mindset, “our brains become more engaged, creative, motivated, energetic, resilient and productive at work.”
It turns out we can teach our children how to be happy by encouraging certain habits.
The first is gratitude. Teaching children to be grateful in a world of overabundance can seem like a daunting task. It is easy to get sucked into the consumer mentality of society; children are constantly inundated with the idea that more is better and that they need the next new gadget or toy and then on to the next.
But the importance of saying “no” to children in order to instill a grateful attitude cannot be overstated. Help them focus on being grateful for what they already have rather than on what they want next. Another way to teach this is to get into the habit of observing a “moment of gratitude” every day. This may be upon waking up, or as the family gathers around the dinner table. Take a moment to reflect, then go around the table taking turns sharing one thing for which you are grateful. For older children, encourage them to keep a gratitude journal. Practicing gratitude daily can rewire our brains to recognize appreciation rather than to dwell on disappointments. In turn, we will become happier.
Kindness is another skill we can teach our children to help them find greater happiness. Ferry highlights research that has shown a link between the “feel-good” brain chemical dopamine and kindness. Acting with kindness increases the flow of dopamine within the do-gooder’s brain, making him feel happy.
We can encourage kindness in children first and foremost by modeling it within our homes. Be kind, especially during disagreements, and praise even small acts of kindness. Teach tolerance, highlight opportunities to give back to your community and volunteer as a family if possible.
Happy homes can also inspire creative minds. Our brains, and those of our children, are most receptive to new information when we are relatively stress-free, happy and engaged, according to Ferry. That means happiness is crucial for learning and critical thinking. We can inspire creativity by embracing humor, curiosity and open-mindedness at home.
Encouraging creative ideas from children can come in the form of including them in family decisions (such as planning vacations or designing bedrooms). You can also play games that involve open-ended questions to inspire them to think critically. Allowing children plenty of time for unstructured play helps, too. Ferry’s book contains a wonderfully detailed list of suggestions and examples.
We should also celebrate the unconventional people in our lives by talking about how some of the most unconventional people in the world have had great impact (think Mahatma Gandhi, Albert Einstein, Nelson Mandela and Thomas Edison).
Happiness is not something that falls out of the sky and into our children’s laps. It is a wonderfully complex state of mind that can be strengthened with practice. And I’m willing to bet that we all want our children to experience happiness and joy in life.
Lauren Knight blogs at Crumb Bums.

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Monday, May 11, 2015

AWARENESS NOTES: GOOD NEWS AND BAD NEWS

On the good news front, there will be a special stamp to honor this year's Special Olympics:

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A competition bringing together athletes with intellectual disabilities from around the world will be immortalized on a new postage stamp.

© USPS 2015
© USPS 2015

The U.S. Postal Service is issuing a commemorative stamp in honor of the Special Olympics World Games in Los Angeles this summer.

The Forever stamp went on sale nationwide Saturday. It features the logo for this summer’s competition, which will be held July 25 to August 2.

“The Postal Service is pleased to honor Special Olympics, an organization that — for nearly five decades — has changed the world by creating opportunities for children and adults with intellectual disabilities,” said Dean Granholm, pacific area vice president for the postal service. “Using these stamps on your cards, letters and packages is a great way to show your support for these athletes.”

Special Olympics holds alternating winter and summer world games every two years in locations around the globe.

The Los Angeles games are expected to draw over 7,000 athletes from 177 countries, including 344 competitors from across the United States.


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In more good news, New Hampshire is about to become the first state to make it illegal to pay those with disabilities less than the minimum wage:

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With legislation signed this week, New Hampshire is set to become the first state in the nation to make it illegal for people with disabilities to be paid less than minimum wage.

Gov. Maggie Hassan signed a bill Thursday prohibiting subminimum wage in New Hampshire. The new law will take effect in 60 days.

“New Hampshire has a strong tradition of treating all of our citizens with respect and dignity, and by making New Hampshire the first state to prohibit employers from paying subminimum wages to people who experience disabilities, Senate Bill 47 helps build on that tradition,” Hassan said.

Previously, New Hampshire law allowed employers to obtain permission to pay those with physical or mental impairments less than minimum wage.

Though no businesses in the state are currently taking advantage of the provision, Hassan said that updating the state’s policies to officially end the practice affirms that “fully including all people is critical to the strength of our society, our democracy and our economy.”

Since the 1930s, federal law has allowed employers to request special permission from the U.S. Department of Labor to pay those with disabilities less than the federal minimum, which is currently $7.25 per hour. However, the issue has become divisive in recent years.

In 2012, the National Council on Disability recommended to President Barack Obama that subminimum wage be phased out and a federal law passed last year instituted new limits on who’s eligible to enter employment situations paying less than minimum wage. Nonetheless, many families and advocates continue to argue that there is a place for sheltered workshops and similar opportunities for individuals unable to thrive in competitive employment.


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On the bad news front:  a teacher in Marietta, Georgia is accused of putting a boy with autism in a trash can:

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A veteran special education teacher is accused of putting a second-grader with autism in a trash can, saying his behavior was similar to Oscar the Grouch on “Sesame Street,” according to school system police.

Mary Katherine Pursley, a teacher at Mt. Bethel Elementary in Marietta, Ga., was attempting to calm the child during an after-school program last Thursday, witnesses told police.

“The accused talked with the victim about Oscar the Grouch and his ‘trashy behavior’,” Pursley’s arrest warrant states. “The accused told the victim, ‘If he had trashy behavior like Oscar, he’d go to the trash can.'”

Pursley then allegedly picked up the child by his legs, held him upside down and put him head-first into a trash can, according to police.

“Are you going to stop yelling now?” Pursley asked the boy, witnesses said.

The boy was crying, screaming and yelling “stop” while being held by Pursley, the arrest warrant states. She then set the boy down on the floor. The incident was witnessed by two paraprofessionals and the school after-school director. Other students in the classroom also witnessed Pursley’s actions, according to police.

Pursley, 45, of Atlanta, was arrested Monday night and charged with cruelty to children in the first degree, Cobb County jail records showed. She was released early Tuesday after posting $5,000 bond.

Pursley, who has been with the school district for 21 years, is on administrative leave with pay while the matter is under review, a spokeswoman for the school system said.


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Thursday, May 7, 2015

A GUIDE TO SUCCESS IN THE JOB INTERVIEW PROCESS

Today I am forwarding something that was developed recently by the excellent organization Changing Faces.  This is a group based in the UK, which focuses on any person who has any kind of facial or other physical difference (be it something they were born with or something they acquired), and tries to promote strategies and resources to help them, and emphasizes fighting against societal prejudice against facial difference. 

Here CF focuses on the job interview process.  And as so many of us know, what could be more stressful than that for someone who has a facial or general physical difference?  I frequently hear from those who have Moebius how difficult the interview process can be.  There are worries--will the interviewer assume I have an intellectual disability?  Will they give me a fair chance?  Will my difference keep me from getting the job?  And then there are all the dilemmas that come up--with the biggest one being:  should I tell my potential employer about my Moebius?  Or not?  And there could be worries for the employer as well.  Your interviewer might be afraid to ask about your physical difference.  So many problems!  But Changing Faces is trying to help.  They have come up with job interview guides for both applicants, with facial or other differences...AND for employers.  Read on; and you can find links to the actual guides at the this link too:

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Employers and jobseekers are being given a helping hand to handle the sensitive issue of disfigurement, in new guidance published today.

Changing Faces, the national charity that supports people living with a scar, mark or condition that affects their appearance, has developed guides for employers and jobseekers to overcome barriers that people with disfigurements say hold them back from employment.

“With almost one in every hundred people of working age having an unusual facial appearance, many fear that reactions from employers will jeopardise their chances. At the same time, many interviewers are fearful of asking the wrong thing, using inappropriate words or being accused of discrimination,” said Sally Mbewe, a business psychologist who works as the charity’s Face Equality at Work Advisor and who also delivers training to employers around the UK. “These fears mean that many talented and capable individuals are left out of the job market, and employers are losing out on potentially high quality candidates.”

The charity’s guide for jobseekers explains how to deal constructively with the application process, and the rise in popularity of the ‘visumé’, a video application, increasingly common in the creative industries. It also gives advice on how to confidently approach interviewers who are distracted or confused by the jobseeker’s appearance. For recruiters and interviewers, the guide provides advice on what they are allowed to ask, how to avoid being distracted by a candidate’s appearance and focus on what they are saying.

Both guides work through similar concerns but from different perspectives, and are designed to complement each other. The overall aim is to make everyone involved in the interview feel confident and at ease, and secure in the knowledge that the process will be fair.

The Equality Act 2010 includes ‘severe disfigurement’ as a protected characteristic, making discrimination illegal. But Lucy Wilson, 20, a journalism student at Sheffield Hallam University, experienced rejection when she applied for a part-time job in a high street food retailer.

“The interview went well, but I saw them glancing at my hands a few times,” Lucy said. “Telling them that I engage in sports, and other handiwork, I presumed that they knew that I was well enabled. After a week of hearing nothing, my mum actually went into the shop to see if they had chosen someone for the job. They said they hadn't because they wanted to pick me, but weren't sure whether to take me on due to the appearance of my hands.”

Lucy says that guidance would have helped. “The new guides from Changing Faces would have given me the confidence to talk about my hands and deal with their concerns there and then."

Lucy’s experience is not uncommon according to Changing Faces, which runs the ‘What Success Looks Like’ campaign to raise awareness of good practice in the workplace, and highlight career success stories of people with a facial difference. More than half a million people in the UK have a facial disfigurement, but research by the charity found that 43% of their clients said that they had not applied for a job because they believed their face wouldn’t fit, and 46% had experienced being treated differently by an interviewer.

“By demonstrating what success can and does look like in the workplace we can start to replace the fear of rejection, of causing offence and of being accused of discrimination, with confident dialogue, open-mindedness and fair decision-making,” said Ms Mbewe.

Caroline Rawes, head of resourcing at law firm Taylor Wessing, where the guidance is being launched at an event for leading recruiters this morning, said: “The new guides for employers and jobseekers from Changing Faces enable every employer to provide a fair and equal recruitment process when an applicant or candidate has a scar, mark or condition which affects their appearance. The detailed information in each guide gives clarity, provides useful guidance and allows for open and flexible communication, and I hope that Taylor Wessing will be the first of many firms who’ll adopt the guidelines in the coming weeks.”


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And remember--there are links to the guides themselves at the Changing Faces link above.

Wednesday, May 6, 2015

FEELING STRESSED? THE REASONS WHY MAY SURPRISE YOU

Because both people with and without Moebius Syndrome feel stressed; and some of the reasons _why_ we feel stressed are things that we all just may have in common.  Do you feel stressed?  Perhaps below you can find a reason why:

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You're probably all too aware of the major sources of stress in your life—money, your terrible commute, the construction workers who start jackhammering at 5 a.m. But stress and anxiety don't have to just come from obvious or even negative sources. "There are plenty of chronic strains and low-grade challenges that don't necessarily overwhelm you in the moment, but almost take more of a toll in the long run," says Scott Schieman, PhD, professor of sociology at the University of Toronto. These are some of unexpected reasons why you might feel anxious or agitated. By recognizing them for what they are, says Schieman, you can better prepare to cope.
 
Your significant other
Even if you have a blissfully happy relationship with your live-in partner or spouse, you're both bound to do things that get on each other's nerves. "Early in the relationship, it's usually about space and habits—like whether you squeeze the toothpaste from the middle or the bottom of the tube," says Ken Yeager, PhD, associate professor of psychiatry at the Ohio State University Wexner Medical Center. "Later on, you might clash over parenting style or financial issues, and finding a unified front to face these issues together." So what's the key to surviving and thriving in your life together? Finding balance, says Yeager: spending the right amount of time together (not too much and not too little), making compromises, keeping communication open and honest, and remembering to acknowledge what you love about each other on a daily basis.
Everyday annoyances
We're told not to sweat the small stuff, but sometimes it's the little things that have the biggest impact on our mood: the never-ending phone calls with your insurance company, the rude cashier at the grocery store, the 20 minutes you lose looking for a parking space. "We let these things bother us because they trigger unconscious fears," says Yeager—fears of being seen as irresponsible, of being bullied or embarrassed, or of being late all the time, for example. "Sometimes you need to take a step back and realize that you're doing the best you can given the circumstances."
 
Other people's stress
Stress is contagious, according to a 2014 German study: In a series of experiments, most participants who simply observed others completinga stressful task experienced an increase themselves in production of the stress hormone cortisol—a phenomenon known as empathic stress. You can also experience stress when someone you know is affected by a traumatic event, like a car crash or a chronic illness. "You start to worry, 'Oh my gosh, could that happen to me?'," says Yeager. "We tend not to think about these things until they hit close to home."
Social media
It may seem like Facebook is the only way you keep up with the friends you don't see regularly—which, during particularly busy times, can be just about all of them. The social network also has a downside, according to a 2015 study from the Pew Research Center: It can make you aware of stressful situations in your friends' lives, which in turn can add more stress to your life. The Pew report didn't find that social media users, overall, had higher levels of stress, but previous studies have suggested that frequent social-media use can be associated with negative body image and prolonged breakup pain.
Distraction
A distraction can be a good thing then when it takes your mind off of a stressful situation or difficult decision, like when you take a break from work to meet a friend for lunch. But it works the other way, as well: When you're so busy thinking about something else that you can't enjoy what's going on around you, that kind of distraction can be a recipe for stress. Practicing mindfulness gives you brain the refresh it needs, says Richard Lenox, director of the Student Counseling Center at Texas Tech University. Paying full attention to your surroundings when you're walking and driving can help, he adds. "Stress and anxiety tend to melt away when our mind is focused on the present."
 
Your childhood
Traumatic events that happened when you were a kid can continue to affect your stress levels and overall health into adulthood. A 2014 University of Wisconsin-Madison study found that these childhood experiences may actually change parts of the brain responsible for processing stress and emotion. The way you were raised can also have a lasting impact on your everyday angst, suggests a 2014 Johns Hopkins University study. Researchers found that children of parents with social anxiety disorders are more likely to develop "trickle-down anxiety"—not simply because of their genes, but because of their parents' behaviors toward them such as a lack of warmth and emotion, or high levels of criticism and doubt.
Tea and chocolate
You probably know to take it easy on the coffee when you're already feeling on edge. "Caffeine is always going to make stress worse," says Yeager. But you may not think as much about drinking several cups of tea at once, or chowing down on a bar of dark chocolate—both of which can contain nearly as much caffeine as a cup of joe. "Chocolate is a huge caffeine source," says Yeager. "I know people who don't drink coffee but they'll eat six little candy bars in a two-hour period because they want the same kind of jolt." Too much caffeine, in any form, can cause problems with sleep, digestion, and irritability.
 
Your expectations
When things don't go the way you've planned, do you tend to get upset and act defensively, or do you roll with the punches and set off on a new plan? If it's the former, you could be contributing to a mindset of pessimism and victimization that will slowly wear you down, even when things may not be as bad as they seem. "Your level of serenity is inversely proportionate to your expectations," says Yeager. That doesn't mean you shouldn't set ambitious goals for yourself or settle for less than what you want, of course, but being realistic about what's truly possible is important, as well.
Your reaction to stress
If you tend to deal with stressful situations by working long hours, skipping your workouts, and bingeing on junk food, we've got some bad news: You're only making it worse. "We know that physical activity and healthy foods will help your body better deal with stress, and yet we often avoid them when we need them the most," says Yeager. "People really need to think about this downward spiral we get into and work harder to counteract it."
Multitasking
Think you're being super efficient by tackling four tasks at once? Chances are you're not —and it's only decreasing your productivity while increasing your stress. A 2012 University of Irvine study, for example, found that people who responded to emails all day long while also trying to get their work done experienced more heart-rate variability (an indicator of mental stress) than those who waited to respond to all of their emails at one time. Focusing on one task at a time can ensure that you're doing that job to the best of your abilities and getting the most out of it, so you won't have to worry about or go back and fix it later, says Schieman. And don't worry: You'll have enough time to do it all. In fact, you may discover you have more time than you thought.
Your favorite sport
Watching a tight game of college hoops can stress you out—even if your alma mater wins. "The body doesn't distinguish between 'bad' stress from life or work and 'good' stress caused by game-day excitement," says Jody Gilchrist, a nurse practitioner at the University of Alabama at Birmingham's Heart and Vascular Clinic. Watching sports can even trigger the body's sympathetic nervous system, releasing adrenaline and reducing blood flow to the heart. Those temporary consequences aren't usually anything to be concerned about, but over time, chronic stress can lead to high blood pressure and increased disease risk. And, of course, it doesn't help if you're adding alcohol and binge-eating to a situation that's already stressful on your body. You may not be able to control the outcome of the game, says Gilchrist, but you can limit its effects on your own body.
 
Digital devices
Whether you're using it for work or play, technology may play a large role in your mental health, says Yeager. Using computers or e-readers too close to bedtime could lead to sleep problems, he says, and spending too much time virtually socializing can make real-life interactions seem extra stressful. (Plus, texting doesn't trigger the same feel-good hormones as face-to-face talk does.) Then there's the dreaded "work creep," says Schieman, when smartphones allow employees to be tethered to their jobs, even during off-hours. "People say they're only going to check email for an hour while they're on vacation, but the problem with email is that they're filled with responsibilities, new tasks, and dilemmas that are going to be hard to compartmentalize and put out of your head once that hour is up."
Your (good) health
While it may not be as stressful as having a chronic illness or getting bad news at the doctor's office, even people in the best shape of their lives worry about their bodies, their diets, and their fitness levels. In fact, people who take healthy living to an extreme may experience some rather unhealthy side effects. People who follow low-carb diets, for example, are more likely to report being sad or stressed out, while those on any kind of restrictive meal plan may feel more tired than usual. And it's not unheard of for someone to become obsessed with healthy eating (known as orthorexia) or working out (gymorexia). Like any form of perfectionism, these problems can be stressful at best, and extremely dangerous at worst.
Housework
Does folding laundry help you feel calm, or does it make your blood boil? If you're in a living situation where you feel you're responsible for an unfair share of work, even chores you once enjoyed may start to feel like torture. "Dividing up housework and parenting responsibilities can be tricky, especially if both partners work outside the home," says Schieman. "And whether you define that division of labor as equal or unequal can really change your attitude toward it."
 
Uncertainty
Stress can be defined as any perceived or actual threat, says Yeager, so any type of doubt that's looming over you can contribute to your anxiety levels on a daily basis. "When you know something could change at any minute, you always have your guard up and it's hard to just relax and enjoy anything." Financial uncertainty may be the most obvious stressor—not being sure if you'll keep your job during a round of layoffs, or not knowing how you'll pay your credit card bill. Insecurities in other areas of life, like your relationship or your housing status, can eat away at you too.
Your pet
No matter how much you love your furry friends, there's no question that they add extra responsibility to your already full plate. Even healthy animals need to be fed, exercised, cleaned up after, and given plenty of attention on a regular basis—and unhealthy ones can be a whole other story. "Pets can be the most positive source of unconditional love, but at the same time they require an extreme amount of energy," says Yeager. People also tend to underestimate the stress they'll experience when they lose a pet. "I've had people in my office tell me they cried more when their dog died than when their parent died. It's a very emotional connection."
Your education
Having a college degree boosts your odds of landing a well-paying job, so although you're less likely to suffer from money-related anxiety, your education can bring on other types of stress, according to a 2014 study by Schieman and his University of Toronto colleagues. His research found that highly educated people were more likely to be stressed out thanks to job pressures, being overworked, and conflicts between work and family. "Higher levels of authority come with a lot more interpersonal baggage, such as supervising people or deciding whether they get promotions," says Schieman. "With that type of responsibility, you start to take things like incompetency and people not doing their jobs more personally, and it bothers you more."
 
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Tuesday, May 5, 2015

INTROVERTS, REJOICE??

Based on my experiences, I think it is fair to say that:  1] many people with Moebius Syndrome and similar physical differences, though certainly not all, tend to be a bit shy; tend to be a bit introverted;  and 2] thus it is not surprising that, when one encounters an adult with Moebius Syndrome, he or she might be living alone. 

Now I don't think anyone truly believes that living an isolated life, akin to a hermit, is a good thing.  But did you know--some "alone time" actually can be a good thing.  Read more about it:

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Americans have a complicated relationship with alone time. Though we often feel a constant connection because of social media, the fact is, we're more on our own than ever: More than 50 percent of American adults are single, and some 27 million people live alone. In 1950, just 22 percent of American adults were single, and 4 million lived alone. Combine that with people getting married later in life, and we're all just having more QT with ourselves.
Alone time, of course, is different than loneliness, which carries some health risks, including increased risk of heart disease and depression. But carving out some "me time," on the other hand, is a pretty awesome idea.
Think you'll have a terrible time at the movies alone? That's probably not the case. In fact, you'll have an equally good time partaking in fun activities on your own as you would if you were doing them with other people, according to a study conducted by business professors Rebecca Ratner of the University of Maryland and Rebecca Hamilton of Georgetown University. The not-so-fun part comes in when you're thinking about how others are perceiving your aloneness and worrying that they simply think you have no one to hang out with.
"[The research] provides empirical support for a key premise of our investigation: consumers who forego hedonic activities alone are missing out on opportunities for rewarding experiences," the researchers wrote, according to Science Of Us.

Being alone will make you more creative ...

If you're a fan of brainstorming with others, you might want to rethink that. When coming up with ideas and strategies, research shows that people come up with their best material on their own.
"Decades of research have consistently shown that brainstorming groups think of far fewer ideas than the same number of people who work alone and later pool their ideas," Keith Sawyer, a psychologist at Washington University in St. Louis said, according to The Washington Post.

... And probably make you work harder

Remember group projects in school? There was always someone who wasn't pulling their weight, and that's because of the concept of "social loafing" or the assumption that less effort has to be exerted because more than one person is involved. Taking on a task alone is probably the best way to get it done quickly and efficiently.

If you're an introvert, alone time is key to your happiness

It's no secret that introverts interact differently with the world -- and one of the most important things to introverts is their solo time.
"Think of each of us as having a cup of energy available," HuffPost blogger Kate Bartolotta explained. "For introverts, most social interactions take a little out of that cup instead of filling it the way it does for extroverts. Most of us like it. We're happy to give, and love to see you. When the cup is empty though, we need some time to refuel."

Taking on activities on your own can help you meet new people

If you've been feeling a little lonely lately, try taking on one of your favorite activities on your own. Not only will you have fun, but you might meet someone who shares your interests.
While traveling alone, for example, Ratner said she made social connections easily. "I found myself talking to people more alone than I normally would traveling with other people, when you're more insulated," she said, according to Science Of Us.

Spending time alone can help with depression, especially in teens

A 1997 study found that alone time was key for teens. "Adolescents ... who spent an intermediate amount of their time alone were better adjusted than those who spent little or a great deal of time alone," explained the study, authored by emotional development expert Reed W. Larson.

It helps clear your mind

Our brains need to rest and recharge in order to function as well as we want them to. So even if you're not an introvert, alone time is still important for processing and reflecting.
"Constantly being 'on' doesn't give your brain a chance to rest and replenish itself," Sherrie Bourg Carter, Psy.D. wrote in Psychology Today. "Being by yourself with no distractions gives you the chance to clear your mind, focus, and think more clearly. It's an opportunity to revitalize your mind and body at the same time."

You get to do what you actually want to do.

If your friend or partner wants to spend the day watching football and you'd rather spend it on a hike, choosing the solo path will probably end up being a lot more fun for you. Similarly, if you decide to take an entire day for yourself, you get to spend that day doing exactly what you want to do. Doesn't sound too shabby, does it?

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